Hi, I have tested positive for parietal cell antibodies and I also have three autoimmune conditions. For two years I’ve been experiencing tingling in my hands and feet, telling the doctors about my symptoms of headaches etc. B12 has been between 135 and 246. I’m 25 and struggling with fatigue and muscle weakness. They still try to say that they don’t know it’s pernicious anaemia and won’t prescribe injections, one doctor today tried to suggest I had a trapped nerve in my spine…literally feel like I’m at a wall. Can someone please recommend a private GP that would be likely to help and prescribe b12 injections? Thank you
advice please : Hi, I have tested... - Pernicious Anaemi...
advice please
Hi and welcome to the forum, it is posts like this that make me want to cry. You are not alone, people come here everyday with the same story. All I can do is suggest google private Doctors in your area. What county are you in.
Do you eat meat, or are you vegan etc.
Do look more into others posts, you will come across sleepy bunnies replies giving good advise.
Beauty salons.
Try B12 Injections and town where you live.
I hope you can find the help you need.
Thank you for your reply. I live in England and yes, eat meat regularly. I will look into it!
All Nuffield hospitals have private GPs that you can consult . That’s how I got my diagnosis by way of a positive Intrinsic Factor Antibody test , which my NHS surgery had ton act upon . Since then I have self -injected ( weekly because that’s what I need to keep symptoms at bay I’ll send you information Best wishes .
Demand more tests .
MMA homocysteine
IFAB shows up around 5o% of thise with PA.
Is your b12 going down?
Vit D tested
Iron
Ferritin
My husband has type 1 diabetes . He has had frozen shoulders . One finally gets better abd the other starts. Also joint pain and trigger fingers . Stiff joints .
This started when he was young
Ow if bourse put down to age. Very frustrating for you .
His b12 was 186 ( 200-900) ignored by gps
He now takes a low dose b12 daiky.
He obviously absorbs as it in the 300 s now .
Has helped
So sorry to hear of your struggles I know it's exhausting and you shouldn't have to but please open a case through PALS patient advice and liason service they have been amazing for me. Request a second opinion and also state NICE guidelines r.e. further investigations. Hopefully PALS can swiftly help resolve these issues as it looks bad on specific doctors and if still no resolution ask PALS to start a formal complaint to the practice manager and keep fighting for your rights. Good luck!