Positive IFAB results just in. - Pernicious Anaemi...

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Positive IFAB results just in.

EllaNore profile image
20 Replies

Well, I got my intrinsic factor test back just now. It is positive! why am I happy about this? I guess I feel now that there is absolutely no question and that I have a definitive answer for what has plagued me most of my life. I actually feel relieved that I have pernicious anemia. How crazy is that🤪

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EllaNore profile image
EllaNore
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20 Replies

Not Crazy at all ! Just confirmation of what you have been saying for all these years. Perhaps they altered your records after getting your results, Now altered, and now given you the news. !!!

EllaNore profile image
EllaNore in reply to

Thanks Sallyannl, I'm so relieved!! Haha I wouldn't put it past them, but I don't think with this. I only took the test yesterday so this is the official first release. Can you believe it? I'm so happy?! That's crazy.

wedgewood profile image
wedgewood in reply toEllaNore

You can be happy with that result . As long as you get the amount of B12 injections that you need , you can stay healthy for the rest of your life! If your doctors don’t let you have what you need , there is a way out . Champagne is called for ! But a cup of tea will do ! VERY PLEASED FOR YOU !

EllaNore profile image
EllaNore in reply towedgewood

Hahaha Cheers! This is so funny. Thank you very much Wedgewood! I'm injecting every day right now. I have by passed my doctor when it comes to the injections. I just need to be in control this now. I couldn't have done it with out you and everyone else here. 🦋

jade_s profile image
jade_s

WOO HOOO! 🎉🎉🙌

I know, kinda crazy we celebrate positive test results but there we are 😂

EllaNore profile image
EllaNore in reply tojade_s

HAHAHAHAHA 😂🥳💉RIGHT?? I am actually so happy!! This releases nearly 4 decades of suffering and being misdiagnosed and bullied and treated like I was crazy by doctors and my family, and now I am FREE. No one can lie to me anymore. Now I can help myself properly, with DAILY SI's!!!! I'm in control now!!! 💪

jade_s profile image
jade_s in reply toEllaNore

EXACTLY!!!! No one can gaslight you now!!

I'm really really very very happy for you!!! 😊

💃🕺💃🕺💃🕺💃🕺💃🕺💃🕺

EllaNore profile image
EllaNore in reply tojade_s

Thanks so much! I wasn't even this happy when I got divorced. LOLOL

in reply toEllaNore

So liberating, Might even have educated some doctors

Congrats EllaNore! One bit of advice get a print out of that result and guard it because believe me you’ll prob need it in the future.Once you get that positive result it’s indisputable as far as your concerned, you should never have to do that again because the odds are stacked against you that you’ll get another positive result.

Well done, use that info to your advantage now and find that treatment regime that suits you.best of luck xx

EllaNore profile image
EllaNore in reply to

Thanks so much! OK I will do that! thanks so much Happypensionclub. I do feel like it is a badge of truth. A badge of proof. That result carries the weight of all my/our years of suffering doesn't it? It kind of feels like it is an evil guardian angel.

Cherylclaire profile image
CherylclaireForum Support

Is it also crazy to say "Congratulations !" ?Keep that evidence and frame it.

Now just ensure they never, ever test it again !

Thrilled for you.

EllaNore profile image
EllaNore in reply toCherylclaire

Right? I love it though. Thanks I will!!

FlipperTD profile image
FlipperTD

Scientist, not medic.

Congratulations, well done, keep on taking the injections and get on with your life! I'm pleased to see that my colleagues have 'done the business' for you.

EllaNore profile image
EllaNore in reply toFlipperTD

Thanks so much! I will! Thanks for your work in science and making a difference.

Steph0077 profile image
Steph0077

Well done it’s a relief to know what you have been telling them is 100% correct 👍🏼❤️

EllaNore profile image
EllaNore in reply toSteph0077

Exactly!!! Thank you!

Readdaily profile image
Readdaily

I’m so happy for you! It’s never a happy thing when a chronic illness is diagnosed, but in the case of PA sufferers it’s such a relief when you have confirmation from a lab result. It’s just so unfortunate that the accuracy of the IFAB test can’t be improved and give accurate results 100% of the time.

EllaNore profile image
EllaNore in reply toReaddaily

Thanks so much. It is such a relief to know!! Hopefully they keep improving the tests.

FlipperTD profile image
FlipperTD in reply toReaddaily

Here we go again... Scientist, not medic. Leave the poor IFAb test alone; it's trying its best!

If it wasn't accurate, then we wouldn't use it. The test is accurate. Keep on doing the same sample over and over, and you'll get the same answer. So it's pretty precise too. The problem is that the test does its best but if there aren't IFAb antibodies there, it can't detect them. As we probably all know nowadays, with Covid etc, antibody titres rise and fall, and if they're there in sufficient quantity, we'll detect them.

The only decent tests we've had were the Schilling tests, but they required radioactive cobalt labelled B12, [which came from a reactor] and animal-derived Intrinsic Factor, [which came from a slaughterhouse.] When Mad Cow Disease reared its head, then slaughterhouse by-products became somewhat less popular. The manufacturers stopped producing the kits, and it's easy to understand why.

As an aside, even though it was a very good test, it could still be done wrong, and give the wrong answer. But that's another story that I won't spell out on here!

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