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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for February 2022

I’m struggling to cope…

Hi all, I’ve had enough of this… I am truly experiencing crippling anxiety to the point where both of my hands cramp and ache because all I’m doing is thinking...

Hi all, I’ve had enough of this… I am truly experiencing crippling anxiety to th...

User2020-1

•2 years ago

18 Replies

Quick & successful b12 order

Thought I would share this. Ordered 5 x 10 B12 Hydro last week and it was delivered within 5 days from Germany: Versandapo.de Search for b12 depot panpharma,...

Thought I would share this. Ordered 5 x 10 B12 Hydro last week and it was deliv...

LJH50

•2 years ago

2 Replies

How long

Has any one experienced a wake up of nerves after bringing thier b12 injections closer together.. Some of the pain in my hands ankles toes arm keeps me awake....

Has any one experienced a wake up of nerves after bringing thier b12 injections ...

Mozza127

•2 years ago

3 Replies

Want to take advantage of all our features? Just log in!

Further update on Versandapo

Wow! Just taken delivery of my order placed on Friday. Not unpacked yet. Excellent service, there seem to be a lot of documents attached to the box, so they’ll...

Wow! Just taken delivery of my order placed on Friday. Not unpacked yet. Excelle...

Kazania

•2 years ago

24 Replies

Class 2 Medicines Recall: hameln pharma ltd, Water for Injections BP – 100ml vial

Just in case anyone is using this product in conjunction with their B12 injections: Class 2 Medicines Recall: hameln pharma ltd, Water for Injections...

Just in case anyone is using this product in conjunction with their B12 injectio...

helvella

•2 years ago

3 Replies

Does it need to shave thighs for subcutaneous injection?

I used to inject in stomach and on an off I shave my stomach but through time I found its possible even without shaving everyday administer SI. But I need to...

I used to inject in stomach and on an off I shave my stomach but through time I ...

Hamayeshguy

•2 years ago

9 Replies

Long Covid- are they still missing a link with B12 deficiency ?

In the Mirror today, on the medical page, there is an article about how long covid can affect the way your brain works. "It wasn't long after the pandemic...

In the Mirror today, on the medical page, there is an article about how long cov...

Cherylclaire

Forum Support•2 years ago

25 Replies

Crystal clear long term memories

I have been SI for some time now… every other day for many months, once a week for a period and now once every 10 days or so. Around 4 months in I started to...

I have been SI for some time now… every other day for many months, once a week f...

Hidden

•2 years ago

3 Replies

Understanding Light Chains

Can there be a link between B12 deficiency and light chains(?) showing in blood. I have to have a blood test yearly to check for something I don’t understand…...

Can there be a link between B12 deficiency and light chains(?) showing in blood....

PamBow

•2 years ago

2 Replies

Link between Raynaud's phenomenon and PA

Do any PA sufferers also experience Raynauds phenomenon? When I first got diagnosed, and was extremely ill, my hands were purple. I'd always had a bit of...

Do any PA sufferers also experience Raynauds phenomenon? When I first got diagno...

Hidden

•2 years ago

5 Replies

IF/WHEN YOU ORDER FROM AMAZON , PLEASE USE “AMAZON SMILE” AND CHOOSE THE PERNICIOUS ANAEMIA SOCIETY AS YOUR CHARITY AT NO COST TO YOURSELF

Sorry to bore you with this again , but the newcomers may not be aware of this . It’s only .5%, BUT — “ Every little helps “, as they say !

Sorry to bore you with this again , but the newcomers may not be aware of this ....

wedgewood

•2 years ago

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Genetic Sequencing of Pernicious Anemia?

Could someone more educated than me read this paper and explain the results? From what I could understand, this study analyzed DNA defects and how they...

Could someone more educated than me read this paper and explain the results? F...

MoKayD

•2 years ago

3 Replies

Help understanding B12 deficiency

Hi, I was hoping you guys could help me answer a question…. I have been taking B12 for a long time and I am just above the threshold for B12 deficiency. I...

Hi, I was hoping you guys could help me answer a question…. I have been taking B...

CSMMUM

•2 years ago

17 Replies

New box of B12, did it make me feel ill

I ordered a new store of 100 B12s Depot with the expiry date of 2024, last Friday morning I injected one of them. Saturday morning, when I awoke, I felt really...

I ordered a new store of 100 B12s Depot with the expiry date of 2024, last Frida...

JohnnyConger

•2 years ago

13 Replies

Atkins diet

I was on the atkins low carbs diet for about 4/5 months, could this have caused my pa ?

I was on the atkins low carbs diet for about 4/5 months, could this have caused ...

Weeeck1951

•2 years ago

6 Replies

Update on Versandapo order

@Themabinogion. @Wedgewood. @Libuse. @kcbrecks. @Firefly100 Thanks to eveyone for your replies. Especially Wedgwood. I was already registered but didn’t...

@Themabinogion. @Wedgewood. @Libuse. @kcbrecks. @Firefly100 Thanks to eveyone fo...

Kazania

•2 years ago

9 Replies

can anyone help with methylecobalamin

Hi all, I am new to the site. I have PA from Postive IF test (first time)and B12 deficiency. I gave myself extra injections when the GP would not follow...

Hi all, I am new to the site. I have PA from Postive IF test (first time)and B1...

safluy

•2 years ago

10 Replies

How long after stopping B12 supplements can I have a blood test?

Hi I want to get my vitamin B12 levels tested. I’ve read somewhere that you should only have a blood test something like 4 months after stopping any B12...

Hi I want to get my vitamin B12 levels tested. I’ve read somewhere that you sho...

Edso57

•2 years ago

23 Replies

HELP WITH ORDERING FROM VERSANDAPO.DE

When ordering B12 ampoules from www.versandapo.de , I recommend registering - Click on the little figure / silhouette representing a human and fill out the...

When ordering B12 ampoules from www.versandapo.de , I recommend registering - ...

wedgewood

•2 years ago

16 Replies

I need guidance for thighs subcutaneous injection

I'm trying to increase frequency of my injection and soon I'm running out of injection spot on my stomach. I need guidance for thighs subcutaneous injection .

I'm trying to increase frequency of my injection and soon I'm running out of inj...

Hamayeshguy

•2 years ago

4 Replies

can’t order from Versandapo

@wedgwood and @achesandpains75. Re your previous posts from Nov ‘21 I’ve just tried to buy vials from versandapo I found the product easily and paid in the...

@wedgwood and @achesandpains75. Re your previous posts from Nov ‘21 I’ve just tr...

Kazania

•2 years ago

18 Replies

Hi I have just managed to order some B12 ampoules from Germany. Can anyone tell me where I can get some syringes and needles

Also can anyone tell me if the B12 patches work on someone with a diagnosis of PA. Thank you

Also can anyone tell me if the B12 patches work on someone with a diagnosis of P...

Bluegeranium

•2 years ago

8 Replies

Numbness in shoulder arms and trapozoidium muscles, please help I can't sleep

For one year and half I have neurological symptoms which comes and go. I used to take pills for seven months btgen started to inject cyanocobalamin for couple...

For one year and half I have neurological symptoms which comes and go. I used to...

Hamayeshguy

•2 years ago

10 Replies

Does anyone have any advice on constant bloating?

I'm bloated constantly from the minute I get up. Has anyone else had this and did anything help?

I'm bloated constantly from the minute I get up. Has anyone else had this and di...

Bella211

•2 years ago

18 Replies

Drinking alcohol during treatment

Is drinking wine while healing from nerve damage frowned upon? I have been drinking a bottle of wine or a two once a week for the last 4 months and hope I am...

Is drinking wine while healing from nerve damage frowned upon? I have been drink...

nessanthemum

•2 years ago

15 Replies

b12 lm injection available in uk.

Hi im new here.... dont know if this is widley known,but you can get b12 injections without prescription from some beauty parlours/eyebrow threading? type...

Hi im new here.... dont know if this is widley known,but you can get b12 injecti...

grubster

•2 years ago

16 Replies

Might I have PA?

Hello nice members, I am new to this group although I do belong to the thyroid group. I have not felt ‘well’ for about 6 years and am trying my best to now get...

Hello nice members, I am new to this group although I do belong to the thyroid g...

KimNancy

•2 years ago

12 Replies

Sugar

Does anybody since having b12 injections have a low tolarence for sugar or sugary things. As I've discovered I get more bones aching if I it sugary things at...

Does anybody since having b12 injections have a low tolarence for sugar or sugar...

Mozza127

•2 years ago

4 Replies

PLEASS HELP Memory loss

Hi All I’ve been struggling for a few years with memory loss. I can’t remember what I’ve watched on tv, what I’ve read, telephone numbers at work, leaving...

Hi All I’ve been struggling for a few years with memory loss. I can’t remember w...

Welly73

•2 years ago

22 Replies

B12/crohns update

My friend who had stroke a few weeks ago, caught covid in hospital a couple of weeks ago. Now back at home, due to having stroke she was expected to inject...

My friend who had stroke a few weeks ago, caught covid in hospital a couple of w...

Hidden

•2 years ago

7 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2022

I’m struggling to cope…

Quick & successful b12 order

How long

Further update on Versandapo

Class 2 Medicines Recall: hameln pharma ltd, Water for Injections BP – 100ml vial

Does it need to shave thighs for subcutaneous injection?

Long Covid- are they still missing a link with B12 deficiency ?

Crystal clear long term memories

Understanding Light Chains

Link between Raynaud's phenomenon and PA

IF/WHEN YOU ORDER FROM AMAZON , PLEASE USE “AMAZON SMILE” AND CHOOSE THE PERNICIOUS ANAEMIA SOCIETY AS YOUR CHARITY AT NO COST TO YOURSELF

Genetic Sequencing of Pernicious Anemia?

Help understanding B12 deficiency

New box of B12, did it make me feel ill

Atkins diet

Update on Versandapo order

can anyone help with methylecobalamin

How long after stopping B12 supplements can I have a blood test?

HELP WITH ORDERING FROM VERSANDAPO.DE

I need guidance for thighs subcutaneous injection

can’t order from Versandapo

Hi I have just managed to order some B12 ampoules from Germany. Can anyone tell me where I can get some syringes and needles

Numbness in shoulder arms and trapozoidium muscles, please help I can't sleep

Does anyone have any advice on constant bloating?

Drinking alcohol during treatment

b12 lm injection available in uk.

Might I have PA?

Sugar

PLEASS HELP Memory loss

B12/crohns update

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive