Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,170 members • 23,342 posts

All posts for January 2022

Neuropathy

Could it be neuropathy? I wasn't diagnosed in time and ended up with it throughout my entire body. Especially in my legs and feet but also in my abdomen.

Could it be neuropathy? I wasn't diagnosed in time and ended up with it through...

Rosiedelilah

•2 years ago

1 Reply

Lower leg burning sensation

I’ve been diagnosed and on medication ( B12) for a few years now. Usually ok, but tired when jab is due. Lately I get a burning sensation in my left lower leg...

I’ve been diagnosed and on medication ( B12) for a few years now. Usually ok, bu...

Kellybee

•2 years ago

5 Replies

Is low iron level relevant?

I have auto-immune thyroid disease (Hashimoto's). I have long had problems absorbing B12, B9 and iron. Just before the first lockdown in March 2020, I was...

I have auto-immune thyroid disease (Hashimoto's). I have long had problems absor...

ADDG

•2 years ago

7 Replies

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Cyano Vs Hydroxy

Seeing as I still have to SI daily does anyone know if there will be any differences between the two. I know the half life of hydroxy is longer but if it is...

Seeing as I still have to SI daily does anyone know if there will be any differe...

WorkingProgress

•2 years ago

4 Replies

Here we go again.......

My G.p practice hax been taken over. Was expecting a review. Today went for usual IM b12 injection Different nurse (permanent staff) from Gp 'group'...

My G.p practice hax been taken over. Was expecting a review. Today went for usu...

Nackapan

•2 years ago

38 Replies

Sharp stinging pain hours after injection

The b12 injection in my hip area barely hurt. Two hours later, it started stinging, burning, feeling sharp right where I got it. It is a constant pain. I’ve...

The b12 injection in my hip area barely hurt. Two hours later, it started stingi...

Purplegirl2

•2 years ago

5 Replies

Arm sore days after injection

Nurse gave my b12 injection a week and a half ago and my arm is really hurting to the point that it's very uncomfortable to lift things with that arm and its...

Nurse gave my b12 injection a week and a half ago and my arm is really hurting t...

Clare184

•2 years ago

12 Replies

B12 deficient

I am extremely deficient in b12 and doctor wants to inject but I am allergic to cobalt. Does anyone have any ideas on what I can do ?

I am extremely deficient in b12 and doctor wants to inject but I am allergic to ...

Maggi44

•2 years ago

3 Replies

Assistance with Potential misdiagnosis.

Hi All, I was unsure where to turn and you guys are my last hope! In July 2020 I was diagnosed with MS ( Multiple Sclerosis ) due to having some numbness and...

Hi All, I was unsure where to turn and you guys are my last hope! In July 2020 I...

smileysammi

•2 years ago

18 Replies

Oxford Biosciences Methylcobalamin

I finally got my transcobalamin II lab test results and, no surprise, I'm extremely low. Since I lack the proper b12 transport proteins, I'm re-thinking my...

I finally got my transcobalamin II lab test results and, no surprise, I'm extrem...

USmedsyssucks

•2 years ago

20 Replies

which company in Germany to use to get B12 posted to UK

i need to order B12 injections from Germany but i am not sure what company to use, can someone advise me please

i need to order B12 injections from Germany but i am not sure what company to us...

minniemole

•2 years ago

15 Replies

Can this be true???

B12 spray now available in the UK? When I think of all the battles I have had to get b12 here and now suddenly it is available. What do you all think about...

B12 spray now available in the UK? When I think of all the battles I have had t...

jillc39

•2 years ago

11 Replies

Thank you folks

Hope everyone is feeling spring around the corner now. I just want to thank everyone for there help and support from monday. Also a big,Big thank you to...

Hope everyone is feeling spring around the corner now. I just want to thank ever...

Chance15

•2 years ago

1 Reply

COVID-19’s toll on the elderly and those with diabetes mellitus – Is vitamin B12 deficiency an accomplice?

I just found this article and thought I would share it https://www.sciencedirect.com/science/article/pii/S0306987720332655

I just found this article and thought I would share it https://www.sciencedirect...

MoKayD

•2 years ago

4 Replies

Colour of b12 depot???

Colour of b12??? Just sum.ond up courage to inject myself. The colour of the b12 depot is a red colour. Is this right. The one I am given at surgery is a clear...

Colour of b12??? Just sum.ond up courage to inject myself. The colour of the b12...

Welsh15

•2 years ago

20 Replies

F.Y.I. for PA Sufferers Who Bake Bread

For most of my adult life I would bake yeasted bread for holidays, etc., but for the last 5 years or so, my bread baking skills seemed to have failed me. I...

For most of my adult life I would bake yeasted bread for holidays, etc., but for...

MoKayD

•2 years ago

3 Replies

Injections

When you bring ur b12 closer together can it wake up nerve endings and start symptoms recurring and then settle

When you bring ur b12 closer together can it wake up nerve endings and start sy...

Mozza127

•2 years ago

10 Replies

B12 level

Hi I’ve posted on here the other day to say I had left it 6 weeks in between my B12 jab instead of 4 weeks and have had a horrible week of symptoms, I went...

Hi I’ve posted on here the other day to say I had left it 6 weeks in between my ...

Hidden

•2 years ago

10 Replies

IFab or MMA

Hello I am trying to investigate low active b12 results (at the low end of the reference range). Am I better to organise a private iFab test or an MMA test?...

Hello I am trying to investigate low active b12 results (at the low end of the r...

Sparklyjenson

•2 years ago

9 Replies

B12 & beauty industry .. rant

Feeling angry now that my daughter who I now supply with B12 (as I SI) and her GP is aware, current ongoing situation. I find that Her dad's girlfriend in...

Feeling angry now that my daughter who I now supply with B12 (as I SI) and her ...

Hidden

•2 years ago

20 Replies

Does anyone get nerve pain?

Hi everyone, does anyone else experience nerve pain ? I have been getting it in right side of head, neck,across shoulders and down right arm. I have been...

Hi everyone, does anyone else experience nerve pain ? I have been getting it in ...

Welsh15

•2 years ago

32 Replies

Why in Dutch guideline for PA and B12 deficiency emphasis is just on IM injection and SC injection not mentioned?

I'm wondering why in dutch guideline for PA and B12 deficiency there is no SC injection. Is there any difference between IM injection and SC injection......

I'm wondering why in dutch guideline for PA and B12 deficiency there is no SC in...

Hamayeshguy

•2 years ago

16 Replies

How valid Is the test for pernicious anemia?

Perhaps I am beating a did horse. After having been told by both an oncologist and a neurologist that I should be getting weekly B12 shots, my GP has okayed...

Perhaps I am beating a did horse. After having been told by both an oncologist ...

jersey-jazz

•2 years ago

9 Replies

Exercise and PA

After doing weekly injections for a few months I have been feeling so much better. It’s nice to finally feel more like myself and to have some me energy. I...

After doing weekly injections for a few months I have been feeling so much bette...

lambuth_eagle

•2 years ago

13 Replies

COVID vaccine issues

I was diagnosed with B12 deficiency in December 2020 and receive 3 monthly injections via GP. I have always eaten a B12 rich diet, but now supplement with...

I was diagnosed with B12 deficiency in December 2020 and receive 3 monthly injec...

Purple-y

•2 years ago

15 Replies

Best area for injection

Hi, I've been paying £35 for b12 injections over and above the inadequate one every three months my GP will give me so I ordered all the equipment I need to...

Hi, I've been paying £35 for b12 injections over and above the inadequate one e...

Cummie75

•2 years ago

4 Replies

B12 frequently

Hi everyone happy new year to you all. Does anyone else go downhill really quickly if they go a bit longer in between B12 jabs than they normally do? I’ve...

Hi everyone happy new year to you all. Does anyone else go downhill really quic...

Hidden

•2 years ago

15 Replies

Feeling I’ll after B12 injections

Good morning from England. A belated Happy New year to you all. I hope like me you are all coping the best you can with your pernicious anaemia/B12......

Good morning from England. A belated Happy New year to you all. I hope like me y...

Hedgehogs15

•2 years ago

16 Replies

PPI’s and self injecting

Is anyone here taking PPI’s long term, and if so at what frequency do you SI? I’m a gastric bypass patient so my PA is man made not autoimmune and I take...

Is anyone here taking PPI’s long term, and if so at what frequency do you SI? I’...

MissParkin

•2 years ago

2 Replies

Low Folate - Pernicious Anemia?

Hi, I was diagnosed with pernicious anemia in October and had the B12 loading doses - i also took 1000mcg a day sublingual following that and 3 month later my...

Hi, I was diagnosed with pernicious anemia in October and had the B12 loading do...

Minimanic

•2 years ago

7 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2022

Neuropathy

Lower leg burning sensation

Is low iron level relevant?

Cyano Vs Hydroxy

Here we go again.......

Sharp stinging pain hours after injection

Arm sore days after injection

B12 deficient

Assistance with Potential misdiagnosis.

Oxford Biosciences Methylcobalamin

which company in Germany to use to get B12 posted to UK

Can this be true???

Thank you folks

COVID-19’s toll on the elderly and those with diabetes mellitus – Is vitamin B12 deficiency an accomplice?

Colour of b12 depot???

F.Y.I. for PA Sufferers Who Bake Bread

Injections

B12 level

IFab or MMA

B12 & beauty industry .. rant

Does anyone get nerve pain?

Why in Dutch guideline for PA and B12 deficiency emphasis is just on IM injection and SC injection not mentioned?

How valid Is the test for pernicious anemia?

Exercise and PA

COVID vaccine issues

Best area for injection

B12 frequently

Feeling I’ll after B12 injections

PPI’s and self injecting

Low Folate - Pernicious Anemia?

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