Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,066 members • 23,216 posts

All posts for January 2022

Low ferritin

Hi all! I had my baby back in 2021 September. From about November I started feeling really 'not myself' I went to the doctors and was told I had iron...

Hi all! I had my baby back in 2021 September. From about November I started fee...

Jaydee1995

•2 years ago

56 Replies

Weird science

When laughing gas is just not that funny Article in daily mail (health) today 29 year man with a laughing gas habit was admitted after numbness in his limbs...

When laughing gas is just not that funny Article in daily mail (health) today 2...

Hidden

•2 years ago

7 Replies

Are we better

Has any one else noticed how ruff your GP is some times with your injections I'm not afraid of needless but since getting more confident I never ever hurt...

Has any one else noticed how ruff your GP is some times with your injections I'...

Mozza127

•2 years ago

6 Replies

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B12 from Amazon.de

I recently ordered 100 ampoules of B12 from Amazon de, took about 5 days to arrive and cost £72

I recently ordered 100 ampoules of B12 from Amazon de, took about 5 days to arri...

Pixielula

•2 years ago

4 Replies

Queries on kidney health

Hi I’m just looking for some advice please I’ve had Pernicious Anaemia for over 12 yrs now but on studying my print out of bloods done in September 2021 I...

Hi I’m just looking for some advice please I’ve had Pernicious Anaemia for over ...

Liz061254

•2 years ago

4 Replies

Advice on endoscopy

HI all - finally scheduled for an endoscopy the end of February. I have low levels of almost all micronutrients. Especially B12. Does anyone have any advice...

HI all - finally scheduled for an endoscopy the end of February. I have low lev...

SigNi

•2 years ago

31 Replies

Folate Level

I have been on B12 shots since August 2021 and am seeing good results with my MMA and homocysteine coming down. Symptom wise, I am seeing very subtle...

I have been on B12 shots since August 2021 and am seeing good results with my MM...

EiCa

•2 years ago

7 Replies

Update no. 2

New management team at my surgery Last Friday a new nurse queried my injection as not 3 months !!and would not give it until she'd sen a senior partner . He...

New management team at my surgery Last Friday a new nurse queried my injection ...

Nackapan

•2 years ago

14 Replies

Why I can't tolerate and handle any stress?

After I changed my way of supplementing myself an switched to hydroxocobalamin I think my symptoms are getting improved but are so slow. I have not much...

After I changed my way of supplementing myself an switched to hydroxocobalamin I...

Hamayeshguy

•2 years ago

8 Replies

Testing

I need help please. I have heart palpitations, headaches, hair loss and psychosis at same time. Doctor found severe anemia and thinks it is pernicious. She...

I need help please. I have heart palpitations, headaches, hair loss and psychosi...

Ecf123

•2 years ago

60 Replies

Advice about indigestion remedies

I have just started on exemestane for breast cancer. Looks like I'm going to be offered a bisphosphonate due to already having osteoporosis. Been on this...

I have just started on exemestane for breast cancer. Looks like I'm going to be ...

Kangarooiom

•2 years ago

8 Replies

B12 Injections closer

Started my last 2 injections every 3 weeks instead of every 4 Cant explain the difference still a long way to go but it amazes me why doctors don't sort things...

Started my last 2 injections every 3 weeks instead of every 4 Cant explain the d...

Mozza127

•2 years ago

16 Replies

Folic acid, injectable subcutaneous.

Can you inject a Folic acid injection, subcutaneously rather then IM? Even if it says on the box it’s for i.v and i.m? As I can’t find one specific for...

Can you inject a Folic acid injection, subcutaneously rather then IM? Even if it...

ACritical

•2 years ago

16 Replies

Struggling with low potassium and low b12 symptoms.

Hi, I have low potassium and also low b12 symptoms. I'm vegan and when I took 500mcg b12 2 or 3 times a week my b12 was 250. So I upped my dose to everyday...

Hi, I have low potassium and also low b12 symptoms. I'm vegan and when I took 5...

Bodhibo

•2 years ago

3 Replies

B12 and folate: dietary folate vs folate supplements? How much do you need?

I self inject B12 2 or 3 times a week and know that you need folate levels to be 'adequate' to use it properly. It's a few years since I had the intermittent...

I self inject B12 2 or 3 times a week and know that you need folate levels to be...

RoMello

•2 years ago

5 Replies

B12 injection

Why will my doctor not give me my b12 injection 1 week before it’s due, I normally go 12 weeks between but going on holiday so need week before, and...

Why will my doctor not give me my b12 injection 1 week before it’s due, I normal...

Lesleyann14

•2 years ago

7 Replies

Thanks

I just want to say thankyou so much , it’s so nice to know that I’m not alone, joining this was the best thing I have done, I always think the worst it when I...

I just want to say thankyou so much , it’s so nice to know that I’m not alone, j...

Prettywoman73

•2 years ago

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Tips for Americans with PA

I was diagnosed this month with pernicious anemia, with major neurological symptoms. Like many folks, I had difficulty finding someone to provide daily or...

I was diagnosed this month with pernicious anemia, with major neurological sympt...

Gardenswithwings

•2 years ago

11 Replies

Am I within my rights?

Hi all as some may have seen previous posts from myself relating hair loss... I have a phone call from a nurse practitioner who said my ferritin was perfect at...

Hi all as some may have seen previous posts from myself relating hair loss... I ...

Darcey14

•2 years ago

4 Replies

Less pain

syringe that cause less pain no matter what it costs? I say this because I have had some what of a needle phobia since childhood. I'm in the US but if anyone...

syringe that cause less pain no matter what it costs? I say this because I have...

25092

•2 years ago

11 Replies

Trickle

Can anyone tell me if they get a trickling feeling in their head not sure if this could be related to b12

Can anyone tell me if they get a trickling feeling in their head not sure if thi...

Prettywoman73

•2 years ago

18 Replies

Is a test for active B12 worth doing?

Hi everyone, Struggling with my GP as most of you are. I have had 3 monthly B12 Injections for several years and cannot get any GP in my practice to increase...

Hi everyone, Struggling with my GP as most of you are. I have had 3 monthly B12 ...

mill44

•2 years ago

12 Replies

Tongue stinging/tingling and Anxiety

Hi, I’m really struggling with the tongue stinging/tingling and heightened anxiety with no idea what to do to manage it - can anyone offer some suggestions...

Hi, I’m really struggling with the tongue stinging/tingling and heightened anxi...

User2020-1

•2 years ago

4 Replies

Low folic acid

Is it normal to have a headache and feel faint with low folic acid ? As I had a really bad headache yesterday just wondering if this is normal all new as just...

Is it normal to have a headache and feel faint with low folic acid ? As I had a ...

E44E44

•2 years ago

18 Replies

Drugs and nutrients

Came across website that might help people . Drug induced nutrient depletion Pharmacysolutionsonline.com Names the drug and nutrients it depletes.

Came across website that might help people . Drug induced nutrient depletion Pha...

Hidden

•2 years ago

10 Replies

Update

Read my NHS app. Nurse not only put a query with b12 medication. But also put b12 frequency 2 monthly on my notes after Friday . Another letter to practice...

Read my NHS app. Nurse not only put a query with b12 medication. But also put b1...

Nackapan

•2 years ago

19 Replies

B12 or P.A. diet?

Hi it’s me again! So l had my B12 jab a week ago after leaving it too long in between and feeling awful for a few weeks, 48hrs after the Jab I was back to...

Hi it’s me again! So l had my B12 jab a week ago after leaving it too long in b...

Hidden

•2 years ago

6 Replies

Optimum levels of b12

JUst going through optimum levels of B12, came across several websites that state in Japan and the rest of europe states that 500 to 1200 are the optimum...

JUst going through optimum levels of B12, came across several websites that stat...

Hidden

•2 years ago

21 Replies

I dared to question a beautician re B12 injections....

This was part of her response, when I said it was a money making scheme... "We were quoted around £7 per ampule then our syringes our needles our Swab boxes...

This was part of her response, when I said it was a money making scheme... "We ...

Hidden

•2 years ago

14 Replies

Rapid Response to Injections?

I'd like to share my story and ask if anyone else has experienced a rapid response to B12 injections. I started developing neuralgia and mild walking issues...

I'd like to share my story and ask if anyone else has experienced a rapid respon...

Gardenswithwings

•2 years ago

15 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(77)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2022

Low ferritin

Weird science

Are we better

B12 from Amazon.de

Queries on kidney health

Advice on endoscopy

Folate Level

Update no. 2

Why I can't tolerate and handle any stress?

Testing

Advice about indigestion remedies

B12 Injections closer

Folic acid, injectable subcutaneous.

Struggling with low potassium and low b12 symptoms.

B12 and folate: dietary folate vs folate supplements? How much do you need?

B12 injection

Thanks

Tips for Americans with PA

Am I within my rights?

Less pain

Trickle

Is a test for active B12 worth doing?

Tongue stinging/tingling and Anxiety

Low folic acid

Drugs and nutrients

Update

B12 or P.A. diet?

Optimum levels of b12

I dared to question a beautician re B12 injections....

Rapid Response to Injections?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive