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Pernicious Anaemia Society

32,066 members • 23,216 posts

All posts for June 2021

Where to purchase Vitamin B12 Ampoules online for Australia?

Does anyone know what happened to vitaminb12online.com? I can't seem to reach it. I am currently in Australia and b12 ampoules are available over the counter...

Does anyone know what happened to vitaminb12online.com? I can't seem to reach it...

Irenekkkk

•3 years ago

29 Replies

Asking for help to interpret blood results

Hi there! Today I received some laboratory results and I would like to have further advice and help to understand the results. My GP gave me a referral to a...

Hi there! Today I received some laboratory results and I would like to have furt...

Praga

•3 years ago

6 Replies

Under right eye twitch

Hi in the last week I have noticed a twich under my right eye 👁 anyone else or am I just getting old.......

Hi in the last week I have noticed a twich under my right eye 👁 anyone else or ...

Pippa76

•3 years ago

5 Replies

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Active B12 test

Hi all, Has anyone got a link to being able to buy active B12 tests or do they have to be done by a medic /GP? Thanks

Hi all, Has anyone got a link to being able to buy active B12 tests or do they ...

Clags

•3 years ago

9 Replies

Patient Data Opt Outs (UK)

Apologies for being a little off topic for forum but thought this would be of interest to UK members. BBC article about sharing of patient data....

Apologies for being a little off topic for forum but thought this would be of in...

Sleepybunny

•3 years ago

8 Replies

Hampshire (UK) neurologist anyone?

Hi. New to the forum and hoping someone can help. I am yet to be diagnosed, waiting for intrinsic factor test result (done privately as GP is being incredibly...

Hi. New to the forum and hoping someone can help. I am yet to be diagnosed, wait...

KrissieJ

•3 years ago

7 Replies

Where to get purchase b12 in the US

I’m in the us where can I purchase b12? . Dr here will only give me enough for one injection a month. When my level was 1010 I was starting to feel better now...

I’m in the us where can I purchase b12? . Dr here will only give me enough for o...

Pretty55

•3 years ago

9 Replies

B12 levels and symptoms

I am wondering if anyone can help or advise me on levels and symptoms. My B12 was 183 last August and then 247 in May as I supplemented for a while, but I was...

I am wondering if anyone can help or advise me on levels and symptoms. My B12 wa...

Mrss25

•3 years ago

2 Replies

Cause of b12 deficiency? Should I get private bloods?

Looking for advice. Been having b12 symptoms on and off for awhile: nausea, tingling in body burning on hand, tiredness, brain fog. 10 months ago I was told I...

Looking for advice. Been having b12 symptoms on and off for awhile: nausea, ting...

Gemgem123

•3 years ago

17 Replies

B12

Not sure if it was on this site but someone told me I can purchase b12 somewhere without a prescription. If so where can I get it? Thank you

Not sure if it was on this site but someone told me I can purchase b12 somewhere...

Pretty55

•3 years ago

11 Replies

B12 and COVID injections

Hi everyone, It’s been ages since I posted but now have a query. I get my b12 every six weeks but after my first COVID-19 injection I was really ill for five...

Hi everyone, It’s been ages since I posted but now have a query. I get my b12 e...

Maadkins

•3 years ago

47 Replies

Flickering eyelids

Anyone experience their eyelids doing weird things? Mine seem to be flickering when I close my eyes. Wondering if this is another B12 symptoms ....

Anyone experience their eyelids doing weird things? Mine seem to be flickering ...

Ctadds1

•3 years ago

8 Replies

Reoccurring symptoms - is this “normal” ?

I have been receiving injections for a year now. Progress has been made but I still get some very bad days. I had loading doses and then monthly injections...

I have been receiving injections for a year now. Progress has been made but I st...

Ctadds1

•3 years ago

18 Replies

B12 results help please

I have received my results which I had tested privately. Does this mean that I do not have PA? B12 -139 pmol/L (25.1. -165 pmol/L) Intrinsic factor - negative...

I have received my results which I had tested privately. Does this mean that I d...

Triciatextiles

•3 years ago

4 Replies

Advice: Chase referrals made.

I was referred to a neuro opthmologist in December 2019. Referral accepted January 10th 2020 by letter . Chased last year. Then last week. Over days woukd...

I was referred to a neuro opthmologist in December 2019. Referral accepted Janua...

Nackapan

•3 years ago

32 Replies

Lymphatic system affected? Intolerance? Gut health?

Hi chaps, quick question. Can the lymphatic system commonly be affected by/involved in B12D/PA? I'm wondering how connected or not certain things going on...

Hi chaps, quick question. Can the lymphatic system commonly be affected by/invo...

eclilley

•3 years ago

13 Replies

Normocytic Anemia,.

I have had 12 weekly B12 injections for a few years now. In February I discovered I have Normocytic anemia, and my gp told me that it occurs due to blood...

I have had 12 weekly B12 injections for a few years now. In February I discove...

Brookey

•3 years ago

19 Replies

Just been diagnosed - scared

Hello, I’m 33, live in the UK and have just been diagnosed via a blood test. I am to have 6 b12 injections over two weeks then one every three months as a...

Hello, I’m 33, live in the UK and have just been diagnosed via a blood test. I a...

1987star

•3 years ago

74 Replies

Blood tests after loading injections

As I have been suffering with neurological symptoms and recently diagnosed last month I’ve had my loading injections and asked the doctor if I could have more...

As I have been suffering with neurological symptoms and recently diagnosed last ...

Vonnie-72

•3 years ago

5 Replies

Hope

Dr talkt to homyoligest about my blood test now homeoligest wants another blood test.

Dr talkt to homyoligest about my blood test now homeoligest wants another blood...

Wllliam

•3 years ago

6 Replies

I have a big question only a few May wish to respond, regarding congestive Heart failure, and any relationship to long term PA. ??

To keep it short for now, post knee op, 6 days recovery, with my health history known. I become extremely breathless and unwell. End up told I have CHF, have...

To keep it short for now, post knee op, 6 days recovery, with my health history ...

Bobonut

•3 years ago

1 Reply

Results

Hi all had my blood test results back and my B12 was 397, doctor said this was normal range, not sure where to go from here? Thks Val

Hi all had my blood test results back and my B12 was 397, doctor said this was n...

Hidden

•3 years ago

17 Replies

Curious to know how effective sublingual liquid is to assist SI or regular injection?

Hi all Curious to know how many PA sufferers use sublingual liquid or even lozenges to replace SI or regular injection? I know some say its absorbed the same...

Hi all Curious to know how many PA sufferers use sublingual liquid or even lozen...

PointOfReference

•3 years ago

13 Replies

Anyone else giving this ago

I've just started taking this my fatigue has been sooo bad the last 2wks even when I get a full night's sleep I'm like it in mornings I wake at 7am see kids...

I've just started taking this my fatigue has been sooo bad the last 2wks even wh...

Pippa76

•3 years ago

8 Replies

Thank you Foggyme !

Many thanks to Foggyme for tackling the difficult issues recently raised , so diplomatically. We do appreciate the sterling work that you and other...

Many thanks to Foggyme for tackling the difficult issues recently raised , so d...

wedgewood

•3 years ago

5 Replies

Administrator's Right to Reply: Who Is This Forum For / Proposed New Guidelines For The Diagnosis and Treatment Of Pernicious Anaemia.

Dear All Many of you will have seen two recent posts, the first suggesting that this forum is only for those with a firm diagnosis of Pernicious Anaemia and...

Dear All Many of you will have seen two recent posts, the first suggesting that ...

Foggyme

Administrator•3 years ago

From Low to Extremely high Ferritin - inflammation?

After months of my ferritin level at 7 (about 10 months) last year in August I had another blood test and it leaped up to 534. My dr said that it was...

After months of my ferritin level at 7 (about 10 months) last year in August I h...

Purplegirl2

•3 years ago

2 Replies

I feel no better after 3 months of B12 injections

I have been self injecting 1,000 mg of cyanocobalamin every day or every other day for the last 95 days. The first week or two, I felt a difference. I had...

I have been self injecting 1,000 mg of cyanocobalamin every day or every other d...

huggabugga

•3 years ago

14 Replies

B12 injections

Hi ive felt very unwell extremely tired. Im PA /RA and self inject once a month this bout of extreme tiredness started after my last injection ive been self...

Hi ive felt very unwell extremely tired. Im PA /RA and self inject once a month ...

Pasjc

•3 years ago

1 Reply

Newb Post/healing severe nuero damage

New here. Just got diagnosed with severe nerve damage from b12 d. Possible spinal damage. I never had mobility issues, but struggled with mostly autonomic...

New here. Just got diagnosed with severe nerve damage from b12 d. Possible spin...

SickNessa

•3 years ago

17 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2021

Where to purchase Vitamin B12 Ampoules online for Australia?

Asking for help to interpret blood results

Under right eye twitch

Active B12 test

Patient Data Opt Outs (UK)

Hampshire (UK) neurologist anyone?

Where to get purchase b12 in the US

B12 levels and symptoms

Cause of b12 deficiency? Should I get private bloods?

B12

B12 and COVID injections

Flickering eyelids

Reoccurring symptoms - is this “normal” ?

B12 results help please

Advice: Chase referrals made.

Lymphatic system affected? Intolerance? Gut health?

Normocytic Anemia,.

Just been diagnosed - scared

Blood tests after loading injections

Hope

I have a big question only a few May wish to respond, regarding congestive Heart failure, and any relationship to long term PA. ??

Results

Curious to know how effective sublingual liquid is to assist SI or regular injection?

Anyone else giving this ago

Thank you Foggyme !

Administrator's Right to Reply: Who Is This Forum For / Proposed New Guidelines For The Diagnosis and Treatment Of Pernicious Anaemia.

From Low to Extremely high Ferritin - inflammation?

I feel no better after 3 months of B12 injections

B12 injections

Newb Post/healing severe nuero damage

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive