Apologies for being a little off topic for forum but thought this would be of interest to UK members.
BBC article about sharing of patient data.
bbc.co.uk/news/uk-politics-...
Article about Data sharing from NHS Digital, mentions type 1 opt out and national opt out
digital.nhs.uk/data-and-inf...
National data opt out
NHS Records.Have you ever tried to get your records? Went to hospital after making an appointment to
get my records. They only had records of that hospital, none of two other hospitals I had
been in or my GP records or two private surgeons records. I had better records than them.
A complete waste of time. The left hand doesn't know the right hand exists!!
Hi porter5,
Thought these links may be of interest...
Retention of UK medical records
bma.org.uk/advice-and-suppo...
Don't rely on there being evidence of a past diagnosis of PA (Pernicious Anaemia) or other cause of B12 deficiency in current medical records.
If you get proof of diagnosis eg positive test result/letter from specialist confirming diagnosis etc keep a copy in a safe place.
Accessing Health Records (England)
nhs.uk/using-the-nhs/about-...
Just for info, I'm pretty sure this only applies to England, not the whole UK - I tried to opt out from Scotland and couldn't find a way using the links I had, and sure enough, the articles all seem to say England. If I'm wrong, I would love to know how to opt out in Scotland!
Thank you! I've been thinking about this over the last few days so it's really helpful.
Hi sleepybunny many thanks for posting this I used the link and opted myself and husband out,my confidential info is exactly that.xx
SPIRE Scottish Primary Care Information Resource
Article about Data Loch (Scotland)
UK NHS - PA treatment & management experiences 
PETITION TO BE ABLE TO BUY B12 INJECTIONS AT YOUR LOCAL PHARMACY IN UK !
Going private in UK for B12 / folate deficiancy
GP has asked for data/study on safety of frequent B12 injections
Anyone got any data on how long it takes to heal neurological damage?
