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More symptoms

Nackapan profile image
12 Replies

Seems to be a change.

I've i think oral thrush well very sore tongue and mouth . Painful swallowing .

Scalp really bad now. Patches of hair falling out.

Have tried oils of alk sorts treatment shampoos ect . So itchy and sore on sn already fragile head. Really feel like I've banged my head most days . So achy too. I try snd distract / move but find I'm doing less. Not Bern fir a walk ect . Worrying or is change good?

Another dentist trip as another tooth fell apart.

No anaesthetic used as a repair no infection. Mouth was more sore after.

Lateral flow test done before I went off own back . Negative

Fatigue crippling. Trio difficult as lights and stairs.

Wasn't expecting new symptoms.

Can't get to see a Gp.

Trying g agsin from 0800 to at least speak to one as pharmacist through a screen looked !! So trying g a oral gel.but said ti see a G.p.

Not sure why no face to face being done )?? Dentists are working.

Not able to eat much .bio yoghurt ect. Strange turn of events. Too much DIY now. Difficult.

Any ideas of what next to try,?

But the sun is out!!

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Nackapan profile image
Nackapan
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12 Replies
Bonjourtristesse profile image
Bonjourtristesse

I’m sorry to hear how hard things are for you. That sounds like a lot to be dealing with.

Dr Myhill has a book on CFS and quite a lot of info on her website.

amazon.co.uk/Diagnosis-Trea...

drmyhill.co.uk

The diet she advocates is incredibly restrictive and I don’t follow it but I have cut out gluten and am trying to increase my vegetable intake.

How is your diet?

I was also thinking about a functional doctor as they seem to pay much more attention to nutrition and optimal wellness.

I know some doctors are seeing people in person, could you insist on being seen?

Nackapan profile image
Nackapan in reply toBonjourtristesse

I tried but got a phone call .

Thank you.

My diet good thanks

Plenty of freshly grown veg . Ect

Will look at that book.

Bonjourtristesse profile image
Bonjourtristesse in reply toNackapan

I know that some GP practices have been seeing patients who require it throughout the pandemic. It seems to be a bit of a lottery. What about a walk in centre? It does sound like you need to be seen. You shouldn't be left to suffer like this with no support.

Nackapan profile image
Nackapan in reply toBonjourtristesse

Yes I'm going to try Tuesday as my Gp back in work. if the prescription I've got doesn't help.

You couldn't write it whats going on with Gps at present.

It's very annoying not to be seen after queuing on the phone then waiting for the call back and basically given a prescription to be collected when a diagnosis has been guessed . And told to phonec111

Alot of those with ongoing chronic conditions haven't been seen.

Specialists have such a backlog now.

Acute care ongoing. Also cancer scares beung and promptly seen.

At least thst is happening.

All this trial and error does feel like being fobbed off ...

It's happening everywhere it seems.

I think worse with this condition as lets face it we are short changed and left to DIY most of thd time

Very worrying.. things will get missed

I really don't understand

Thanks.

You may have a more systemic fungal infection. It happened to me. The effects were horrible and strange. Aches and pains everywhere. Tiredness even though injections EOD. Painful swallowing. Stomach aches. Horrible. I needed two weeks of fluconazole to get rid. Apparently having low stomach acid is a risk factor and needed to cut out not just things with sugar in them but high carb foods too. Did that for 6 weeks which was difficult. But got me back on balance. I now take 20 billion CFU saccromyces boulardii (a probiotic effective against yeast and given to patients to recover from the effects of antibiotics) and 2 x 50 billion CFU probiotics (Natures Zest) every day. Touch wood I have been fine since. This helped me so sharing in case it helps you or others.

Nackapan profile image
Nackapan in reply to

Glad you found a remedy .I might get a tablet of fluconazole otc.

Already trying an oral application I bought

My mouth never been thus dire before.

Gp wouldn't see me so j coukd make sure it is thrush!!

Pretty useless really. I've been doing all she advised for some time.

Will insist next week to be seen.

Ridiculous state if affairs just to ve told to ring 111 .

Nor sure what is happening. 111 wont cope if Gps not seeing patients.

Scalp needs an examination too.

Not actually seem a doctor fir over a year.

All very worrying

I will look into things once it's been diagnosed properly

I live with a type one diabetic so plenty if good carbs on the menu. And very low sugar. I've lost more weight cutting out stuff to lower cholesterol. Musnt loses anymore.

I did try 2 different prebiotics which actually upset my gut

.

But you are right irs finding the right bakance fir everyone is different.

Thus set of by another tooth falling apart. Then a dentist trip.

Thsnk you

The situation with GPs isn’t sustainable from a patient care perspective I agree. I hope you get the help you need.

Nackapan profile image
Nackapan in reply to

Thanks

Jaiday profile image
Jaiday

I’m sorry to hear you’re having a bad time of it. I hope you find something that helps, unfortunately I don’t have any useful advice.I hope you start to feel better soon

Nackapan profile image
Nackapan in reply toJaiday

Thank you 😊

Janma123 profile image
Janma123

Is your mouth ‘flare-up’ from the dentist? I frequently have a sore mouth, tongue etc that just happens a couple of days after I have been to the dentist. A reaction to something they use at the dentist?Hope it clears soon.

Nackapan profile image
Nackapan in reply toJanma123

Arrh that woukd make sense. Mouth/tongue never been this sore Feel it it in my ears tok. Dentist said no Infection .

Not happened before. Last time / first time fron antibiotics after dental work.

Yes Hooe it clears son as feeling quire ill with it as swallowing so painful.

Back to the pharmacy to collect prescription abd but a tablet I thi k of flucoazole.

Never ending it seems

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