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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for April 2021

B12 and iron deficiency

Is there anyone just like me who has both iron and b12 deficiency ... ?

Akashrajput

•3 years ago

26 Replies

Need help, don't know what to do.

Ok so long story short, had private blood taken as I have been very ill this last year and the doctor didn't know what was wrong with me after doing the usual...

Ok so long story short, had private blood taken as I have been very ill this las...

Katblak

•3 years ago

9 Replies

A post about sterile water

I have deleted the posting because it is inadvisable to use this water for reconstituting powdered B12 .

I have deleted the posting because it is inadvisable to use this water for rec...

wedgewood

•3 years ago

11 Replies

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40 days of B12 injections and I feel the same :(

Hi, I gave gotten 40 B12 injections at this point and yet I feel no different. Everyone says be patient but how long do I have to wait to feel better??

Hi, I gave gotten 40 B12 injections at this point and yet I feel no different. E...

huggabugga

•3 years ago

36 Replies

Needle Shortage?

I self inject with hydroxocobalamin but am now told that the needle manufacturer has 'manufacturing difficulties' and unable to supply (I'm nearly out of...

I self inject with hydroxocobalamin but am now told that the needle manufacture...

Crepello

•3 years ago

18 Replies

Struggling to find b12 capsules

Where can I order more B12? I am finding it hard finding more b12 capsule. I have tried to order from Germany but they declined my payment, not sure if it’s...

Where can I order more B12? I am finding it hard finding more b12 capsule. I hav...

LittleA

•3 years ago

6 Replies

Blood report

Okay I want your guys view's on my report any suggestion or piece of mind would be appreciated And will my B12 & iron medication help me with my RBC's and...

Okay I want your guys view's on my report any suggestion or piece of mind would ...

Akashrajput

•3 years ago

14 Replies

Advice when GP Calls

I am having a phone call from my GP to discuss my latest blood tests and I think he might try and Fob me off . I have recently had my B12 loading doses and...

I am having a phone call from my GP to discuss my latest blood tests and I think...

B52s

•3 years ago

7 Replies

Long term headaches

I'm quite fortunate to still be receiving my B12 injection, however I'm suffering with headache issues that has resurfaced after a couple of years being free...

I'm quite fortunate to still be receiving my B12 injection, however I'm sufferi...

Cb1963

•3 years ago

13 Replies

Thank you

Thank you so much for this site. I found a company thanks to one of your wonderful subscribers. ♥️ Deborah

Thank you so much for this site. I found a company thanks to one of your wonderf...

debrandw246

•3 years ago

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B12 Please Help

Hello, I hope someone can help me. I live in the UK. I have had Pernicious Anemia for year. I bought B12 from Germany or Denmark for years but am unable to do...

Hello, I hope someone can help me. I live in the UK. I have had Pernicious Anemi...

debrandw246

•3 years ago

2 Replies

Gum recession

Do b12 deficiency cause gum recession I'm able to see my gums going down a little is this because of B12 and vitamin D deficiency ? And if yes what should I...

Do b12 deficiency cause gum recession I'm able to see my gums going down a litt...

Akashrajput

•3 years ago

22 Replies

Apple cider vinegar

Hi all, I was diagnosed with PA before christmas but had been deficient and on b12 inhections for a couple of years already. I SI once a week atm. I also have...

Hi all, I was diagnosed with PA before christmas but had been deficient and on b...

Luac

•3 years ago

10 Replies

Success

My 91 year old mum had been denied her b12 injection again. The district nursing team had I now discovered discharged her after the last one?? The Gp didn't...

My 91 year old mum had been denied her b12 injection again. The district nursing...

Nackapan

•3 years ago

12 Replies

B12 ampules enquiry

Hello everyone I have just tried to buy my B12 online from my usual German store and have discovered that England is not on the delivered to list anymore :(...

Hello everyone I have just tried to buy my B12 online from my usual German stor...

smilingjane

•3 years ago

7 Replies

Optimal Levels of B12

Hello.. I am male. 40 yrs old 1.What should be the ideal level of b 12 in body 2. After having 1000 mcg tablets daily for 2 weeks, is a level of 380 good...

Hello.. I am male. 40 yrs old 1.What should be the ideal level of b 12 in body ...

Muef

•3 years ago

13 Replies

Drs not taking ferritin seriously

My now retired neurologist was adament on treating my very low ferritin. For reference it was 7. Diet was not working. He gave me an iron infusion (he knew...

My now retired neurologist was adament on treating my very low ferritin. For ref...

Purplegirl2

•3 years ago

9 Replies

Help please with possible PA ? And symptoms. Facebook group is way to much !!!

Hello I’m a new member, after joining a Facebook group for help and advice with my health issues, B12 def, folate Def and also under active thyriod. It worried...

Hello I’m a new member, after joining a Facebook group for help and advice with ...

edentate

•3 years ago

39 Replies

Seek detailed B12 article to give to GP for education

I'm looking for a good technical guide on diagnosing and managing B12 deficiency to give my GP. I want him to be better informed on managing my case which is...

I'm looking for a good technical guide on diagnosing and managing B12 deficiency...

Cetus

•3 years ago

6 Replies

b12 injections

where can I buy b12 vials and needles and how much does it cost? Also what is the payment procedure,its a debit card safe? Can I order over the phone? Any...

where can I buy b12 vials and needles and how much does it cost? Also what is th...

Burbank

•3 years ago

7 Replies

What is the procedure to start B12 and to measure b12?

I am fairly new on this forum having signed up upon the diagnosis of pernicious anemia by my oncologist.. Hello and thank you!. For background, I was...

I am fairly new on this forum having signed up upon the diagnosis of pernicious ...

jersey-jazz

•3 years ago

14 Replies

Bad dreams...

So I started my treatment from 31st March 2021 , I was injecting every alternate days for 10 days n then I'm told to take 5 injection 1/week . As now I'm on my...

So I started my treatment from 31st March 2021 , I was injecting every alternate...

Akashrajput

•3 years ago

13 Replies

Is rash linked to B12 deficiency?

Diagnosed with B12 deficiency in 2018 also Vitamin D 10 years ago. No B12 injections since 03/20 given tablets by GP the tablets caused whole body pain, so I...

Diagnosed with B12 deficiency in 2018 also Vitamin D 10 years ago. No B12 injec...

Jacrabbit

•3 years ago

5 Replies

Nasal Congestion and post nasal drip in b12 deficiency?

Can b12 deficiency cause constant post nasal drip and reduced sense of smell and taste alongwith ususal symptoms like fatigue, lethargy. pins and needles etc?

Can b12 deficiency cause constant post nasal drip and reduced sense of smell and...

poulamis

•3 years ago

6 Replies

Can I take B12 deficiency test after consuming B12 supplements for 3 weeks

Hi, I was wondering if I could go for a b12 test after having taken supplements for 3 weeks daily. If not how long should I wait. Also I would like to check...

Hi, I was wondering if I could go for a b12 test after having taken supplements ...

gotbaya

•3 years ago

3 Replies

B12 and High levels of Serum gastrine

The link between low B12 and the Serum gastrine test is discussed at the bottom of the page:...

The link between low B12 and the Serum gastrine test is discussed at the bottom ...

mickeymouse42

•3 years ago

3 Replies

Unrelated But: Nausea with Smells

I get motion sick easily. Sometimes after brushing my teeth or showering, the smell of the product makes me feel so nauseated, like I am in the car & I got car...

I get motion sick easily. Sometimes after brushing my teeth or showering, the sm...

Purplegirl2

•3 years ago

5 Replies

B12 injections

Hi. Ages ago, someone wrote about a well known store in London, where you can get injections. I cannot remember which store. Does anyone know?

Hi. Ages ago, someone wrote about a well known store in London, where you can ge...

donnabrain

•3 years ago

5 Replies

Feeling a little lonely with PA neurological symptoms misunderstood

I just wanted to pop in and say how lonely I feel with misunderstood neurological symptoms of auto-immune B12 deficiency. I’ve been having worse than normal...

I just wanted to pop in and say how lonely I feel with misunderstood neurologica...

RoseFlowerDew

•3 years ago

11 Replies

Supermarket syndrome ! Did anyone see the Mystery Illnesses programme last night ?

I watched a programme late last night presenting three cases of mystery illnesses and resolutions. For one person, who had had unexplained vertigo for her...

I watched a programme late last night presenting three cases of mystery illnesse...

Cherylclaire

Forum Support•3 years ago

50 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2021

B12 and iron deficiency

Need help, don't know what to do.

A post about sterile water

40 days of B12 injections and I feel the same :(

Needle Shortage?

Struggling to find b12 capsules

Blood report

Advice when GP Calls

Long term headaches

Thank you

B12 Please Help

Gum recession

Apple cider vinegar

Success

B12 ampules enquiry

Optimal Levels of B12

Drs not taking ferritin seriously

Help please with possible PA ? And symptoms. Facebook group is way to much !!!

Seek detailed B12 article to give to GP for education

b12 injections

What is the procedure to start B12 and to measure b12?

Bad dreams...

Is rash linked to B12 deficiency?

Nasal Congestion and post nasal drip in b12 deficiency?

Can I take B12 deficiency test after consuming B12 supplements for 3 weeks

B12 and High levels of Serum gastrine

Unrelated But: Nausea with Smells

B12 injections

Feeling a little lonely with PA neurological symptoms misunderstood

Supermarket syndrome ! Did anyone see the Mystery Illnesses programme last night ?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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