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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for April 2021

Recurring gut problems and low vitb12

Hi everyone, was started on 3monthly injections because vit b12 had been dropping. .167 before injections. Felt less exhausted and gut was improving.had 2nd...

Hi everyone, was started on 3monthly injections because vit b12 had been droppi...

Mrsmr

•3 years ago

9 Replies

Normocytic and is not anemic . What does that mean? Was treated for PA and now told B12 too high.

Hello: I have been assessed by my primary doctor as, "he is normocytic and is not anemic".

Hello: I have been assessed by my primary doctor as, "he is normocytic and is no...

Lyntwo

•3 years ago

7 Replies

B12 or Iron Deficiency?

Hi, Can someone make out anything from this blood and stool test reports. These reports are from December 2018 and I did not follow up on this with my doctor...

Hi, Can someone make out anything from this blood and stool test reports. These ...

gotbaya

•3 years ago

8 Replies

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Is it B12 or Iron Deficiency? Symptoms alleviated slightly after taking 500 mcg b12 pills. I'm 100% vegetarian.

Hi, Can someone make out anything from this blood and stool test reports. These reports are from December 2018 and I did not follow up on this with my doctor...

Hi, Can someone make out anything from this blood and stool test reports. These ...

gotbaya

•3 years ago

10 Replies

PA-B12 Journey

Since being diagnosed with PA 6 weeks or so ago, I'm learning so much and want to thank everyone on here for their advice and arm around me. One thing I am...

Since being diagnosed with PA 6 weeks or so ago, I'm learning so much and want t...

LJH50

•3 years ago

4 Replies

White colour tongue

Do having a little whitish tongue normal when u have iron and b12 deficiency like is this common or not I didn't had white tongue before starting the...

Do having a little whitish tongue normal when u have iron and b12 deficiency lik...

Akashrajput

•3 years ago

17 Replies

INTRINSIC FACTOR ANTIBODIES

Hi all, if you have tested negative to these several times does that mean they dont need testing again , or could they change? Any advice greatly appreciated...

Hi all, if you have tested negative to these several times does that mean they ...

Gillybean1

•3 years ago

4 Replies

Access to G.p

Not sure how everyone is getting on with access to their G.ps if needed. I've not seen one for over a year . Did get a phone call telling me to exercise more...

Not sure how everyone is getting on with access to their G.ps if needed. I've no...

Nackapan

•3 years ago

25 Replies

B12 levels after loading dose

I have recently had my 5 loading B12 injections for vitamin B12 deficiency. My starting level was 167 and after a blood test after 2 weeks of finishing they...

I have recently had my 5 loading B12 injections for vitamin B12 deficiency. My s...

B52s

•3 years ago

7 Replies

B12 deficiency and neuropathy

Hi, I'm a retired psychotherapist and was diagnosed with diabetes type 2 twenty two years ago. I'm concerned about the side effects of metformin especially...

Hi, I'm a retired psychotherapist and was diagnosed with diabetes type 2 twenty ...

Pleaforsanity

•3 years ago

101 Replies

I had vitamin B12 crash 6 months ago after a year of poor health.I have. Terrible bad heads and anxiety on wakeing and sometimes all day.

I wonder has anyone else had these awful symptoms,alsa acute anxiety.?

Mijonesatgarthow

•3 years ago

3 Replies

Loading Doses

Update ,finally after being up and down for over a year ,gota FACE TO FACE appointment with doc.Over last few weeks legs getting progressively worse ,sometimes...

Update ,finally after being up and down for over a year ,gota FACE TO FACE appoi...

may61

•3 years ago

7 Replies

Active B12 test from Medichecks

Hi, just had my blood test done which came back as 256pmol/L and they recommend I reduce any supplement I am using. Last July it was 39.1 and after trying...

Hi, just had my blood test done which came back as 256pmol/L and they recommend ...

john159

•3 years ago

12 Replies

B12 Injected - Painful

I got my weekly b12 shot, a different nurse injected it this time and it is very painful & sore. It is throbbing and feels kind of like my covid shot. Usually...

I got my weekly b12 shot, a different nurse injected it this time and it is very...

Purplegirl2

•3 years ago

29 Replies

Pins n needles/burning

Did any ones pins n needles on feet n lower legs get worse even after years of b12 injections?

Did any ones pins n needles on feet n lower legs get worse even after years of b...

Scotlad76

•3 years ago

35 Replies

B12 injections affecting sleep?

Morning. I've been injecting most mornings and wondered if B12 affects your sleep. I don't sleep well as it is and am not sure if frequent injecting is also...

Morning. I've been injecting most mornings and wondered if B12 affects your slee...

Annielecurie

•3 years ago

26 Replies

Blood results help please

Please could someone have a look at my blood results. I’m feeling very poorly and have been for sometime but GP says everything normal. I would really...

Please could someone have a look at my blood results. I’m feeling very poorly an...

Kayhall1

•3 years ago

6 Replies

Vitajab B12 injection

Hello, I have low levels of b12 and have been told to take two tablets per day for the next 3 months and then one for life. I have see that you can have a...

Hello, I have low levels of b12 and have been told to take two tablets per day f...

Pippi39

•3 years ago

38 Replies

Depression Worse?

Hi All, my daughter is 10 weeks in from her B12 injection, the doctor has requested a blood test in the next 10 days at my request as I feel she needs this...

Hi All, my daughter is 10 weeks in from her B12 injection, the doctor has reques...

Dogwalker123

•3 years ago

10 Replies

UIBC level

Has anyone with PA/B12 deficiency had this scenario: B12 low Iron Normal UIBC LOW If so, what ended up being the solution/treatment? NOTE:...

Has anyone with PA/B12 deficiency had this scenario: B12 low Iron Normal UIBC LO...

B12life

•3 years ago

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Iron Deficiency and B12

Here is an interesting article that states the B12 and folate levels were low and then corrected with iron supplementation but seemly w/o B12 supplementation...

Here is an interesting article that states the B12 and folate levels were low an...

B12life

•3 years ago

2 Replies

B-12 high / folate question

Could any one shed light on this ? I have been daily supplementing w B-12 sub ling tabs and am waiting on my injections to start up again. So this is with only...

Could any one shed light on this ? I have been daily supplementing w B-12 sub li...

sunny2330

•3 years ago

11 Replies

B12 and where can I get them from

Hi am new on here and Iv run in to a slight problem my b12 drops quite quick and as am a builder I need my energy and clear mind (for tea drinking lol) but it...

Hi am new on here and Iv run in to a slight problem my b12 drops quite quick and...

Mike77

•3 years ago

7 Replies

REMINDER. IF USING AMAZON , USE AMAZON SMILE , AND THEY DONATE TO THE P.A.S . AT NO COST TO YOURSELF !

I put this post out every now and then for new members and as a reminder . P.A.S. has received over £400.00 -EVERY LITTLE HELPS !

I put this post out every now and then for new members and as a reminder . P.A.S...

wedgewood

•3 years ago

1 Reply

Help Needed!

PAS has been working with the JLA for the past few months in order to identify the top ten uncertainties with the diagnosis and treatment of Pernicious...

PAS has been working with the JLA for the past few months in order to identify t...

PArforThecourse

•3 years ago

4 Replies

Speech problems, really scared!

Hi. Last year during lockdown I started with various symptoms.. in August I finally got an appointment with my doctor and mentioned the 2 that were bothering...

Hi. Last year during lockdown I started with various symptoms.. in August I fina...

silliebillie

•3 years ago

24 Replies

Body Aches with Pernicious Anaemia when B12 is running very low

I often experience body aches and chills similar to cold / flu type symptoms when my B12 levels are low and my injection is due. I always get paranoid that I...

I often experience body aches and chills similar to cold / flu type symptoms whe...

TravelLulu

•3 years ago

18 Replies

How long from your first injection did you start to feel better?

Hi, I just started getting B12 injections 1 month ago. I still feel really tired and fatigued. How long will I need to wait to feel normal again? I have a...

Hi, I just started getting B12 injections 1 month ago. I still feel really tired...

huggabugga

•3 years ago

9 Replies

Methylcobalamin source for the United States?

Where can I order methylcobalamin injections to get shipped to the US? Does anyone know?

Where can I order methylcobalamin injections to get shipped to the US? Does anyo...

huggabugga

•3 years ago

7 Replies

Frequent b12 injections and ferritin

Hello all.... will frequent b12 injections EOD or say twice weekly lower your ferritin levels or iron in the body? Thank you

Hello all.... will frequent b12 injections EOD or say twice weekly lower your fe...

WorkingProgress

•3 years ago

5 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2021

Recurring gut problems and low vitb12

Normocytic and is not anemic . What does that mean? Was treated for PA and now told B12 too high.

B12 or Iron Deficiency?

Is it B12 or Iron Deficiency? Symptoms alleviated slightly after taking 500 mcg b12 pills. I'm 100% vegetarian.

PA-B12 Journey

White colour tongue

INTRINSIC FACTOR ANTIBODIES

Access to G.p

B12 levels after loading dose

B12 deficiency and neuropathy

I had vitamin B12 crash 6 months ago after a year of poor health.I have. Terrible bad heads and anxiety on wakeing and sometimes all day.

Loading Doses

Active B12 test from Medichecks

B12 Injected - Painful

Pins n needles/burning

B12 injections affecting sleep?

Blood results help please

Vitajab B12 injection

Depression Worse?

UIBC level

Iron Deficiency and B12

B-12 high / folate question

B12 and where can I get them from

REMINDER. IF USING AMAZON , USE AMAZON SMILE , AND THEY DONATE TO THE P.A.S . AT NO COST TO YOURSELF !

Help Needed!

Speech problems, really scared!

Body Aches with Pernicious Anaemia when B12 is running very low

How long from your first injection did you start to feel better?

Methylcobalamin source for the United States?

Frequent b12 injections and ferritin

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive