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Pernicious Anaemia Society

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All posts for April 2021

Can b12 get worse even though I’m having injections every 3 months

So I have been having b12 injections every 3 months for 10 years now , however I can’t seem to last the full 3 months after a month I get externally exhausted...

So I have been having b12 injections every 3 months for 10 years now , however I...

B12issues

•3 years ago

24 Replies

Low haemoglobin

Hi, I had a blood test on Monday (because of my weird nails which look like Terry's nails) and the surgery phoned me today and told me my haemoglobin is low...

Hi, I had a blood test on Monday (because of my weird nails which look like Ter...

Curlygal

•3 years ago

22 Replies

B12 patches

Hi, I forgot to ask in my previous post if the Hydroxocbalomin or Methylcobalamin are the best. Margaret

Hi, I forgot to ask in my previous post if the Hydroxocbalomin or Methylcobalami...

Margaret-S

•3 years ago

16 Replies

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Anaemia

Hi again. It's good to be back. My doctor did blood tests on Monday and they came back that I'm very anaemic. She said my B12 levels were great. Now I'm on 3 x...

Hi again. It's good to be back. My doctor did blood tests on Monday and they cam...

Margaret-S

•3 years ago

2 Replies

WHAT THE DOCTOR SAID and METHYLCOBALAMIN

Not a lot to be truthful.He said I was one of the healthiest people on his books.If only that were true. Been having loads of problems over the past...

Not a lot to be truthful.He said I was one of the healthiest people on his books...

may61

•3 years ago

3 Replies

Difficulty getting B12d diagnosis during a global pandemic.

A year ago I knew nothing about B12D. Then I had a massive seizure. I completely evacuated my bowels. I was unconscious for over 30 minutes. The first thing I...

A year ago I knew nothing about B12D. Then I had a massive seizure. I completely...

charks

•3 years ago

5 Replies

IFA test

Does anyone know if IFA test is affected by taking vitamin and iron supplements?

Does anyone know if IFA test is affected by taking vitamin and iron supplements?...

Beck71

•3 years ago

1 Reply

Pernaceous Anaemia?

Hi everyone,i'm hoping that someone on here would be able to point me in the right direction,i don't know where to start,but i will give some of my medical...

Hi everyone,i'm hoping that someone on here would be able to point me in the rig...

Debzeewestmids

•3 years ago

21 Replies

B12

My blood tests are borderline low for B12 my gp call it normal just got a new gp he also calls it normal. I had a blood test done with Medicheck report...

My blood tests are borderline low for B12 my gp call it normal just got a new gp...

Odinil

•3 years ago

6 Replies

Doctor wiped diagnosis of PA off my file

At my previous doctors, Over 12 years ago, I was dx with PA, blood tests proved this. Moved to my present doctor about 8 years ago, was given vials to self...

At my previous doctors, Over 12 years ago, I was dx with PA, blood tests proved ...

tillie06

•3 years ago

21 Replies

Sore throat

How many of you find it difficult to swallow food even water at times and also feel like the tablet has got stuck in the throat. Even my pace at which I used...

How many of you find it difficult to swallow food even water at times and also f...

Akashrajput

•3 years ago

13 Replies

Si tips?

Hello, After many visits to the doctors over past couple years, I have had no improvement or definitive answer. Alot of my symptoms point to B12 deficiency...

Hello, After many visits to the doctors over past couple years, I have had no i...

Sillysteph

•3 years ago

14 Replies

Are these foot cramps normal and if not what could they find?

I have had foot cramps off and on since I got diagnosed with PA, but now there is a difference. When I clench my toes, it often causes them to spasm and I...

I have had foot cramps off and on since I got diagnosed with PA, but now there i...

addie18

•3 years ago

11 Replies

Up and down!

Hi everyone, diagnosed with falling levels of vitamin b 12 6 months ago but have had symptoms for 20 years! My symptoms seem to fluctuate. I can feel good for...

Hi everyone, diagnosed with falling levels of vitamin b 12 6 months ago but hav...

Mrsmr

•3 years ago

2 Replies

Unwell

Also these I have got thyroid too

Bellmitzi

•3 years ago

5 Replies

Unwell

Also these bloods I had done x

Bellmitzi

•3 years ago

5 Replies

Feeling really weak

Hi I’ve been feeling really unwell for months was refused a blood test few months back as I had one last July today I received results they say ok apart from...

Hi I’ve been feeling really unwell for months was refused a blood test few month...

Bellmitzi

•3 years ago

12 Replies

Constant mood swings and depression due to B12 or Iron deficiency?

I get anxiety spike whenever I miss out on my daily dose of 500 mcg b12 supplement. Has anyone else experienced any mental problems similar to mine? Thanks...

I get anxiety spike whenever I miss out on my daily dose of 500 mcg b12 supplem...

gotbaya

•3 years ago

3 Replies

CFS support group and access to B12 injections in South Wales

The wife of someone I know has been suffering from CFS since the birthday of her daughter. They live in South Wales. Does anyone know of a support group...

The wife of someone I know has been suffering from CFS since the birthday of her...

Grayswood

•3 years ago

3 Replies

New GP wants blood tests...

Hi all. About a year ago now I was found to have a B12 deficiency, and as a meat eater the GP couldn’t see why I should have such low levels if I was absorbing...

Hi all. About a year ago now I was found to have a B12 deficiency, and as a meat...

Greenandpink

•3 years ago

10 Replies

Hydroxy v methylcobalmin....

This is where I need a good degree of clarification. Is it possible for some people not to convert hydroxy into useable methyl and adeno because of some sort...

This is where I need a good degree of clarification. Is it possible for some peo...

WorkingProgress

•3 years ago

6 Replies

Is Advil or Tylenol an issue for pain relief after surgery?

I’ve been taking Motrin or Advil and sometimes Tylenol for pain. It’s been 8 days and can foresee another possible week. I’m woke up feeling startled and I’m...

I’ve been taking Motrin or Advil and sometimes Tylenol for pain. It’s been 8 da...

Plucky1976

•3 years ago

6 Replies

Insulin Syringes with Needles?

Can one use insulin syringes with needles to inject B12? They sell 100 in a box for $40.00. Seems simpler. Initially, more than 20 years ago, the...

Can one use insulin syringes with needles to inject B12? They sell 100 in a b...

eloquentladybug

•3 years ago

4 Replies

Anyone below 30 have PA?

Hello, I always like to check in every 6 months or so to see if there are any other people around my age that are dealing with PA and similar problems. I have...

Hello, I always like to check in every 6 months or so to see if there are any ot...

Dakota17777

•3 years ago

8 Replies

Sore tongue after injecting B12

Hi. I used to get usual symptoms of B12 deficiency, and one of them was a sore tongue (which disappeared after injecting). But for the first time, the sore...

Hi. I used to get usual symptoms of B12 deficiency, and one of them was a sore t...

BrecklandRanger

•3 years ago

4 Replies

Starting SI without PA or B12 def diagnosis. Anyone else done this?

Has anyone gone straight to self injecting without PA or B12 deficiency diagnosis? I have 29 of the 32 symptoms on PAS list. GP has made neurologist referral...

Has anyone gone straight to self injecting without PA or B12 deficiency diagnosi...

Beck71

•3 years ago

10 Replies

Missed B12 Injection

I recently missed a B12 injection and had it 1 month late. Since having a 4 month intermittent period (rather than 3) my symptoms have returned. Tiredness,...

I recently missed a B12 injection and had it 1 month late. Since having a 4 mont...

Lion3

•3 years ago

2 Replies

No iron forum so posting here

I had a test which confirmed anemia then I had a test which said normal but no test results shown on my print out...now I have the results printed out and my...

I had a test which confirmed anemia then I had a test which said normal but no t...

Hidden

•3 years ago

7 Replies

1. Questions! Questions! Questions!

Question # 1 ---- I have read that hydroxicobalamin has replaced cyanocobalamin in the UK and that Japan uses methylcobalimin almost exclusively and is...

Question # 1 ---- I have read that hydroxicobalamin has replaced cyanocobalamin...

jersey-jazz

•3 years ago

14 Replies

Oily/greasy skin and acne due to vitamin b12

Did anyone experience greasy skin or oily skin after taking high doses of vitamin B12? I took 1500mcg of b12 for two months and my entire skin texture has...

Did anyone experience greasy skin or oily skin after taking high doses of vitami...

Nish12

•3 years ago

12 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2021

Can b12 get worse even though I’m having injections every 3 months

Low haemoglobin

B12 patches

Anaemia

WHAT THE DOCTOR SAID and METHYLCOBALAMIN

Difficulty getting B12d diagnosis during a global pandemic.

IFA test

Pernaceous Anaemia?

B12

Doctor wiped diagnosis of PA off my file

Sore throat

Si tips?

Are these foot cramps normal and if not what could they find?

Up and down!

Unwell

Unwell

Feeling really weak

Constant mood swings and depression due to B12 or Iron deficiency?

CFS support group and access to B12 injections in South Wales

New GP wants blood tests...

Hydroxy v methylcobalmin....

Is Advil or Tylenol an issue for pain relief after surgery?

Insulin Syringes with Needles?

Anyone below 30 have PA?

Sore tongue after injecting B12

Starting SI without PA or B12 def diagnosis. Anyone else done this?

Missed B12 Injection

No iron forum so posting here

1. Questions! Questions! Questions!

Oily/greasy skin and acne due to vitamin b12

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive