Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,950 members • 23,091 posts

All posts for April 2021

High b12 low folate?

Hi all, So bloods came back as ‘normal’ with b12 934 (slightly over range) and ferritin 48. My folate is 4.5 and I’m tired all the time struggling to get...

Hi all, So bloods came back as ‘normal’ with b12 934 (slightly over range) and ...

Ms28

•3 years ago

10 Replies

PAS Spring newsletter

Started a new thread as put in a reply that mightve been lost. It states you can email NHS England with any problems you or your family have had getting your...

Started a new thread as put in a reply that mightve been lost. It states you ca...

Nackapan

•3 years ago

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Frustrated

am super frustrated. I am 55 and struggling with leg, feet, circulation type issues. I have had crohn's and psoriasis in my life. I have had every test under...

am super frustrated. I am 55 and struggling with leg, feet, circulation type is...

Jijimooma

•3 years ago

22 Replies

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B12 injections and now experiencing acne

Hi I had 3 b12 shots in February, a week and Half apart within that month. The month after I broke out really bad. Under my chin and on my cheek and got one...

Hi I had 3 b12 shots in February, a week and Half apart within that month. The m...

Hopeful11346

•3 years ago

14 Replies

Vit B12 and Bone Marrow problems

This BMJ article (https://www.bmj.com/content/349/bmj.g5226) by the Guy's haemotology unit says that the bone marrow is most commonly affected by B12...

This BMJ article (https://www.bmj.com/content/349/bmj.g5226) by the Guy's haemo...

mickeymouse42

•3 years ago

28 Replies

B12 District nurses/HCA

I got my 91 year old mums b12 injections reinstated in November 2020 after being told to go and get b12 tablets. 1. She cant go and get 2. She can't absorb...

I got my 91 year old mums b12 injections reinstated in November 2020 after being...

Nackapan

•3 years ago

29 Replies

A free torch/pen from Medisave

Nice little surprise in my package of new needles fro Medisave, a freebie pen/ torch with a lanyard 😃 Not often you get anything for free these days just...

Nice little surprise in my package of new needles fro Medisave, a freebie pen/ ...

SallyRees

•3 years ago

13 Replies

Bruising

My PA is well under control and labs are also looking good. I am having a lot of bruising though. I just bump into anything and get a nasty bruise. Is this...

My PA is well under control and labs are also looking good. I am having a lot o...

Nanc72

•3 years ago

10 Replies

New... urgently needing pointers or advice update W Blood Results

EDITED to include blood results at the end. Thank you guys for all the support.. I'm blown away. Hi all. I am a young uni student who has had increasing...

EDITED to include blood results at the end. Thank you guys for all the support.....

SerendipityStardance

•3 years ago

26 Replies

Expiry date

I have a number of b12 ampules and unfortunately they expire end of this month.. is it safe to use past the expired date ? Will they still be effective? I...

I have a number of b12 ampules and unfortunately they expire end of this month.....

lifegems

•3 years ago

13 Replies

OPD Endoscopy

I got My OPD endoscopy done - 2 months back and the reports were all normal ..... Do I still need to do a IF Antibody test as symptoms of b12 still linger &...

I got My OPD endoscopy done - 2 months back and the reports were all normal .......

Ulrich-vi

•3 years ago

2 Replies

? Increased cancer risk with high dose b12 use.

I recently read a few articles which were based on medical studies which indicated that many years of high dose b12 increased the rate of people developing...

I recently read a few articles which were based on medical studies which indicat...

jimmel196

•3 years ago

40 Replies

Dry scalp

Just read ; Another symptoms of b12 deficiency!! B6, omega 3 ,and zinc as well . So another to add to the list Driving me mad!!

Just read ; Another symptoms of b12 deficiency!! B6, omega 3 ,and zinc as well ...

Nackapan

•3 years ago

1 Reply

Has anyone experienced adverse side effects after getting their B12 injection?

I have been on the shots since Dec 2015 and the last two injections have caused adverse effects: flushing in the face, dizziness, accelerated heartrate -...

I have been on the shots since Dec 2015 and the last two injections have caused ...

laulauedward

•3 years ago

15 Replies

have a new dr who doesn't understand PA

I am brand new here. My B-12 levels have always been greater than 2000. My new Prim. Care Dr. does not get this. She tells me Im not anemic and do not need...

I am brand new here. My B-12 levels have always been greater than 2000. My new P...

sunny2330

•3 years ago

9 Replies

Neuropathy from being Deficient?

I found out Feb 1, 2019 that I was deficient. I was told to take b12 supplements. I’m guessing I had been deficient for maybe 4 years or more as I got really...

I found out Feb 1, 2019 that I was deficient. I was told to take b12 supplements...

Chris5629

•3 years ago

6 Replies

Low fluctuating b12 but no advice from GP.

Hi there, a bit of background about myself. I’m 23 years old (female) and have type 1 diabetes (since 3 years old), hashimotos (since 16 years old) and...

Hi there, a bit of background about myself. I’m 23 years old (female) and have t...

Auto2

•3 years ago

8 Replies

Brexit Blocking B12 Supplies?

Hello, I'm new here. Diagnosed with B12D in 2017. Been self-injecting with supplies from Germany - as GP wouldn’t increase dosage- but company can no longer...

Hello, I'm new here. Diagnosed with B12D in 2017. Been self-injecting with supp...

Crepello

•3 years ago

13 Replies

My story of illness and ‘recovery’

I want to share this to fellow readers, so that we can see there is hope but get a grasp on the reality of what recovery might be. My story starts in my mid...

I want to share this to fellow readers, so that we can see there is hope but get...

GGourmet

•3 years ago

13 Replies

B12 injection

I was taking b12 injection for 3/4 years, however last year September 2020 I turned up for my appointment and nurse told me I am not longer need it because I...

I was taking b12 injection for 3/4 years, however last year September 2020 I tur...

Icomaria

•3 years ago

7 Replies

A question about ampoules

These ampoules that you can buy from Germany are they complete within themselves? I mean do they intrinsically have a way to inject or do you have to buy...

These ampoules that you can buy from Germany are they complete within themselves...

eloquentladybug

•3 years ago

12 Replies

can someone please check my iron bloods

I wonder if someone would kindly check my bloods and seeing if you think they are ok. I have pernicious anemia and hashimoto's Thyroid. I have had anemia...

I wonder if someone would kindly check my bloods and seeing if you think they a...

Montague54

•3 years ago

6 Replies

Too much B12 - racing heart?

For the past six weeks I have finally be getting weekly shots and I’ve made so much progress but I got an injection yesterday and today my pulse will not come...

For the past six weeks I have finally be getting weekly shots and I’ve made so m...

Ctadds1

•3 years ago

4 Replies

B12

Hi can u buy cynocloblmain for b12 subconteonous online anywhere? Thanks

pinkstar

•3 years ago

3 Replies

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Various B12D/PA resources

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2021

High b12 low folate?

PAS Spring newsletter

Frustrated

B12 injections and now experiencing acne

Vit B12 and Bone Marrow problems

B12 District nurses/HCA

A free torch/pen from Medisave

Bruising

New... urgently needing pointers or advice update W Blood Results

Expiry date

OPD Endoscopy

? Increased cancer risk with high dose b12 use.

Dry scalp

Has anyone experienced adverse side effects after getting their B12 injection?

have a new dr who doesn't understand PA

Neuropathy from being Deficient?

Low fluctuating b12 but no advice from GP.

Brexit Blocking B12 Supplies?

My story of illness and ‘recovery’

B12 injection

A question about ampoules

can someone please check my iron bloods

Too much B12 - racing heart?

B12

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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