B12 more than 2000: I recently... - Pernicious Anaemi...

Pernicious Anaemia Society

31,969 members23,114 posts

B12 more than 2000

Ulrich-vi profile image
11 Replies

I recently completed 5 injections of b12 and my lab results after 10 days came in as more than 2000. Is this a sign of worry or will it go down . I am experiencing ringing in the ear due to this and also nerve twitching . Is this possible ? How long does it take for the levels to drop ?

Written by
Ulrich-vi profile image
Ulrich-vi
To view profiles and participate in discussions please or .
Read more about...
11 Replies
fbirder profile image
fbirder

Totally normal to have B12 levels that are too high to measure. That's why all the experts say there is no point at all in measuring them after injections have started.

Doesn't stop idiot doctors though.

Ulrich-vi profile image
Ulrich-vi in reply to fbirder

Thanks I am new to this my life is completely changed due to this deficiency. Getting through it one day at a time fbirder

MoKayD profile image
MoKayD

My doctor says he doesn't like to see my B12 levels drop below 1000. He takes my blood once a year during my physical, not just to see where my B12 levels are. Too much B12 can't hurt you. The twitching you are feeling is probably just your nerves healing. Things calm down after a while.

Ulrich-vi profile image
Ulrich-vi in reply to MoKayD

Thanks 🙏🏻

Ginacece profile image
Ginacece

I have ringing in my ear after my 6 loading injections too! Has yours calmed down at all? I had my injections over a month ago now and the ringing is just getting worse :/

Ulrich-vi profile image
Ulrich-vi in reply to Ginacece

If I put my attention to the ringing then I will possibly feel it .... it gets a little bit less at times but it’s still there....

Ulrich-vi profile image
Ulrich-vi in reply to Ginacece

@Ginacece by any chance has the ringing in your ears stopped or still going on. Mine still continue so just asking around

Ginacece profile image
Ginacece in reply to Ulrich-vi

No :( it’s still there, I think it’s an after effect of having so many loading dose injections because I’ve never experienced ear problems before this. I’m hoping it goes as the loading doses wear off. Because people are saying tinnitus is caused by b12 deficiency I don’t know whether to have more injections to try and get rid of it or, if mine is caused by the injections, I don’t know if having more will just make it worse. :/

Ulrich-vi profile image
Ulrich-vi in reply to Ginacece

Same here . You looking for a remedy for one and something else starts . It’s like the cycle continues

Ulrich-vi profile image
Ulrich-vi in reply to Ulrich-vi

The ringing continues my dr said it could be due to the injections will have to wait it out 😔

Cherylclaire profile image
CherylclaireForum Support

In a survey carried out by the Pernicious Anaemia Society, 34% of respondents listed experiencing tinnitus. The list of symptoms and related conditions are set out in Martyn Hooper's book and on the PAS website. Tinnitus is listed as a neurological symptom. Nerve twitching is a symptom of B12 deficiency and is more obviously neurological damage.

Those with neurological symptoms should be treated differently: every other day injections until no further improvement can be had, then injections every 2 months. See NICE guidelines for this.

People being treated for B12 deficiency often find that their symptoms get worse or increase before they improve.

You may also like...

B12 result is more than 2000 2 weeks after 6 injection loading dose, is this normal please?

6-15) and therefore got a b12 result too which i was told is more than 2000 now. Can I ask if this...

B12 >2000 but feeling awful

little, but my B12 is way over norm only few days left till my next jab. I am worried I might have...

B12 2000

years ago now no effect at all my b12 results is 2000 is this too much or just not working at all...

B12 levels 238 to 2000. Advice please.

start supplementing b12 (serum level 238 with neurological symptoms) I took sublingual b12 for 2...

B12 levels over 2000

to ask if I have been take b12 oral supplements because my b12 is over 2000 doesn’t know exactly...