Is anyone aware of a connection between PA and Peripheral?

[Slap]

Would more B 12 help? I’ve just been diagnosed with PN and wonder if they are connected?

[Gambit62 Administrator]

Whilst B12 deficiency will eventually lead to peripheral neuropathy it is a long way from being the only cause. Were you diagnosed by a neurologist and did they give you any idea what they though thought the cause was?

[Slap in reply to Gambit62]

My family doctor diagnosed PN. I don’t have diabetes nor have I had chemo. I do have other autoimmune issues. She did not give me a cause.

[Gambit62 Administrator in reply to Slap]

Suggest you ask your family doctor if they can refer you to a neurologist so you can get the cause identified. Diabetes and chemo are two possibilities but it is a very long list when it comes to possible causes

[Slap in reply to Gambit62]

Thank you. I did request a referral to neurologist. Can you give me some more info, or direct me to something to read?

[fbirder in reply to Slap]

I have a book on PN. It's quite good, quite expensive (£18.50) and spends just a page or so on B12 deficiency (there are over 80 other causes). smile.amazon.co.uk/gp/produ...

I've just bought another book that I've not got round to reading yet. I've just had a quick look in the index and B12 deficiency takes up three paragraphs. It is cheaper and doesn't go into so much detail, but it focuses on axonal neuropathies (like mine), not demyelinating neuropathies (such as that caused by a B12 deficiency). smile.amazon.co.uk/gp/produ...

The problem with books and the Interwebs is that it's quite easy to persuade yourself that you've got something really nasty. I was convinced that I had Guillain-Barré syndrome for a while.

The problem with nerve damage is that it can take a long time to heal. If the damage is severe then it may never recover totally. More B12 may help if you can get your doctor to prescribe it more often than every two months (which is what you should be getting).

[Slap in reply to fbirder]

Many thanks! Yes, it’s true, you can convince yourself that you’ve got any malady!!! I self inject every 2 weeks, but that hasn’t kept the nerve stuff at bay, it’s gotten worse. But I hear you when you say how many other causes there could be. I’ll just wait the year or two it will take to get into a neurologists office here!

[waveylines in reply to Slap]

If its due to b12 deficiency then you need to inject every other day as this is a neurological symptom.

I suffer with numbness in my toes and tremors.....and I have to inject twice per day - I split the vial between two syringes. That is really helping me. Im not suggesting this for you but only showing you that we are all different and need different frequency of B12 injections.

[Vps1980 in reply to fbirder]

I also thought I had that haha xx