Tremors worsened since having treatment

[Narwhal10]

I’m very fortunate since having treatment my gait and tremors have worsened. It’s not painful. I’m just curious to know is this the B12 repairing the nerves or have I misunderstood something AGAIN.

Hope you are all well.

Thanks

[Nackapan]

No you havent. It is a rollercoaster. I started with virtigo too.

So glad that has subsided.

I found vestibular cawthorne pysio exercises helped me with balance and walking. You can Google them. Eye exercises good too.

Inner tremors are horrid. I still get them at times. Outer visible tremors were I proved for me when I addressed ferritin levels that were dropping.

[Narwhal10 in reply to Nackapan]

Thanks Nackapan for your reply and the suggestions and sorry to hear that you still get inner tremors.

[deniseinmilden]

Just wondering if you have been checked for Parkinsons? If that's OK then it may just be a case of getting enough B12 and supporting supplements over a long enough time frame.

I'm afraid it's a bit of a case of "how long is a piece of string" as everyone is different but the improvements can go on for years so don't give up hope!

[Narwhal10 in reply to deniseinmilden]

Thanks Denise.

[Cherylclaire Forum Support in reply to Narwhal10]

Really does take a while, deniseinmilden is so right !

A lot of juggling to get B12, folate, ferritin and vitamin D to get "righted" all at the same time and then stay there. I still need frequent B12 injections and a daily multivitamin and mineral and vitamin D (NHS prescription) to stay okay.

Folate and ferritin took 2 years to stabilise completely, frequent B12 injections took a couple of years to see recognisable and constant improvements and MMA, although only raised not high, took 3 years to get into range.

But I'm here now, thanks to a tenacious GP and many people here - including Denise.

We are all different, but you can take heart from the fact that with help and advice, we are able to find a way to manage symptoms.

Despite sometimes getting disheartened, I could see nothing else that matched all of my symptoms, so just kept on going until I saw changes. A big lift when others notice too !

I got a bit full of myself during lockdown and made some large raised vegetable beds; those long-forgotten clown's feet returned to trip me up ! Easy does it....

Never ate so many runner beans, Narwhal. Got to be good for the folate level.