Just want to encourage people not to give up and you sometimes have to educate health professionals about pa . Also i didn't know that you can have this injection every 8 wks as mine is 12 wks and sometimes feel very poorly before , would welcome any advice x thanks .
Insisted that i got my b12 injection ! - Pernicious Anaemi...
Insisted that i got my b12 injection !
Glad you got it
Hi,
Glad that your determination paid off.
"didn't know that you can have this injection every 8 wks as mine is 12 wks "
Link below outlines recommended UK b12 treatment.
BNF
bnf.nice.org.uk/drug/hydrox...
BNF guidance on treating b12 deficiency changed recently.
pernicious-anaemia-society....
Did you have the correct pattern of loading injections when you first started treatment?
I wrote a very detailed reply on another forum thread with links to B12 deficiency symptoms lists, causes of b12 deficiency, info about PA tests, B12 books, B12 websites, UK B12 documents and other B12 info which you might find helpful.
healthunlocked.com/pasoc/po...
Please be aware that many UK forum members have had their NHS B12 injections stopped/delayed/frequency reduced or swapped for oral tablets during pandemic. There are many recent threads about this on the forum
If this happens to you, come back to the forum for support.
I am not medically trained.
Well done Donnadancer
Thank you all ,for the advice x its good to be with people who understand x
I managed to get mine today after talking to the doctor. Not yet got them to agree to 8 weeks but at least for now I'm ok.
So pleased Sue x hope you are feeling better x
Thank you. I hope you can get yours sorted out soon. We all need our B12 injections at different times. When I was first diagnosed I had them daily, gradually building up to every three weeks. Then they said only every three months. I really do not think they understand. Glad I am doing my own now. Good luck with yours. xbriarhill cat.