Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for February 2020

Needle size

I use a 25 gauge by 1 inch length. I also use the union medico injector device made in Denmark. It has helped to greatly reduce the anxiety and pain of...

I use a 25 gauge by 1 inch length. I also use the union medico injector device m...

garretttimson

•4 years ago

13 Replies

Problems Obtaining B12 depot from Germany

Problems Obtaining B12 depot from Germany. I have received this message. Unfortunately we had to cancel your order. The item ordered VITAMIN B12 DEPOT...

Problems Obtaining B12 depot from Germany. I have received this message. Unfort...

Bellabab

•4 years ago

16 Replies

Good local guidelines in UK

Hi, I know that some parts of UK have out of date local guidelines on B12 deficiency. Where in the UK has good local guidelines?

Hi, I know that some parts of UK have out of date local guidelines on B12 defici...

Sleepybunny

•4 years ago

11 Replies

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Daughter's Diagnosis

I was so very happy to find this group after my pernicious anemia diagnosis. Everyone has shared so much invaluable information and support. Now I have...

I was so very happy to find this group after my pernicious anemia diagnosis. Ev...

MoKayD

•4 years ago

2 Replies

PAS Political Campaign

Hi, PAS are planning a political campaign to put pressure on NICE to make producing NICE guidelines on PA a priority....

Hi, PAS are planning a political campaign to put pressure on NICE to make produc...

Sleepybunny

•4 years ago

2 Replies

Worrying reaction to something

Ive had frequent episodes in which my face turns red, have slight swelling in nose and cheeks, feel a bit hot and bothered and generally unwell. On three...

Ive had frequent episodes in which my face turns red, have slight swelling in no...

Luac

•4 years ago

2 Replies

NHS website - Blood tests for iron deficiency anaemia

Just happened to notice this paragraph when I was checking something else entirely. Blood tests for iron deficiency anaemia Your GP will...

Just happened to notice this paragraph when I was checking something else entire...

helvella

•4 years ago

2 Replies

Newly diagnosed low b12

Hi, bit of a long winded post. I was diagnosed last month with low b12 (150) fbc and ferritin normal. I was told to self supplement, which I am with a b12...

Hi, bit of a long winded post. I was diagnosed last month with low b12 (150) fbc...

flowerpower87

•4 years ago

8 Replies

Do I tell my GP

Morning all I have moved locations so now have a new GP. I have not told them I was previously receiving a b12 injection every 3 months as I cannot be...

Morning all I have moved locations so now have a new GP. I have not told them ...

Sunshine1932

•4 years ago

4 Replies

Automatic injector

Hi could anyone point me in the direction of where I can source an auto injector I have such a fear of needles that I’m dreading when the time comes to start...

Hi could anyone point me in the direction of where I can source an auto injector...

Hidden

•4 years ago

11 Replies

Spelling

Hi all, I've had B12 since last year. I didn't know l had it untill the blood test show it. Have the injections every 12 weeks, now I've got vitamin c...

Hi all, I've had B12 since last year. I didn't know l had it untill the blood te...

evelynhart666

•4 years ago

5 Replies

Needle size?

I have been self injecting for some months now ,IM into thigh. It is getting a bit painfull,now. I wish to alternate with sub cutaneous into stomach. I cannot...

I have been self injecting for some months now ,IM into thigh. It is getting a b...

jaybirdxNHM

•4 years ago

32 Replies

B12 deficiency

Hi All I was wondering if anyone previously had to self inject every other day for a period of time before they went onto day one every week and then maybe one...

Hi All I was wondering if anyone previously had to self inject every other day f...

Sunshine1932

•4 years ago

14 Replies

So frustrated I could cry

For the last year I have suffered from numerous symptoms, including neurological (fuzzy, foggy head, pins and needles, stabbing pains, cold water feeling in my...

For the last year I have suffered from numerous symptoms, including neurological...

Clarkie477

•4 years ago

56 Replies

CA you get cured of PA?

Hi, I was diagnosed with PA in 2002 using the schilling test, and have been having b12 injections every 3 months since. However my b12 was tested and found to...

Hi, I was diagnosed with PA in 2002 using the schilling test, and have been havi...

Tonyworks

•4 years ago

9 Replies

Rash after B12 injection

Hi, I'm a bit concerned. Less than 24 hours after my first b12 injection, I came out with a rash over my abdomen, and over buttocks. A few hours later one side...

Hi, I'm a bit concerned. Less than 24 hours after my first b12 injection, I came...

Magicodolphins

•4 years ago

13 Replies

Breathing better after iron infusion

I was wondering if anyone could breath better after a feraheme infusion, and how long before I feel a better

I was wondering if anyone could breath better after a feraheme infusion, and how...

Batbara

•4 years ago

13 Replies

The Many Faces of B12 Deficiency (paper from the Mayo clinic)

Has anyone seen this paper from the Mayo Clinic? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6543499/ I liked the conclusions the authors are drawing from the...

Has anyone seen this paper from the Mayo Clinic? https://www.ncbi.nlm.nih.gov/pm...

MoKayD

•4 years ago

10 Replies

Cipro- antibiotic

I was prescribed ciprofloxacin for an infection...UTI. I noticed it said can cause peripheral neuropathy. I am recovering from peripheral neuropathy and was...

I was prescribed ciprofloxacin for an infection...UTI. I noticed it said can ca...

CW12

•4 years ago

2 Replies

Getting a diagnosis for pernicious anaemia.

How to get doctor to test for pain and can i have it done while having b12 booster injections?

How to get doctor to test for pain and can i have it done while having b12 boost...

Louise234cats

•4 years ago

2 Replies

Semantics

I’m just curious if there is another name for pernicious anemia? I have never actually gone anemic (much to my doctors confusion) so I feel like the term gives...

I’m just curious if there is another name for pernicious anemia? I have never ac...

merpit349

•4 years ago

4 Replies

Bit of history and mystery

I know we tend to see it everywhere, but reading this, it really does seem like Sir Winston Churchill's dear dad may have been in need of B12. This made me...

I know we tend to see it everywhere, but reading this, it really does seem like ...

Statesideheather

•4 years ago

4 Replies

Low Stomach Acid solution/remedies

Hi, I’m new to this board. I have had PA for nearly 20 years now. My B12 levels are kept within the normal range with oral sublingual cyanocobalamin or...

Hi, I’m new to this board. I have had PA for nearly 20 years now. My B12 levels ...

UpandUp52

•4 years ago

10 Replies

What do hubbys blood test results mean?

Hubby has just got a print out of his blood test results for last 5 years. His B12 has only been tested once, despite having B12 deficiency and 12 weekly B12...

Hubby has just got a print out of his blood test results for last 5 years. His B...

timmysmom

•4 years ago

10 Replies

B12 loading doses timescales

Hi I’ve posted earlier regarding B12 injection loading doses, my nurse was only available Tues & Wed next week and the following week again, I’ve had the...

Hi I’ve posted earlier regarding B12 injection loading doses, my nurse was only...

mistygrey

•4 years ago

3 Replies

Gp, sc, drugs.

Been to my Gp. Quite confusing. Said about not absorbing b12 tablets. She thought my b12 deficiency dietary at start?? I eat meat regularly and have diary...

Been to my Gp. Quite confusing. Said about not absorbing b12 tablets. She thoug...

Nackapan

•4 years ago

18 Replies

Daughter’s low B12 - what to do

Hi my 15 year old daughter has just had a blood test showing low B12. Told I need a routine telephone appt with doc - still waiting 9 days later although I’ve...

Hi my 15 year old daughter has just had a blood test showing low B12. Told I nee...

pydge

•4 years ago

14 Replies

MMA test - what does it tell you?

After receiving some very helpful replies on my previous thread, I've been reading around a lot on here, but something I haven't been able to clarify is what...

After receiving some very helpful replies on my previous thread, I've been readi...

fleurdelis01

•4 years ago

11 Replies

B12 loading doses query

Hi, I’m getting the rest of my loading doses next week & the week after. Had an injection this week. The nurse who does b12 is only in Tuesday and Wednesdays,...

Hi, I’m getting the rest of my loading doses next week & the week after. Had an ...

mistygrey

•4 years ago

26 Replies

Stomach pain and upset

I have been bothered by a lot of symptoms lately that I think are heartburn, but last night I was woken up with heartburn like pain, gassiness, and a little...

I have been bothered by a lot of symptoms lately that I think are heartburn, but...

Hidden

•4 years ago

18 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2020

Needle size

Problems Obtaining B12 depot from Germany

Good local guidelines in UK

Daughter's Diagnosis

PAS Political Campaign

Worrying reaction to something

NHS website - Blood tests for iron deficiency anaemia

Newly diagnosed low b12

Do I tell my GP

Automatic injector

Spelling

Needle size?

B12 deficiency

So frustrated I could cry

CA you get cured of PA?

Rash after B12 injection

Breathing better after iron infusion

The Many Faces of B12 Deficiency (paper from the Mayo clinic)

Cipro- antibiotic

Getting a diagnosis for pernicious anaemia.

Semantics

Bit of history and mystery

Low Stomach Acid solution/remedies

What do hubbys blood test results mean?

B12 loading doses timescales

Gp, sc, drugs.

Daughter’s low B12 - what to do

MMA test - what does it tell you?

B12 loading doses query

Stomach pain and upset

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