Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for February 2020

Facts about PA

When my muscle weakness snd neuropathy were getting worse I injected more with no relief.... it was my folate!...Do not divgolate acid it needs to be mythyl...

When my muscle weakness snd neuropathy were getting worse I injected more with n...

Hampton77

•4 years ago

2 Replies

Looking to self-treat in the USA--how to get b12?

Hi everyone. I'm new here and glad to have found this forum. I recently received a definitive diagnosis of PA (IF antibodies, etc). I'm having a whole slew of...

Hi everyone. I'm new here and glad to have found this forum. I recently received...

AnnaUSA

•4 years ago

7 Replies

B12 injections

After having persistent chest infection my gp did further bloods which showed my b12 levels are almost non existent. Had my 1st injection today and it's made...

After having persistent chest infection my gp did further bloods which showed my...

Collywobbles43

•4 years ago

4 Replies

Want to take advantage of all our features? Just log in!

FOLIC ACID

I was told that B12 injections would not be effective if B9 was not supplemented? I was advised to take 5 milligrams of folic acid supplement daily by the NHS...

I was told that B12 injections would not be effective if B9 was not supplemented...

Bellabab

•4 years ago

15 Replies

Progress report

Dear friends My first post was 24 days ago and I started every other day injections then. My symptoms then were summarised as feeling extremely upset and...

Dear friends My first post was 24 days ago and I started every other day injecti...

kittyflowers

•4 years ago

4 Replies

Serum Iron and PA

I don't know how it is elsewhere but over here in Finland you get access to all lab manuals. So checked instructions for serum Iron and iron panel. Some lab...

I don't know how it is elsewhere but over here in Finland you get access to all ...

Justiina

•4 years ago

5 Replies

Wrong size needle?

So I’ve ordered and received everything for self injecting B12. I am however bricking it as I think I may have ordered the wrong injection needle! It’s 23G x...

So I’ve ordered and received everything for self injecting B12. I am however br...

Clarkie477

•4 years ago

8 Replies

Sublingual injectable?

Is it safe to inject sublingual B12?

Troutbum

•4 years ago

2 Replies

Shuffling gait

I’m fairly sure my legs are getting worse, I can hardly lift my feet off the ground & feel so stupid! Will it help if I try to walk more. At the moment I’m...

I’m fairly sure my legs are getting worse, I can hardly lift my feet off the gro...

Hidden

•4 years ago

19 Replies

Back on the injections again

I finally got an appointment with a neurologist last year, and had a CT and EEG (not related to the pernicious anaemia). I also had a load of blood taken. I...

I finally got an appointment with a neurologist last year, and had a CT and EEG ...

Saoirse2016

•4 years ago

10 Replies

Effected speech

Hey! Does anyone else suffer with their speech? The rare occasion I cant get out what I want to say which is really upsetting and frustrating as you can...

Hey! Does anyone else suffer with their speech? The rare occasion I cant get out...

Ljbillo

•4 years ago

14 Replies

Antibiotics and PA

Has anyone had an experience where antibodies causes symptoms to resurface . I asked a similar question in my last post but wanted to ask the question...

Has anyone had an experience where antibodies causes symptoms to resurface . I a...

CW12

•4 years ago

9 Replies

New self injector what to do?

Ordered b12 to self inject. What else will i need and how often should I inject? I have my last loading doeage on Monday so I've currently been having them...

Ordered b12 to self inject. What else will i need and how often should I inject?...

Louise234cats

•4 years ago

3 Replies

Returning symptoms

A couple of months ago I went from injections once a month to now once a week. I was having great improvement... finally. Recently my job got really...

A couple of months ago I went from injections once a month to now once a week. ...

CW12

•4 years ago

10 Replies

They won't retest.!

I was diagnosed as B12 deficient about 4 years ago,. Went through the injections on alternate days and was then put on a 12 week injection cycle, things...

I was diagnosed as B12 deficient about 4 years ago,. Went through the injection...

Linny17

•4 years ago

4 Replies

Serum iron dropped considerably w/ B12 loading doses... Should I take iron?

About a week into taking B12 loading doses I went to get tested to see what it was doing to my iron levels and honestly was surprised that my levels had gone...

About a week into taking B12 loading doses I went to get tested to see what it w...

Aston06

•4 years ago

8 Replies

Stress ?

Does anyone get over stressed and become dizzy and over tired because of their anemia. This has been going on a lot and I don’t know if I should ask my doctor...

Does anyone get over stressed and become dizzy and over tired because of their a...

mcginnmx

•4 years ago

8 Replies

Upset and scared

I had the great idea of skipping my injections because I do not have proven deficiency. Stupid idea. So was off of B12 for 7 weeks me think, only sublingual....

I had the great idea of skipping my injections because I do not have proven defi...

Justiina

•4 years ago

12 Replies

Neuro Opthalomogist

Buster I'm still waiting for thus appointment. I'm hoping to fund a readin fir light sensitivity and vision problems. To check k the optic nerve again. Aksi...

Buster I'm still waiting for thus appointment. I'm hoping to fund a readin fir l...

Nackapan

•4 years ago

5 Replies

're testing my b12

I have been on loading doeage for b12 because I had b12 deficiency. My last one is on Monday then she said to me after two weeks they will send me for a blood...

I have been on loading doeage for b12 because I had b12 deficiency. My last one ...

Louise234cats

•4 years ago

2 Replies

AMAZON WILL DONATE 0.5% TO P.A.S. ON MANY PURCHASES . USE www.smile.amazon.co.uk and chose P.A.S. AS YOUR CHARITY .

As a certain super market says “ Every little helps “ Use Pernicious Anaemia Society “

As a certain super market says “ Every little helps “ Use Pernicious Anaemia Soc...

wedgewood

•4 years ago

4 Replies

pernicious anemia and altered sensation

hi all! i have hypothyroidism (most likely hashis, runs in the family) and my doctor thinks i may have low b12 due to my systems and “it being affected by the...

hi all! i have hypothyroidism (most likely hashis, runs in the family) and my d...

meowzart

•4 years ago

5 Replies

Buying b12 for injection in Rome

I’m getting a bit worried about the fact that some people are having trouble buying b12 from Germany recently as I rely on it to keep healthy. As my sister...

I’m getting a bit worried about the fact that some people are having trouble buy...

Hidden

•4 years ago

11 Replies

High b12 news

Folliwing previous posts of mine, very briefly, my gp stopped b12 injections because my level was high & it actually remained high >1500 for over 2 years. I...

Folliwing previous posts of mine, very briefly, my gp stopped b12 injections b...

Irismay

•4 years ago

73 Replies

Repeat of loading doses

I was diagnosed with PA using the schilling test back in 2002. I have been having 3 monthly injections up till 5th June last year when it was stopped because...

I was diagnosed with PA using the schilling test back in 2002. I have been havin...

Tonyworks

•4 years ago

13 Replies

Has anyone else been diagnosed with PA at the age of 19?

I was diagnosed with Pernicious Anemia at the age of 19 and I had all of the tests done such as colonoscopy and endoscopy and other blood tests and nothing...

I was diagnosed with Pernicious Anemia at the age of 19 and I had all of the tes...

Dakota17777

•4 years ago

14 Replies

Ifab testing

Can I get an ifab test be done online? I live in the u.s

Autumn11

•4 years ago

4 Replies

Tardive dyskinesia

Has anyone had experience with symptoms of Tardive Dyskinesia during treatment with b12 injections? I have not been diagnosed with it but one of my doctors...

Has anyone had experience with symptoms of Tardive Dyskinesia during treatment w...

BethCam

•4 years ago

8 Replies

Can it be PA when the Dr says no and the results are inconclusive?

Hi All, I am looking for some thoughts to my PA/B12 deficiency journey. Having an engineering background sometimes makes the grey areas that surround PA...

Hi All, I am looking for some thoughts to my PA/B12 deficiency journey. Having a...

LeighW

•4 years ago

11 Replies

B12 Loading doses

Hi, I’ve had two loading doses of b12 this week and have 4 more left. Due to the nurse being the only one who is available to give the injections, I am having...

Hi, I’ve had two loading doses of b12 this week and have 4 more left. Due to the...

mistygrey

•4 years ago

4 Replies

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(75)

All things Pernicious Anaemia Society(75)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2020

Facts about PA

Looking to self-treat in the USA--how to get b12?

B12 injections

FOLIC ACID

Progress report

Serum Iron and PA

Wrong size needle?

Sublingual injectable?

Shuffling gait

Back on the injections again

Effected speech

Antibiotics and PA

New self injector what to do?

Returning symptoms

They won't retest.!

Serum iron dropped considerably w/ B12 loading doses... Should I take iron?

Stress ?

Upset and scared

Neuro Opthalomogist

're testing my b12

AMAZON WILL DONATE 0.5% TO P.A.S. ON MANY PURCHASES . USE www.smile.amazon.co.uk and chose P.A.S. AS YOUR CHARITY .

pernicious anemia and altered sensation

Buying b12 for injection in Rome

High b12 news

Repeat of loading doses

Has anyone else been diagnosed with PA at the age of 19?

Ifab testing

Tardive dyskinesia

Can it be PA when the Dr says no and the results are inconclusive?

B12 Loading doses

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive