Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,244 members • 23,423 posts

All posts for January 2020

Ménières disease due to b12 and D deficiency?

Hi , Is it possible that our vitamin deficiency can trigger Ménière disease? I was just searching for symptoms online and they were kind of matching....

Hi , Is it possible that our vitamin deficiency can trigger Ménière disease? I w...

psawant

•4 years ago

7 Replies

Anybody really good with blood test diagnostics?

I'll say right off the bat this isn't a P.A. issue (I don't think!), but I didn't know where else to post this and felt that the thyroid community & pernicious...

I'll say right off the bat this isn't a P.A. issue (I don't think!), but I didn'...

Chancery

•4 years ago

51 Replies

Symptoms

Hi I am new to the community. I have functional B12 deficiency and I have been taking injections for this for 4 years. I have been getting some distressing...

Hi I am new to the community. I have functional B12 deficiency and I have been t...

pisces0222

•4 years ago

21 Replies

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Tingling Back

Just when I think I’m starting to do better a new weird symptom starts. I recently stated a once a week regimen of b12 and have been having a weird burning...

Just when I think I’m starting to do better a new weird symptom starts. I recen...

CW12

•4 years ago

9 Replies

Has B12 deficiency permanently damaged my stomach.

I told my Dr. what I had been told and he does not see how it is possible, so I am coming to you. I was told that because I had taken Proton Pump Inhibitors...

I told my Dr. what I had been told and he does not see how it is possible, so I ...

EAPLind

•4 years ago

28 Replies

Opinion on test results (B12, Folate, D, Iron...)

Hi Can I get an opinion on my blood test results specifically Vitamin B12, Folate, Vitamin D, Iron but there are other test results on there. The first one was...

Hi Can I get an opinion on my blood test results specifically Vitamin B12, Folat...

AJ-AJ

•4 years ago

1 Reply

B12 injections

Hi All, I’m having B12 injections every three months as prescribed by my GP. I’m feeling very low and wonder if it’s safe to self inject more regularly and if...

Hi All, I’m having B12 injections every three months as prescribed by my GP. I’...

Marrob

•4 years ago

13 Replies

Terrible headache after they reduced my b12 frequency

I suffer from terrible headaches ( they started Monday) and I cant sleep ot function because of it. My head seems so heavy as if its full of lead, also my...

I suffer from terrible headaches ( they started Monday) and I cant sleep ot fun...

Gumball77

•4 years ago

13 Replies

Neuro Opthalomogist

I've asked Gp I writing for a referral. I've andi had a report sent with it from a professor/optician I got tinted glasses from . He agreed next step. My eyes...

I've asked Gp I writing for a referral. I've andi had a report sent with it fro...

Nackapan

•4 years ago

4 Replies

Self injections

I self injected ( first time) in my thigh... kind of of a IM/SC hybrid. I just sort of stuck it in and pressed. There was some bleeding after. Has this...

I self injected ( first time) in my thigh... kind of of a IM/SC hybrid. I just ...

CW12

•4 years ago

5 Replies

Blood test

Today I had a blood test for methyamalic acid. Even though my b12 is 248. My mother had pernicious anaemia.

Today I had a blood test for methyamalic acid. Even though my b12 is 248. My ...

Soundwell1

•4 years ago

1 Reply

Too much B12 feeding bad bacteria in gut ?!?

Hi, first of all Happy NY to you all. As I've written already, I'm struggling with digestive issues (e.g. once I got bad stomach pain after injection) whilst...

Hi, first of all Happy NY to you all. As I've written already, I'm struggling wi...

Heidiv

•4 years ago

10 Replies

Functional doctor checking everything!

I posted here before about my suspected low B12 and my experience with my unsympathetic GP. I visited my consultant who was also not interested in listening to...

I posted here before about my suspected low B12 and my experience with my unsymp...

MariaMe

•4 years ago

3 Replies

Blood test

Just about to have a blood test for methylmalonic acid. Is that good. Had to really keep endo on track for him to do it.

Just about to have a blood test for methylmalonic acid. Is that good. Had to re...

Soundwell1

•4 years ago

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Why can't we get them here over the counter?

UK B12 injections,so with the numerous people with long term suffering and who know our own bodies and every increasing symptoms that includes myself, more...

UK B12 injections,so with the numerous people with long term suffering and who k...

Cb1963

•4 years ago

13 Replies

Vit b12 deficiency

Hi all, I’ve just discovered I’ve got low vit b12 levels, after going to gp with extreme tiredness and lethargy, which I had put down to the loss of my father....

Hi all, I’ve just discovered I’ve got low vit b12 levels, after going to gp with...

Neighboursfan

•4 years ago

6 Replies

Small fiber neuropathy and B12 deficiency

After a normal brain and spine MRI, normal EMG and nerve conduction study, and normal labs (apart from low b12), I found out yesterday that the results of my...

After a normal brain and spine MRI, normal EMG and nerve conduction study, and n...

Ashley820

•4 years ago

7 Replies

Pins and needles

Does anyone with PA still get pins and needles in hands,even with b12 injections weekly

Does anyone with PA still get pins and needles in hands,even with b12 injections...

Hesterbear

•4 years ago

4 Replies

Can somebody explain these

I have Hashimoto and UAT my TSH is currently surpressed. I have all the symptoms of a b12 deficiency and my numbers have always been in the 200s(200-900) but...

I have Hashimoto and UAT my TSH is currently surpressed. I have all the symptoms...

Sweenco

•4 years ago

3 Replies

Injecting adenosylcobalamin

Hi Interested to chat with those who have tried hydroxocobalamin and added adenosylcobalamin or changed to both methylcobalamin and adenosylcobalamin. Curious...

Hi Interested to chat with those who have tried hydroxocobalamin and added adeno...

Gingerrr

•4 years ago

1 Reply

Iron Deficiency and PA

Hi guys, just wanting to know if anyone else has iron deficiency problems along with pernicious anaemia? I struggle to gain any iron stores from taking tablets...

Hi guys, just wanting to know if anyone else has iron deficiency problems along ...

LauraF1

•4 years ago

13 Replies

Gastroenterologist familiar with Autoimmune Gastritis?

Hello, Does the Pernicious Anaemia Society have a list of recommended UK gastroenterologists familiar with Autoimmune Gastritis? Or does anyone here know one...

Hello, Does the Pernicious Anaemia Society have a list of recommended UK gastroe...

GastritisB12

•4 years ago

2 Replies

B12 For Crohns

I have Crohns Disease and had a resection 10 Years ago, I have B12 Injections every 6 Weeks but would like to do these myself, does anybody else do their own ?

I have Crohns Disease and had a resection 10 Years ago, I have B12 Injections ev...

Jamlady

•4 years ago

5 Replies

Tinnitus

Do tinnitus goes away after few months of b12 treatment?

psawant

•4 years ago

28 Replies

Can symptoms get worst before getting better on hydroxocobalamin injections

My husband has recently started self injecting to suplement the ones he gets every 12 weeks from gp. He has had 4 injections in the last eight days working out...

My husband has recently started self injecting to suplement the ones he gets eve...

timmysmom

•4 years ago

9 Replies

Vegan Friend has Low b12. Where can tablets be purchased from?

Many thanks in advance

SunnyWorld

•4 years ago

16 Replies

Results!!

I’ve had my active form of B12 taken and Folate without supplementing and the folate has come back as abnormal. Apparently if I supplement folate and my B12...

I’ve had my active form of B12 taken and Folate without supplementing and the fo...

SpiritualT

•4 years ago

7 Replies

MMA Testing Protocol Advice

Hell all, this is my first time posting. For years, prior to taking B12 supplements and despite deficiency symptoms (tingling limbs and extremities,...

Hell all, this is my first time posting. For years, prior to taking B12 suppleme...

purpanda

•4 years ago

2 Replies

First jab

Had my first injection yesterday non 6th next one Wednesday feel like crap today is this common

Had my first injection yesterday non 6th next one Wednesday feel like crap toda...

gpw61

•4 years ago

5 Replies

Specific food cravings?

Does anyone have cravings for very specific foods or tastes since having PA? When I was much younger, I had a bad case of Graves Disease and craved salt, for...

Does anyone have cravings for very specific foods or tastes since having PA? Wh...

scnuke

•4 years ago

11 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2020

Ménières disease due to b12 and D deficiency?

Anybody really good with blood test diagnostics?

Symptoms

Tingling Back

Has B12 deficiency permanently damaged my stomach.

Opinion on test results (B12, Folate, D, Iron...)

B12 injections

Terrible headache after they reduced my b12 frequency

Neuro Opthalomogist

Self injections

Blood test

Too much B12 feeding bad bacteria in gut ?!?

Functional doctor checking everything!

Blood test

Why can't we get them here over the counter?

Vit b12 deficiency

Small fiber neuropathy and B12 deficiency

Pins and needles

Can somebody explain these

Injecting adenosylcobalamin

Iron Deficiency and PA

Gastroenterologist familiar with Autoimmune Gastritis?

B12 For Crohns

Tinnitus

Can symptoms get worst before getting better on hydroxocobalamin injections

Vegan Friend has Low b12. Where can tablets be purchased from?

Results!!

MMA Testing Protocol Advice

First jab

Specific food cravings?

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