B12 For Crohns: I have Crohns Disease... - Pernicious Anaemi...

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B12 For Crohns

Jamlady profile image
5 Replies

I have Crohns Disease and had a resection 10 Years ago, I have B12 Injections every 6 Weeks but would like to do these myself, does anybody else do their own ?

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Jamlady profile image
Jamlady
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wedgewood profile image
wedgewood

Many people on this forum do their own B12 injections . It means obtaining the B12 ampoules from certain online German pharmacies , because in UK, they can only be obtained on prescription ( ridiculous really ) I can’t reply in full to you at the moment , but will do so later . It’s all quite simple really , and luckily cheap ( buying in bulk , everything included about £1.20 for an injection ) I will answer a length later today . In the meantime others may answer your question before I get back to you . Best wishes . 👍

Jamlady profile image
Jamlady in reply to wedgewood

Thank You Very Much

wedgewood profile image
wedgewood in reply to Jamlady

Help for U.K. Pernicious Anaemia patients and others wanting to self-inject

B12 ( Hydroxocobalamin) ampoules can be obtained from some German online pharmacies . These pharmacies are strictly controlled by the German Health authorities.No prescription needed in Germany . Many members of this forum use these pharmacies , and they are very reliable .

Search for Rotexmedica vitaminB12 depot . Don’t forget “depot” because otherwise you could accidentally order B12 Cynocobalamin which Rotexmedica also produce. Cynocobalamin would work for you , but the NHS uses Hydroxocobalamin. Cyno is cheaper . These ampoules are 1mg x 1ml

bodfeld-apotheke.de. ( In German, but can be obtained in English from a drop-down list in the top right hand corner of the site )

versandapo.de ( In German only ,so you might need a translation app , or use Google Chrome )

These pharmacies use a courier to deliver , taking about 4-5 days . At the moment it costs €9,89 , no matter how many you order ( I order 100 at a time , and they have a use-by date of 2 1/2 years hence ) You can pay with PayPal , a card or Amazonpay .

I have registered with the above pharmacies . It makes it so much easier when you re-order .

amazon.de ( German Amazon )The disadvantage here is that the several pharmacies who sell b12 ampoules through amazon.de , do not all deliver to the U.K. You need to trawl through till you find one that does . Some times the first one to appear will send to UK .

Needles, syringes , swabs and sharps disposal boxes can be obtained from medisave.co.uk . Always buy 100 of every item ( no, not the disposal boxes!)

I buy long withdrawing needles 21G x1 1/2 inches, because the extraction process blunts the needle on the glass ampoule .( ouch!)

I use a 25 G x 1 inch injecting needle .

Open the ampoule using the swab to avoid nasty cuts .The weakest place on the ampoule is marked with a spot on the neck.

If you have trouble with this, a device , ampoule opener , about £3.00, obtainable from amazon.co.uk

exchangesupplies.org also supply needles and syringes .

I use a 2 ml syringe although the ampoule is 1ml , to make sure I get every last precious drop of B12. Insert the extracting needle to the very bottom of the ampoule . I pull out the plunger , and inject the air SLOWLY into the ampoule . Then when the plunger is pulled out for the second time, every last drop of B12 is in the syringe . Then put on the injection needle , and expel the air until a tiny droplet of B12 appears on the end of the needle . Now you are ready to inject into the middle outside third of your thigh , which is where the muscle nearest the surface . (vastus lateralis ) If you are needle phobic there is help in the shape of a device called an auto-injector . Available from a Danish company unionmedico.com costing about £100.00. I don’t use one, but I’ve heard good reports .

You can find videos demonstrating Intra -muscular injections . Some are good , others not so . You can also inject sub-cutaneously , but I know nothing about this method .

If you are injecting B12 for the first time, you should have someone nearby, in case of anaphylactic shock . This is a very rare reaction , but I feel obliged to tell you . Do not worry about overdosing on B12– it’s water-soluble . It is not possible . That’s a proven fact

I have been self-injecting for 4 years now , and I don’t turn a hair . But I cannot tell you how nervous I was the first time . I was shaking like a leaf .🌿. But it has changed my life. Best of luck 🍀.

BurntToast profile image
BurntToast

My GP agreed to let me do my own B12 injections so I have the ampoules on repeat prescription. Ask your GP, they might agree. I could ask the surgery to give me needles and syringes too but I like to do it subcutaneously instead of intramuscularly so in order to get shorter needles I buy my own from the exchange supplies website. I just buy ten at a time so the dates don't run out before I use them. They cost almost nothing.

Baggy8 profile image
Baggy8

At my request, the practice nurse showed me how to self inject and gave me a further 2 ampoules, syringes, needles and sharps box. I now have a a six monthly presctiption of 3 ampoules, so am still 'on the radar'. I just buy the additional ampoules and equipment to suit my needs.

Mine is certainly not a B12 savvy surgery, so I was surprised how keen they were to agree to my request. But it obviously saves them money...

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