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Pernicious Anaemia Society

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All posts for December 2019

Crackling sounds thorough out the body

Hi Everyone, After a month of treatment, I am experiencing a crackling sounds throughout my body. Any suggestions? I am b12 and Vit D deficient.

Hi Everyone, After a month of treatment, I am experiencing a crackling sounds t...

psawant

•4 years ago

3 Replies

Happy Christmas everyone

Hope you all can enjoy what you can. Wishing all a happy healthier New Year

Nackapan

•4 years ago

5 Replies

Cynocobalamine/Methylcobalamin injections

Hi Everyone, I read many a times here and there online that Methylcobalamin injections are better than cynocobalamine injections when dealing with neurological...

Hi Everyone, I read many a times here and there online that Methylcobalamin inje...

psawant

•4 years ago

9 Replies

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Folic acid supplementation in b12 deficiency

Hi All, Is it required to supplement with folic acid even if it is in normal range when b12 deficient. I heard folic acid helps in better absorption of b12. My...

Hi All, Is it required to supplement with folic acid even if it is in normal ran...

psawant

•4 years ago

7 Replies

Night time- symptoms worse

I was wondering if it was in my head or do my symptoms worsen at night. Maybe in the quiet time I am thinking about them more and distracted during the day....

I was wondering if it was in my head or do my symptoms worsen at night. Maybe i...

CW12

•4 years ago

4 Replies

My story

Hi, I was diagnosed today with PA. I also was diagnosed 4 days ago with supraventricular tachycardia and have suffered from hypothyroidism for about 13 years....

Hi, I was diagnosed today with PA. I also was diagnosed 4 days ago with suprave...

Azushn

•4 years ago

13 Replies

Hypophosphatasia

Recently had a number of blood tests. One test which has been upper end of low for about 4 years is alkaline phosphatase. Normal range, 46-116 U/L. My results...

Recently had a number of blood tests. One test which has been upper end of low f...

SouthSounder

•4 years ago

3 Replies

Help with 24hr Heart Monitor result: Ventricular Ectopics

Although the hospital have signed me off as "No abnormal criteria found" , my GP told me today that during the 24 hours I had a lot of additional...

Although the hospital have signed me off as "No abnormal criteria found" , my GP...

Cherylclaire

Forum Support•4 years ago

26 Replies

Vitamin B 12 - Foot & Calf pain

Hi all, I'm new to this forum. I have been suffering from really sore feet for two years or so including heel pain and burning sensations in my calves, making...

Hi all, I'm new to this forum. I have been suffering from really sore feet for ...

Paulblo

•4 years ago

22 Replies

Private B12 injections

Hello I'm new to this section of the forum. My husband has pernicious anemia and the GP will only give him B12 injections every 12 weeks. He sleeps much of the...

Hello I'm new to this section of the forum. My husband has pernicious anemia and...

timmysmom

•4 years ago

13 Replies

Anemic and joyful.

While having a wart removed the Doc said I looked anemic. Since he peaked my interest and a blood test revealed I had critical RBC and I initially took the...

While having a wart removed the Doc said I looked anemic. Since he peaked my int...

Alien99

•4 years ago

2 Replies

Restless legs

Does anyone else suffer from restless legs? I’ve had this issue since before I found I had B12 deficiency and I don’t know if it’s connected. I have vitamin D...

Does anyone else suffer from restless legs? I’ve had this issue since before I f...

Yogijo

•4 years ago

11 Replies

Folic Acid - Amazon?

Hi, Has anyone brought 5mg Folic Acid from Amazon? I’m supposed to take 5mg a day for three months but my doctor only gave me a months supply. Its prescription...

Hi, Has anyone brought 5mg Folic Acid from Amazon? I’m supposed to take 5mg a da...

Sarahlouise1980

•4 years ago

11 Replies

Update after 1 month and 7 days

Hi Everyone, I just wanted to update on my 1 month treatment. Last month was horrible with many symptoms alternatively including neuro and psychiatric...

Hi Everyone, I just wanted to update on my 1 month treatment. Last month was hor...

psawant

•4 years ago

4 Replies

Serum folate

Hello, I have injections every 5 weeks now for Vitamin B12 deficiency. My latest blood test showed that my serum folate had dropped from 16.3ug/L two years ago...

Hello, I have injections every 5 weeks now for Vitamin B12 deficiency. My latest...

sueeaton

•4 years ago

3 Replies

Please help . Can I ever get back to having my prior energy levels ?

Vit B12 below 150 diagnosed 5 months back.Struggling with extreme fatigue and head symptoms. Unable to concentrate . On weekly injections . Is there any hope...

Vit B12 below 150 diagnosed 5 months back.Struggling with extreme fatigue and he...

peace1234

•4 years ago

20 Replies

Hormone changes and low b12

I started weekly injections for low B12 at the end of August and have made a lot of progress/improvement. I’ve noticed though that the day before my cycle...

I started weekly injections for low B12 at the end of August and have made a lot...

Ashley820

•4 years ago

2 Replies

PA Symptoms

Does anyone have an exhaustive list of possible symptoms? I keep discovering things that I didn't know were PA related. At some point I saw a list of 100...

Does anyone have an exhaustive list of possible symptoms? I keep discovering thi...

Emmers5

•4 years ago

12 Replies

Vitamin d and b12

What’s the link? I see people saying those low in b12 May likely have a vit d deficiency but why is this?

What’s the link? I see people saying those low in b12 May likely have a vit d de...

Roo32

•4 years ago

5 Replies

Ringing ears

Hey guy's. Is there anything I can do for ringing in my ears? I have pa and know this is 1 of many symptoms. Just wondering if theres anything I can do/take...

Hey guy's. Is there anything I can do for ringing in my ears? I have pa and kno...

Ljbillo

•4 years ago

10 Replies

New blood test results, is this possible?

Hello, As you might remember from my other posts I had a B12 result from the 15th of November that was 155. By the time I got to the doctor and because of...

Hello, As you might remember from my other posts I had a B12 result from the 15t...

Sasical

•4 years ago

19 Replies

B12 injections Due

B12 injection due 25th December. Prior to this over last few weeks been suffering with tiredness. Back and joint ache.tummy upset and bloating.heart burn and...

B12 injection due 25th December. Prior to this over last few weeks been suffer...

Mozza127

•4 years ago

10 Replies

FOLATE DEFICIENCY VERY SYMPTOMATIC ASKING FOR ANSWERS, OPINIONS, REASONS ETC..!!

My folic acid test was 8 ng/ml reference ranges from 1.6 to 8.8 ng/ml. I have poor concentration, loss of.balance, feeling disoriented, double vision, muscle...

My folic acid test was 8 ng/ml reference ranges from 1.6 to 8.8 ng/ml. I have po...

G0raN

•4 years ago

35 Replies

Memory loss

How long does it take for memory loss to improve or is there no hope? Many symptoms have improved since August when I started treatment but alas not failing...

How long does it take for memory loss to improve or is there no hope? Many sympt...

Damseltree

•4 years ago

6 Replies

Anxiety management during first few months of treatment

Hi Everyone, During the treatment of b12 did anyone try herbal medicines like Ashwagandha (Withania Somnifera)to manage anxiety levels? I had tried it when i...

Hi Everyone, During the treatment of b12 did anyone try herbal medicines like As...

psawant

•4 years ago

6 Replies

Anxiety improvements

Hello again - sorry b12 is a big deal in my life right now.. So, I would say I can be a relatively anxious person for sure, and I have had to learn ways to...

Hello again - sorry b12 is a big deal in my life right now.. So, I would say I c...

Roo32

•4 years ago

7 Replies

Christmas

Once again a year has flown past, I would just like to thank everyone on here for there support and advise to others, and wish everyone a very Happy and...

Once again a year has flown past, I would just like to thank everyone on here fo...

pitney

•4 years ago

7 Replies

Frequency of injections

Is it really possible I need 3 injections a week? Coeliac disease 11 years . B12 deficiency diagnosed 14 months ago. Worst symptom I have is a light head or...

Is it really possible I need 3 injections a week? Coeliac disease 11 years . B12...

Quigley2005

•4 years ago

15 Replies

B12 injections been stopped

Hoping for some advice please. My apologies for the length. I have hypothyroidism and B12 deficiency diagnosed in 2017. I also have IBS with a dairy...

Hoping for some advice please. My apologies for the length. I have hypothyroidi...

puddings1

•4 years ago

14 Replies

Blood in stools

Hi all I was diagnosed with PA about 3 yrs ago . I SI because I can’t be bothered with the Drs misinformation. I do this about once every 2 wks. Alls well I...

Hi all I was diagnosed with PA about 3 yrs ago . I SI because I can’t be bothere...

lifegems

•4 years ago

22 Replies

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2019

Crackling sounds thorough out the body

Happy Christmas everyone

Cynocobalamine/Methylcobalamin injections

Folic acid supplementation in b12 deficiency

Night time- symptoms worse

My story

Hypophosphatasia

Help with 24hr Heart Monitor result: Ventricular Ectopics

Vitamin B 12 - Foot & Calf pain

Private B12 injections

Anemic and joyful.

Restless legs

Folic Acid - Amazon?

Update after 1 month and 7 days

Serum folate

Please help . Can I ever get back to having my prior energy levels ?

Hormone changes and low b12

PA Symptoms

Vitamin d and b12

Ringing ears

New blood test results, is this possible?

B12 injections Due

FOLATE DEFICIENCY VERY SYMPTOMATIC ASKING FOR ANSWERS, OPINIONS, REASONS ETC..!!

Memory loss

Anxiety management during first few months of treatment

Anxiety improvements

Christmas

Frequency of injections

B12 injections been stopped

Blood in stools

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive