Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for December 2019

post SI levels

3 yrs ago b12 was 186 pmol/L range 138-652 pmol/L RBC LOW 4.41 RANGE 4.50 - 6.00 Hematocrit LOW 0.395 RANGE 0.400 - 0.500 Dr said "its fine" i started...

3 yrs ago b12 was 186 pmol/L range 138-652 pmol/L RBC LOW 4.41 RANGE 4.50 - 6....

Akafred

•5 years ago

1 Reply

Minor win

For all of you dealing with the doctors on properly listening. Today I got my doctor to increase frequency of injection to 2 months vs 3. After stating...

For all of you dealing with the doctors on properly listening. Today I got my do...

LeighW

•5 years ago

4 Replies

Purchasing self injecting b12 in USA

Hi Everyone, My GP have said she is stopping the injectable b12 treatment after the first 14 loading doses in one month. I can see my symptoms gradually...

Hi Everyone, My GP have said she is stopping the injectable b12 treatment after ...

psawant

•5 years ago

15 Replies

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Self injecting advice

I live in Charlotte, NC, USA. My GP asked to stop the injections after one month of loading doses when she tested for the serum b12 test which was of course...

I live in Charlotte, NC, USA. My GP asked to stop the injections after one month...

psawant

•5 years ago

26 Replies

I recently had an Endoscopy. Results were small intestine is fine. I am gluten free due to pain and it has helped ease the pain.

How is it possible that gluten free diet would help if there is no problem with celiac? Can anything help an atrophic stomach lining? Doesn't the lining...

How is it possible that gluten free diet would help if there is no problem with ...

tvellepern

•5 years ago

18 Replies

Afraid of bad reaction to B12 shot

Hi Since I wasn't getting anywhere with my GP I went to a private doctor this morning. She gave me a prescription for b12 shots. I've just been to buy it for...

Hi Since I wasn't getting anywhere with my GP I went to a private doctor this m...

Sasical

•5 years ago

9 Replies

Vit b 12 vials

https://www.mycare.de/en/my-account

Avron282

•5 years ago

1 Reply

Does anyone feel the urge to yawn constantly but it’s not a complete yawn which leaves you unsatisfied?

Also found myself taking deep breaths all the time. Due next shot 31st/12 struggling now so tired 😩😩

Also found myself taking deep breaths all the time. Due next shot 31st/12 strugg...

rr1993

•5 years ago

5 Replies

Testing advice

Hello. I had a blood test a month ago that showed I was borderline deficient (active B12). Vit d low too. Have been taking betteryou spray for 3 weeks now....

Hello. I had a blood test a month ago that showed I was borderline deficient (ac...

MrsButler

•5 years ago

2 Replies

Advice Please

Hi all Will try to keep this short. I've just driven a 10 hour round trip to be with my 27yo daughter for her appointment with CFS/ME people. They have...

Hi all Will try to keep this short. I've just driven a 10 hour round trip to be ...

Hidden

•5 years ago

24 Replies

b12 vials

can any give me the website of the germany pharmacy to get b12 vials please. I have bought some before but I really am struggling finding where I bought it...

can any give me the website of the germany pharmacy to get b12 vials please. I h...

lesbud1

•5 years ago

3 Replies

B12 over Christmas

I have a fortnightly b12 and can just about manage with that.... however when I had my b12 today the next one should be 31st but my gp is closed so I was given...

I have a fortnightly b12 and can just about manage with that.... however when I ...

jillc39

•5 years ago

8 Replies

Keep getting urinary infections

I keep getting urinary infections.I have had 6 this year and feel I am now getting another one. My Gp keeps giving me antibiotics but return about a month...

I keep getting urinary infections.I have had 6 this year and feel I am now getti...

Chocolate41

•5 years ago

7 Replies

MMA 0.17

I was waiting for MMA and homocysteine results before my dr issued loading doses not given. It came back today 0.17. Does this mean that neurological...

I was waiting for MMA and homocysteine results before my dr issued loading doses...

CW12

•5 years ago

10 Replies

SACD (sub acute combined degeneration of the spinal cord) with normal serum b12

Hi, I came across this article about a patient with SACD whose B12 level was normal. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5216536/ They responded well...

Hi, I came across this article about a patient with SACD whose B12 level was nor...

Sleepybunny

•5 years ago

8 Replies

Intrinsic factor test reliability

Would one of you very knowledgeable people please remind me why the anti parietal cell/intrinsic factor test isn’t to be relied upon please. I’m trying to...

Would one of you very knowledgeable people please remind me why the anti parieta...

Parlay

•5 years ago

8 Replies

Hydroxcobolomin, cyancobolomin, methycobolomin

Can one of you brilliant people explain the difference between these 3 types of b12. What is most effective. What is your experience with one vs another if...

Can one of you brilliant people explain the difference between these 3 types of ...

CW12

•5 years ago

8 Replies

Questions about vitamins

At the same time (mid july) as my original b12 test that showed deficiency: <50 (180-914) i had peripheral neuropathy, forgetfulness, irritability, depression,...

At the same time (mid july) as my original b12 test that showed deficiency: <50 ...

BethCam

•5 years ago

12 Replies

Blood Test results - Please Advise...

Hi, I had a blood test at my GP surgery in September and my results were: Serum B12 level: 119 ng/L (150-900) Serum Folate level: 2.3 ug/L (3.1-19.9) I did...

Hi, I had a blood test at my GP surgery in September and my results were: Seru...

Sarahlouise1980

•5 years ago

12 Replies

B12 Oral

Hi I am taking a multivitamin which has following composition. Vitamin B12 1500mcg + Vitamin B9 1.5mg + Vitamin B6 3mg + Vitamin D3 1000 IU + Alpha lipoic acid...

Hi I am taking a multivitamin which has following composition. Vitamin B12 1500m...

Riseup01

•5 years ago

8 Replies

Returning symptoms

Hi All To cut a long story short, I was diagnosed b12d over 5 years ago - I had multiple symptoms most of which have now ceased or been reduced. However,...

Hi All To cut a long story short, I was diagnosed b12d over 5 years ago - I had ...

Alfabeta

•5 years ago

2 Replies

Training patients to SI B12.

It seems that Wirral Primary Care are offering a course for nurses and healthcare assistants on how to teach patients to inject their own B12....

It seems that Wirral Primary Care are offering a course for nurses and healthcar...

fbirder

•5 years ago

4 Replies

Would like to hear from people who’s innitial levels were in the 200s

I have been struggling with b12 neurological symptoms since August. I have shared in other posts but will share again...No loading . 1 injection a month for...

I have been struggling with b12 neurological symptoms since August. I have sha...

CW12

•5 years ago

17 Replies

MMA and homocysteine

I have been going to a hematologist. I brought lots of information from the pernicious anemia society. I am an American and to my surprise and delight she...

I have been going to a hematologist. I brought lots of information from the p...

CW12

•5 years ago

9 Replies

A Poem just for self-injectors

Self injecting late at night Never seems to go quite right - Fading light ? - Poor eyesight? - Muscles tight? ...Or just too bloody tired ? If I'd been a...

Self injecting late at night Never seems to go quite right - Fading light ? - ...

Cherylclaire

Forum Support•5 years ago

4 Replies

Pernicious Anaemia-Starting B12 injections and folic acid

Hi, Seen my GP yesterday to discuss recent blood test results and my GP is starting my B12 injections on Monday. 3 a week for 2 weeks initially. My folate is...

Hi, Seen my GP yesterday to discuss recent blood test results and my GP is start...

Fallingapart0627

•5 years ago

28 Replies

Can't believe it!- new gastro finally ordered IF and parietal antibodies without me even mentioning B12 - after countless years of suffering

Hi all, I had given up all hope in the medical community after lifelong mysterious illnesses for which drs. never found a cause (and just gave me antibiotics...

Hi all, I had given up all hope in the medical community after lifelong mysteri...

Heidiv

•5 years ago

10 Replies

Blood test waiting period after taking high strength B12 sub-lingually for a couple of years?

I started self-medicating a couple of years ago with daily sub-lingual 5000 mcg B12 tablets topped up more recently with a sub-lingual spray. My symptoms...

I started self-medicating a couple of years ago with daily sub-lingual 5000 mcg ...

seamail57

•5 years ago

20 Replies

HELP PLEASE STUPID GP

My GP has cancelled my injection as they are reviewing all patients receiving b12. I have peripheral neuropathy, alodynia and feel like death within 4 weeks of...

My GP has cancelled my injection as they are reviewing all patients receiving b1...

Parksy

•5 years ago

27 Replies

Spray 500mcg, how much?

Hello again Until I can manage to get my injections, I have bought a methylcobalamin spray 500mcg per spray. It states one spray a day but do you think I...

Hello again Until I can manage to get my injections, I have bought a methylcobal...

Sasical

•5 years ago

9 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2019

post SI levels

Minor win

Purchasing self injecting b12 in USA

Self injecting advice

I recently had an Endoscopy. Results were small intestine is fine. I am gluten free due to pain and it has helped ease the pain.

Afraid of bad reaction to B12 shot

Vit b 12 vials

Does anyone feel the urge to yawn constantly but it’s not a complete yawn which leaves you unsatisfied?

Testing advice

Advice Please

b12 vials

B12 over Christmas

Keep getting urinary infections

MMA 0.17

SACD (sub acute combined degeneration of the spinal cord) with normal serum b12

Intrinsic factor test reliability

Hydroxcobolomin, cyancobolomin, methycobolomin

Questions about vitamins

Blood Test results - Please Advise...

B12 Oral

Returning symptoms

Training patients to SI B12.

Would like to hear from people who’s innitial levels were in the 200s

MMA and homocysteine

A Poem just for self-injectors

Pernicious Anaemia-Starting B12 injections and folic acid

Can't believe it!- new gastro finally ordered IF and parietal antibodies without me even mentioning B12 - after countless years of suffering

Blood test waiting period after taking high strength B12 sub-lingually for a couple of years?

HELP PLEASE STUPID GP

Spray 500mcg, how much?

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