Restless legs: Does anyone else suffer... - Pernicious Anaemi...

Pernicious Anaemia Society

31,947 members23,085 posts

Restless legs

Yogijo profile image
11 Replies

Does anyone else suffer from restless legs? I’ve had this issue since before I found I had B12 deficiency and I don’t know if it’s connected. I have vitamin D deficiency too, no idea whether that’s relevant either.

Written by
Yogijo profile image
Yogijo
To view profiles and participate in discussions please or .
Read more about...
11 Replies
Gambit62 profile image
Gambit62Administrator

Don't know about the implications of VitD deficiency but restless legs is a potential result of B12 deficiency, though there are also a lot of other things that can cause restless legs, including some drug interactions. Sometimes it just seems to happen with no identifiable cause. If it continues to bother you then suggest you mention it to your GP.

nhs.uk/conditions/restless-...

Sita505USA profile image
Sita505USA

It happens to me when my iron is low. My iron is my archilies heel.

Sita

SouthSounder profile image
SouthSounder

I've had relatively mild RLS for years. There's a tie to low levels of iron, which is often seen in PA. Have you had your ferritin checked? Mine isn't severe enough to require treatment, but fairly low dose codeine or other opioids can be quite effective, I understand. They also use dopamine agonists like pramipxexole but these can lead to worsening symptoms beginning earlier in the day. Definitely suggest checking the iron.

Yogijo profile image
Yogijo in reply to SouthSounder

Thanks, I think iron was one of the things my GP checked but I don’t know what the result was so I’m assuming they thought it was ok. I’ve got an appointment with GP after Christmas so I’ll ask then.

doohlally profile image
doohlally

Look at the protocol are you taking magnesium? It will help with both vit d and b12 absorption, magnesium, potassium and iron deficiencies are all associated with restless leg type issues good luck 😊

Yogijo profile image
Yogijo

No, I’m not taking magnesium. Thanks for that advice.

Caroline59 profile image
Caroline59

I started to get restless legs and was-told to drink a glass of tonic water( it contains Quinine).It did the trick for me.

I sip a small glass in the evening when I get/ have the symptoms.

SreedharM profile image
SreedharM in reply to Caroline59

There are some serious side effects of quinine water, please check the link. huffpost.com/entry/quinine-...

Caroline59 profile image
Caroline59 in reply to SreedharM

Not in the amounts that are in Tonic Water 20mg.

As opposed to 200 to 300 that was being prescribed

For restless legs.

Miss-guineapig profile image
Miss-guineapig

Yes, I was troubled with that but since taking multi vitamins, D3 and folic acid (folic is every second day)....as well as Vit B12 jab every 4 weeks, it is just about gone. Not really sure why, but I have also started walking a bit every day, so maybe it's accumulation . Hope it resolves too Yogijo x

CW12 profile image
CW12

Restless leg is a problem I suffer with.. one of my first and most persistent symptom

You may also like...

B12 helping Restless Legs

It seems like a miracle. Does anyone else have experience of Starting B12, and that helping their...

Restless Legs Whilst Sleeping

my wife tells me that I am constantly moving my legs in bed (every 20 seconds). This can last for...

Restless legs

on b12 injections after one and half months but from last three days , I am feeling restless legs,...

Painful feet and bruised legs

that a problem anyone else had? I've noticed that I'm bruising much less since being on B12...

B12-supplement causing restlessness, brain fog, anhedonia and sexual dysfunction

symtom is sexual dysfunction.I had taken small doses B12 because of deficiency, and decided to try...