Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for September 2019

MMA test

My MMA has been .7 the last two times it was tested should be under .3 but since taking the B12 my blood test for the B12 it’s self has gone from 364 to 1100...

My MMA has been .7 the last two times it was tested should be under .3 but sinc...

Zengirl65

•5 years ago

10 Replies

MS?! Doc not supportive of S.I.

Just deflated. In short, two yrs ago I developed scary neuro symptoms after being on b12 injections administered by nurse for about 6 months. I had had mild...

Just deflated. In short, two yrs ago I developed scary neuro symptoms after bein...

Benji76

•5 years ago

12 Replies

Acid!

Hi everyone, I hear & read that pernicious anaemia means low stomach acid, do we still! get acid indigestion /heartburn type of symptoms, (I'm now due for my...

Hi everyone, I hear & read that pernicious anaemia means low stomach acid, do we...

Mewsmom

•5 years ago

5 Replies

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Gp dose every other day?

Have any of you been successful at getting b12 injections every second day from your GP? I need to get an actual diagnosis of PA from GP then i will try to...

Have any of you been successful at getting b12 injections every second day from ...

Luac

•5 years ago

6 Replies

PA and exercise

Does exercise deplete b12 levels...as I exercise sometimes I get extremely tired need rest for long after dat.. is our nerve growth stagnating if we...

Does exercise deplete b12 levels...as I exercise sometimes I get extremely tired...

Gunj_redjem

•5 years ago

11 Replies

Exhausted after injections

Does anyone else feel completely exhausted 24 48hrs after b,12 injections. If so does anyone lnow why this is? Many thanks

Does anyone else feel completely exhausted 24 48hrs after b,12 injections. If so...

lesley12

•5 years ago

19 Replies

Heart symptoms and slurred speech

I’m really worried. I have my B12 every week, but can sometimes be symptomatic despite this. ATM I have really slurred speech and my heart just feels like it’s...

I’m really worried. I have my B12 every week, but can sometimes be symptomatic d...

Hayley31

•5 years ago

5 Replies

Dry eyes

Hi.. I have PA am self injecting every few weeks but have recently developed irritation in my eyes.. I think it’s dry eyes. I live in a hot country so have to...

Hi.. I have PA am self injecting every few weeks but have recently developed irr...

lifegems

•5 years ago

6 Replies

False Positive PA Test

Hey guys, I took a PA test recently (Intrinsic Factor Antibody) and it came back positive. I'm always a little skeptical so I did some more research. I...

Hey guys, I took a PA test recently (Intrinsic Factor Antibody) and it came bac...

lownskater52

•5 years ago

10 Replies

Anyone had any joy reducing or eliminating presence of parietal cell antibodies?

Has anyone had any help from visiting a gastroenterologist? Interventions (surgical or drugs?) by, or Advice from, a gastroentereologist? Can dietary...

Has anyone had any help from visiting a gastroenterologist? Interventions (surgi...

HowCome

•5 years ago

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B12 and Folate test results

Hi - my first time posting and I've had B12 and folate tested, along with other bloods. My GP is unconcerned about the results but I am worried and would...

Hi - my first time posting and I've had B12 and folate tested, along with other ...

marlathome

•5 years ago

10 Replies

Does this sound right? Really confused

In May this year my routine B12 blood test was 240 (range 170 - 800) with the lab commenting that less than 250 can be considered a deficiency in a symptomatic...

In May this year my routine B12 blood test was 240 (range 170 - 800) with the la...

chicolini

•5 years ago

9 Replies

Why the battle??

So I went back to my daughter's GP yesterday after more blood tests as to why she's exhausted all the time. They wrote to an "Endocrinologist" for advise which...

So I went back to my daughter's GP yesterday after more blood tests as to why sh...

Ritchie1268

•5 years ago

8 Replies

Serum Folate

Morning all. Should I expect this level to now be much higher than 6.3 having taken Folic acid every other day since Xmas along with my Injections? 6.3ug/L...

Morning all. Should I expect this level to now be much higher than 6.3 having ta...

Ritchie1268

•5 years ago

4 Replies

Help! Where can I purchase b12 for injecting please?

Hi I have PA and inject Methylcobalamin once a week. Can anyone advise where I can buy it from now please? I live in the UK. Thanks so much 😊

Hi I have PA and inject Methylcobalamin once a week. Can anyone advise where I c...

Agapanthus1

•5 years ago

14 Replies

Treatment beyond the loading dose of b12

I've had the loading dose of 6 injections and noticed improvement along with great tiredness on the day after the jab. As I have neuro symptoms I asked for...

I've had the loading dose of 6 injections and noticed improvement along with gre...

Damseltree

•5 years ago

15 Replies

Can not believe my GP!!!!

I’ve just got home from my “useless “ GP..... I actually can’t believe what he sat “With a straight face” and told me ??? Out of the blue after nearly 5years...

I’ve just got home from my “useless “ GP..... I actually can’t believe what he s...

Queeniz

•5 years ago

9 Replies

wrong site!!!!

Meant to post this on Thyroid forum, now do not know how to transfer it over. Any help?

Meant to post this on Thyroid forum, now do not know how to transfer it over. An...

islandlass

•5 years ago

2 Replies

Note: intended to post on TUK forum - Any input re results from blood tests appreciated

Ferritin : 65.1: 13-150 magnesium : 0.90: 0.66 - 0.99 TSH : 0.01: 0.27 - 4.20 T4 Total...

Ferritin : 65.1: 13-150 magnesium : 0.90: 0.66 ...

islandlass

•5 years ago

1 Reply

Fasting and B12 deficiency

Hi everyone, I'm fairly new to the site too and just finding out more about this. My question is: Is it safe to fast intermittently with pernicious anemia?...

Hi everyone, I'm fairly new to the site too and just finding out more about this...

Ladybird200

•5 years ago

4 Replies

Have you seen this petition?

http://chng.it/BJKc4MC4Z4

islandlass

•5 years ago

2 Replies

Acne with B12

Am due for my next injection after the loading dose of B12 I had a terrible acne reaction to my loading dose and after a couple months my skin has almost...

Am due for my next injection after the loading dose of B12 I had a terrible acne...

Lion3

•5 years ago

12 Replies

Low bp

Hello everyone I have been suffering with low blood pressure upon waking. I have to eat as soon as i wake otherwise I am lightheaded and dizzy. This has been...

Hello everyone I have been suffering with low blood pressure upon waking. I have...

Reemfali

•5 years ago

21 Replies

Can one buy b12 depot ampoules over the counter in Amsterdam?

Just a query whether anyone knows whether it is possible to get hydroxocobalmin b12 for injecting in pharmacies in Amsterdam?

Just a query whether anyone knows whether it is possible to get hydroxocobalmin ...

Judithdalston

•5 years ago

7 Replies

Can you buy Hydroxocobalin ampoules from Japan

Does anyone know if you can buy Hydroxocobalin ampoules from Japan. I have friends go there in a couple of weeks. Thanks in advance.

Does anyone know if you can buy Hydroxocobalin ampoules from Japan. I have frien...

Chocolate41

•5 years ago

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Injectable B12

Does anyone know if the NHS is likely to allow hydroxycobalamin to be bought off prescription in UK pharmacies? The NHS want to save money and I see from posts...

Does anyone know if the NHS is likely to allow hydroxycobalamin to be bought off...

Gillsie54

•5 years ago

4 Replies

Help for next appointment

Well I’ve had my loading dose of 6 injections and on folic acid 5mg... I’m feeling absolutely horrendous!! The usual symptoms, nausea, body pain, dry mouth,...

Well I’ve had my loading dose of 6 injections and on folic acid 5mg... I’m feeli...

SMXX

•5 years ago

19 Replies

B12 Ampoules - how to keep them fresh

Hi there - please can anyone tell me if i have to keep my B12 ampoules in the fridge or just in my bedroom in a cool cupboard at 71.9 degrees farenhiet - they...

Hi there - please can anyone tell me if i have to keep my B12 ampoules in the fr...

xeena

•5 years ago

2 Replies

Is it normal to need to SI twice a week?

Hi all I need to SI twice a week just to stay on top of my symptoms. If I miss a dose I experience severe brain fog and jelly legs, followed by palpitations...

Hi all I need to SI twice a week just to stay on top of my symptoms. If I miss ...

Sharon75

•5 years ago

9 Replies

B12, Vitamin D, gut bacteria and sleep

Having found sleep disturbance a major symptom of B12 deficiency particularly when my injection was due, and having Vit D deficiency too I googled this and...

Having found sleep disturbance a major symptom of B12 deficiency particularly wh...

Clags

•5 years ago

2 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2019

MMA test

MS?! Doc not supportive of S.I.

Acid!

Gp dose every other day?

PA and exercise

Exhausted after injections

Heart symptoms and slurred speech

Dry eyes

False Positive PA Test

Anyone had any joy reducing or eliminating presence of parietal cell antibodies?

B12 and Folate test results

Does this sound right? Really confused

Why the battle??

Serum Folate

Help! Where can I purchase b12 for injecting please?

Treatment beyond the loading dose of b12

Can not believe my GP!!!!

wrong site!!!!

Note: intended to post on TUK forum - Any input re results from blood tests appreciated

Fasting and B12 deficiency

Have you seen this petition?

Acne with B12

Low bp

Can one buy b12 depot ampoules over the counter in Amsterdam?

Can you buy Hydroxocobalin ampoules from Japan

Injectable B12

Help for next appointment

B12 Ampoules - how to keep them fresh

Is it normal to need to SI twice a week?

B12, Vitamin D, gut bacteria and sleep

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