Leber and B12 injections : Hi Everyone... - Pernicious Anaemi...

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Leber and B12 injections

Andrianna profile image
6 Replies

Hi Everyone,

I was diagnosed with pernicious anemia about 1.5 months ago. Injections have helped with 90% of the symptoms.

But my vision seems to be worse. My vision is blurry when I look at my phone. And I feel very high, spacey, and sensitive to light.

I was reading about Leber and B12 shots. Is this something for me to be worried about? I use Methylcobalamin.

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Andrianna profile image
Andrianna
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6 Replies
fbirder profile image
fbirder

Leber's Hereditary Optic Neuropathy (LHON) is only a problem with cyanocobalamin (and smoking and alcohol). Because it's a mutation in mitochondrial DNA you would expect there to be some family history of LHON on your mother's side, or any of your siblings.

It sounds like you may be one of those people who have an adverse reaction to methylcobalamin.

Andrianna profile image
Andrianna in reply to fbirder

I read that it’s a problem with Methylcobalamin as well. You haven’t read this? I will try to get my hands on hydroxcobalamin.

Nackapan profile image
Nackapan

I've been having g hydroxocobalamin b13 injections for 1o10&hvnetw months . I still have problems with light and noise sensitivity and visual problems. I've stopped using ibrufren as can cause light sensitivity and tint bleeds if over used which I probably have with awful headaches /migrsins. I personally don't think that's the problem and haven't found much difference. I'm hoping one of the lingerie g probkrms ti be resolved. I hope yourshe improves very quickly.

spacey1 profile image
spacey1

I felt my vision was worse at first too, but a sight test was absolutely no different, oddly. It seemed to improve over time though and I'm still seeing clearly through my old reading glasses!

Andrianna profile image
Andrianna in reply to spacey1

how long did it take to improve?

spacey1 profile image
spacey1 in reply to Andrianna

Maybe a few months? It just gradually felt better

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