New post on B12 Deficiency Info blog

[Sleepybunny]

Hi All,

Interesting new blog post on B12 Deficiency Info website.

b12deficiency.info/blog/

The person who runs the website discusses her mother's experience of B12 deficiency.

[wedgewood]

Thank you so very much for posting that ! Really brilliant !

[kmsbc]

What a great story, gives hope for the future! Thanks for posting 😊

[Mrsannabbott]

Thank you so much.I am a retired nurse of 82.

I spent many years nursing my severely ill husband getting exhausted but fighting on.My kind G.P.spotted a deficit in my B12 and 3yrs after my husbands death I at last had B12 injections 6wkly now and S.I in between unknown to my G.P.I think many carers as I was are fighting B12 deficiency as their needs are overlooked.They are used to being tired and battle on.Thank you for all your hard work on B12 .My best wishes to your Mother

[Sleepybunny in reply to Mrsannabbott]

Hi Mrsannabbott,

If you want to, you can leave this comment under the blog post so the person who runs B12 Deficiency Info can can see it.

Click on blue link in my original post at top of page.

Health Unlocked will redirect you to the B12 Deficiency Info website.

Click on blue link in HU Redirect box.

Scroll down to the bottom of the blog post to where it lists number of comments (currently 6) in small grey type. Click on the word "comments" and it should bring up all the comments.

Scroll down until you come to the "Leave a comment" box.

I agree that carers' needs are often overlooked.

Carers UK, a charity that supports carers

carersuk.org/

I'm glad to read that your GP spotted your B12 deficiency. If you want to know more about B12 deficiency, there is more info in pinned posts on this forum.

Did your GP test you for PA (Pernicious Anaemia)?

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

PAS support groups in UK

pernicious-anaemia-society....

B12 Deficiency Info website

b12deficiency.info/

B12d.org holds support meetings near Durham, UK

b12d.org/event

B12 books I found useful

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

Martyn Hooper is the chair of PAS (Pernicious Anaemia Society). Book does not show updated BNF info.

"Living with Pernicious Anaemia and Vitamin B12 Deficiency" by Martyn Hooper

Has several case studies.

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (USA authors)

Very comprehensive with lots of case studies. There is also a paediatric version of this book "Could It Be B12? Paediatric Edition: What Every Parent Needs to Know".

BSH Cobalamin and Folate Guidelines

b-s-h.org.uk/guidelines/gui...

BMJ B12 article

bmj.com/content/349/bmj.g5226

BNF

bnf.nice.org.uk/drug/hydrox...

BNF guidance on treating b12 deficiency changed recently.

pernicious-anaemia-society....

NICE CKS

cks.nice.org.uk/anaemia-b12...

I am not medically trained.

[Guiden]

Thank you so much, this was interesting and informative.

[Soulsister]

Thank you for this link, very interesting and informative x