Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,244 members • 23,422 posts

All posts for March 2019

Pelvic pain

Hi has anyone suffered from pudendal neuralgia with pins and needles. Low back pain

Hi has anyone suffered from pudendal neuralgia with pins and needles. Low back p...

Mx143

•5 years ago

5 Replies

Update

Hello. I'm 6 months on now. I'm off amitriptyline as didn't really help. Taken longer to come off than on it. I trialled it to try and reduce headaches and...

Hello. I'm 6 months on now. I'm off amitriptyline as didn't really help. Taken l...

Nackapan

•5 years ago

9 Replies

Self injection

Could anyone tell me the size of needle recommended for S.I Thankyou in advance .

Could anyone tell me the size of needle recommended for S.I Thankyou in advance ...

Mrsannabbott

•5 years ago

6 Replies

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Doctor appointment on Thursday

Hello. Just recently diagnosed with PA (I have the antibodies). I also have Graves disease. I completed x6 b12 loading doses on 1 Feb and booked in to get...

Hello. Just recently diagnosed with PA (I have the antibodies). I also have Gra...

ickyrocket

•5 years ago

2 Replies

dizziness

Does anyone know how if the dizziness and sickness subside when taking B12 medication? Thanks in advance.

Does anyone know how if the dizziness and sickness subside when taking B12 medic...

peewee1

•5 years ago

8 Replies

Folate vs folic acid

Hi, I am confused by the difference between folate and folic acid. I have read many posts suggesting a daily supplement of 400mcg folate but am struggling to...

Hi, I am confused by the difference between folate and folic acid. I have read m...

Hambledonia

•5 years ago

5 Replies

Versandapo

I ordered more B12 from Germany yesterday and had to order 2mg instead of 1mg as that’s all they had. Can anyone tell me please if that might cause me...

I ordered more B12 from Germany yesterday and had to order 2mg instead of 1mg as...

Dragonwalker

•5 years ago

15 Replies

First self injection.

I ovecame the nerves yesterday and gave myself my first jab, having got my blood tests out of the way. It was absolutely fine but I would say to those that...

I ovecame the nerves yesterday and gave myself my first jab, having got my blood...

Dragonwalker

•5 years ago

14 Replies

Has anyone used Deplin ? A form of Folate.....

It’s supposed to be an active form of Folate I think and much more effective than Folic Acid the synthetic form. Also used to treat depression as I read on...

It’s supposed to be an active form of Folate I think and much more effective tha...

Ryaan

•5 years ago

21 Replies

B12 help

Hi My sister got taken into hospital with extreme fatigue weight loss and rapid heartbeat amongst other symptoms After tests it was found she had “severe...

Hi My sister got taken into hospital with extreme fatigue weight loss and rapid...

Mancity1234

•5 years ago

16 Replies

auto injector

I am looking for a device that helps with self-injection. Something like an auto injecting device. BD 3 cc syringe.

I am looking for a device that helps with self-injection. Something like an aut...

garretttimson

•5 years ago

1 Reply

PA

Has anyone reported having Hemorrhoids/fissures with PA as a part of the ongoing symptoms

Has anyone reported having Hemorrhoids/fissures with PA as a part of the ongoing...

Mx143

•5 years ago

3 Replies

FUT2 gene mutation

Just saw a post from a few days ago regarding FUT2. What I really need to know is how to get B12 in my daughter without the side effects. Her naturopath has...

Just saw a post from a few days ago regarding FUT2. What I really need to know ...

Rummie

•5 years ago

7 Replies

Fut2 gene mutations

Has anyone here heard of this gene mutation? My 27 year old daughter did a genetic health profile and was found to have mutations on the FUT2 gene, which...

Has anyone here heard of this gene mutation? My 27 year old daughter did a gene...

Rummie

•5 years ago

1 Reply

Is ferritin the same as folate?

Hi guys Can I ask Is serum ferritin the same as serum folate? I have been having dizzy spells and heart palpitations but know my B12 and folate levels are...

Hi guys Can I ask Is serum ferritin the same as serum folate? I have been hav...

joleen19832

•5 years ago

2 Replies

Increased Symptoms

I have had pernicious anemia since 1996 and it has been well controlled with injections every 8 weeks. Approximately 12 weeks ago, I started to experience an...

I have had pernicious anemia since 1996 and it has been well controlled with inj...

emmacaemelyn

•5 years ago

10 Replies

Diagnosed with pernicious anemia by one doctor, then told by another I don’t have it?

Hi everyone, I have tried to find an answer to my question online to no avail as I’m struggling to find someone in the same situation as me. I had two blood...

Hi everyone, I have tried to find an answer to my question online to no avail as...

Sashaedavidx

•5 years ago

18 Replies

Do you know what’s in your multivitamin?

Which have done an investigation into the shady practices of Big Vitama. They have found that their multivitamins often contain just half the dose they’re...

Which have done an investigation into the shady practices of Big Vitama. They ha...

fbirder

•5 years ago

2 Replies

Vitamin B12 is so necessary in the body

Whether you have pernicious anemia or not it important for everyone to take a 1000ugs of Vitamin B12 daily. B12 lowers Homostyine which causes strokes and...

Whether you have pernicious anemia or not it important for everyone to take a 10...

victoria1000

•5 years ago

21 Replies

Pernicious Anemia - with normal B12 (NEED HELP)

Hello all, I am 26 yrs old male, 185/75 with an active/athletic lifestyle. For the last 5-10 years I have developed the following symptoms: - fatigue, tense...

Hello all, I am 26 yrs old male, 185/75 with an active/athletic lifestyle. For ...

JackFruitRob

•5 years ago

10 Replies

Help still have heaviness thats getting worse

So i posted weeks back regarding heaviness in legs, 8 weeks now since last loading dose due to diet related b12 deficiency, only symptons prior to injections...

So i posted weeks back regarding heaviness in legs, 8 weeks now since last loadi...

sbadd

•5 years ago

12 Replies

B12 injections and Bladder Irritation

Hi, ...I have just started self injecting b12 once a week. Interestingly, the day after each injection I experience bladder irritation as you would get with...

Hi, ...I have just started self injecting b12 once a week. Interestingly, the d...

UnitNitrogen73

•5 years ago

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Daughter still struggling.

Hi everyone. After many months of my daughter struggling with exhaustion, it doesn't matter if she sleeps for hours, she can get up, go straight back to bed &...

Hi everyone. After many months of my daughter struggling with exhaustion, it do...

Ritchie1268

•5 years ago

17 Replies

Cyanocobalamin Clearance

If I inject Cyanocobalamin it’s my understanding that it circulates in the blood serum until it gets utilized into cells. My question is what happens to the...

If I inject Cyanocobalamin it’s my understanding that it circulates in the blood...

Freezeframe

•5 years ago

6 Replies

Self administration of b12 injections for beginners

I have read about people slef administrating b12 and want to do the same but am unsure how to start, where is the best place to buy the b12 all the websites...

I have read about people slef administrating b12 and want to do the same but am ...

Breer

•5 years ago

2 Replies

Different B12 manufacturer, different result?

I inject myself weekly with B12 and stay stable. Last week, I went for my three monthly NHS injection and noticed that the vial was different. It was clear...

I inject myself weekly with B12 and stay stable. Last week, I went for my three ...

topazrat

•5 years ago

19 Replies

At a loss

Just found out the doctor is testing for celiac. She's obviously bot heard of PA incompetent

Just found out the doctor is testing for celiac. She's obviously bot heard of PA...

Mx143

•5 years ago

4 Replies

Advice needed on iron

Hi guys have posted in the past about my 14 year old daughter that pretty much has PA , initially low iron and b12 then positive gastric antibody test, has had...

Hi guys have posted in the past about my 14 year old daughter that pretty much h...

sbadd

•5 years ago

12 Replies

I have a question about iodine as it is controversial

my iodine showed a little low such as 39 with a range of (52-109). Would that cause symptoms of weak and shaky, dizzy and off balance? I don't think i was...

my iodine showed a little low such as 39 with a range of (52-109). Would that ...

MelanieV

•5 years ago

4 Replies

Haemoglobin level 140

Been feeling up and down but just gone through some recent results and although it’s down as normal my level is at 140 (I am male btw). I have done a bit of...

Been feeling up and down but just gone through some recent results and although ...

ukb12

•5 years ago

1 Reply

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2019

Pelvic pain

Update

Self injection

Doctor appointment on Thursday

dizziness

Folate vs folic acid

Versandapo

First self injection.

Has anyone used Deplin ? A form of Folate.....

B12 help

auto injector

PA

FUT2 gene mutation

Fut2 gene mutations

Is ferritin the same as folate?

Increased Symptoms

Diagnosed with pernicious anemia by one doctor, then told by another I don’t have it?

Do you know what’s in your multivitamin?

Vitamin B12 is so necessary in the body

Pernicious Anemia - with normal B12 (NEED HELP)

Help still have heaviness thats getting worse

B12 injections and Bladder Irritation

Daughter still struggling.

Cyanocobalamin Clearance

Self administration of b12 injections for beginners

Different B12 manufacturer, different result?

At a loss

Advice needed on iron

I have a question about iodine as it is controversial

Haemoglobin level 140

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