Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,244 members • 23,423 posts

All posts for March 2019

B12 deficiency

The link below takes you to the b12 society site which contauns a range of videos about personal experiences of b12 deficiency with pernicious aenemia. This...

The link below takes you to the b12 society site which contauns a range of video...

Alfabeta

•5 years ago

1 Reply

new symptoms, ectopic heart beat

Good afternoon, I posted on the thyroid UK website, this is the link,...

Yoshi12

•5 years ago

8 Replies

Levels and reference

Doctor didn't think anything wrong Serum B12 185ng/l range >203ng/l Serum folate 15.6.ug/l range >4.0 ugl Any ideas on this welcome

Doctor didn't think anything wrong Serum B12 185ng/l range >203ng/l Serum fol...

Mx143

•5 years ago

7 Replies

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Should I ask for PA test?

I’m not sure what to do. In 2016 I had low b12 reading and doc advised loading doses. I have recently had gastro issues and had an endoscopy which looked...

I’m not sure what to do. In 2016 I had low b12 reading and doc advised loading d...

Sunnydevon

•5 years ago

4 Replies

Does vision eventually return or has damage been done?

Hello again everyone, hoping you're all doing well. After spending weeks now SI every other day, I now feel the best I've felt for very many years. I'm still...

Hello again everyone, hoping you're all doing well. After spending weeks now SI...

Ritchie1268

•5 years ago

28 Replies

Is Oxford Biosciences a safe source for buying methylcobalamin for injection? Purity? Sterility? Regulated?

https://oxfordbiosciences.com/purchase-supplements/

garretttimson

•5 years ago

2 Replies

Purchasing B12 for injection. Oxford Biosciences.

Does anyone know if Oxford Biosciences B12 is regulated for purity and sterility in the U.K.? They sell methylcobalamin in a glass vial for reconstitution with...

Does anyone know if Oxford Biosciences B12 is regulated for purity and sterility...

garretttimson

•5 years ago

10 Replies

Borderline

My GP says I am borderline but that test was in January, she says I just need to take some b12 3 times a day and see how I feel. I don't feel borderline....

My GP says I am borderline but that test was in January, she says I just need to...

Mx143

•5 years ago

1 Reply

B12 Deficiency - GP Only Carrying Out Total Serum Test

Hi I posted on the Thyroid forum to interpret my Medichecks result & thanks to this helpful website I was advised my Active B12 levels were low (57). My...

Hi I posted on the Thyroid forum to interpret my Medichecks result & thanks to t...

RH27

•5 years ago

5 Replies

High folate

High folate low B12 can anyone help bilirubin high also

Mx143

•5 years ago

5 Replies

Need answers

Hi hope someone can help me. Since last June I started getting broken sleep And continued to get worse now I only get 2hrs a night with a sleeping tablet....

Hi hope someone can help me. Since last June I started getting broken sleep And...

Cakemaker1

•5 years ago

3 Replies

MMA test after loading doses

Hi everyone, I have PA (atrophic gastritis, positive parietial cell AB and anti IF). Despite monthly injections for about 18months my macrocytic anemia was...

Hi everyone, I have PA (atrophic gastritis, positive parietial cell AB and anti ...

expatkerry

•5 years ago

11 Replies

Is there any way to store opened glass ampoules of B12 if you don't use the contents all at once?

I have 1ml glass ampoules and take 0.3ml injections daily, so I'm using less than a 3rd of the ampoule at a time. Is there any way to safely store the...

I have 1ml glass ampoules and take 0.3ml injections daily, so I'm using less tha...

AmethystTrask

•5 years ago

8 Replies

What causes my b12 deficiency?

Hi everyone, long story short, since my last post I had an appointment with my Doctor scheduled anyway as it was for a review of the prescriptions I have in...

Hi everyone, long story short, since my last post I had an appointment with my ...

Milliemaria42

•5 years ago

4 Replies

Escalating symptoms - further tests?

Hi I need to keep this brief because I feel like I'm dying but basically I'm wanting to get my active B12 and MMA levels checked. Please could somebody tell...

Hi I need to keep this brief because I feel like I'm dying but basically I'm wan...

siamese_dream

•5 years ago

2 Replies

Elevated b12 after stopping prenatal

Hey I’m a 34 year old mum of 2. I recently had my b12 lab done and it was at 2000, but I was taking a pre natal vitamin...I had it redone 3 weeks later without...

Hey I’m a 34 year old mum of 2. I recently had my b12 lab done and it was at 200...

Hidden

•5 years ago

2 Replies

PRO BIOTIC ADVICE

Just wondered if anyone has benifited from taking a pro biotic with PA, my 14 year old daughter receives b12 injections due to part of instrinsic factor that...

Just wondered if anyone has benifited from taking a pro biotic with PA, my 14 ye...

sbadd

•5 years ago

9 Replies

Numbing Sensation

Does anyone know why even though I am recovering I've constantly got a numbing sensation in all my muscles? It seems like the colder I am the less the numbing...

Does anyone know why even though I am recovering I've constantly got a numbing s...

Cubies

•5 years ago

12 Replies

Tests for PA

Do you think it's worth asking for any other tests to see if I have PA. Are there any? I'm receiving regular injections and told I will need injections for...

Do you think it's worth asking for any other tests to see if I have PA. Are ther...

Nackapan

•5 years ago

2 Replies

Nice to have others to talk to

Hi everyone x my 15 year old daughter was diagnosed last September. Been a steep learning curve for all of us. Her symptoms come back at 10 weeks. As the next...

Hi everyone x my 15 year old daughter was diagnosed last September. Been a steep...

Oceandrive

•5 years ago

13 Replies

first SI....

Thank to all your info and support i purchased all the things needed and did my first SI... I am so happy i have done it and looking forward to getting a few...

Thank to all your info and support i purchased all the things needed and did my ...

Nikki_55

•5 years ago

4 Replies

Cyanocobalamin and Cannabis

I know that if you inject Cyanocobalamin you shouldn’t smoke cigarettes. But what about cannabis ? Don’t judge lol it’s legal here in California! Just...

I know that if you inject Cyanocobalamin you shouldn’t smoke cigarettes. But wha...

Freezeframe

•5 years ago

3 Replies

Three monthly injections of Vitamin B12 enough?

Do you find that three monthly prescribed injections of Vitamin B12 is enough? I begin to come down and experience symptoms again after only two months. Then I...

Do you find that three monthly prescribed injections of Vitamin B12 is enough? I...

RachaelWright1997

•5 years ago

56 Replies

Iron Levels

I have been feeling rubbish again over the last few weeks, really tired and all my B12 deficiency symptoms are back despite self injecting once a week. I went...

I have been feeling rubbish again over the last few weeks, really tired and all ...

Hayley31

•5 years ago

4 Replies

B12 Advice - Test Results

Hi again, I posted a week or so ago about my struggles with getting GPs to listen to me without dismissing my symptoms as 'depression' I have a non toxic...

Hi again, I posted a week or so ago about my struggles with getting GPs to liste...

LizzieRb12

•5 years ago

4 Replies

Low stomach acid

I have been having pain under my ribs and constant burping for about six months now. Countless trips to the Doctors along with my own Google research, I was...

I have been having pain under my ribs and constant burping for about six months ...

Itchyislander

•5 years ago

24 Replies

Refused routine B12 injection because I was honest about SI.

I've recently changed surgeries and 'fessed up' to my new GP that I SI, explaining how the prescribed 8 weekly injections just aren't enough for me to function...

I've recently changed surgeries and 'fessed up' to my new GP that I SI, explaini...

Discombobulated247

•5 years ago

9 Replies

Been advised to get tested for intrinsic factor antibodies

Hi, I’m new to this site, I was diagnosed with Hashimotos Oct last year and have been trying to get my dose correct however I still have symptoms:- Spacey...

Hi, I’m new to this site, I was diagnosed with Hashimotos Oct last year and have...

jamjar67

•5 years ago

12 Replies

STRANGE RASH ALL OVER HANDS ANYONE?

This only happened to me once and lasted about 2 months and then disappeared never to return again, thank goodness. Has anyone else ever had this happen to...

This only happened to me once and lasted about 2 months and then disappeared nev...

e66--

•5 years ago

5 Replies

Folate barely within range

I have b12 injections every 2 months at the advice of my haematologist, I have it in writing that this should be lifelong. If I have them every 3 months I...

I have b12 injections every 2 months at the advice of my haematologist, I have i...

Katiea100

•5 years ago

10 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2019

B12 deficiency

new symptoms, ectopic heart beat

Levels and reference

Should I ask for PA test?

Does vision eventually return or has damage been done?

Is Oxford Biosciences a safe source for buying methylcobalamin for injection? Purity? Sterility? Regulated?

Purchasing B12 for injection. Oxford Biosciences.

Borderline

B12 Deficiency - GP Only Carrying Out Total Serum Test

High folate

Need answers

MMA test after loading doses

Is there any way to store opened glass ampoules of B12 if you don't use the contents all at once?

What causes my b12 deficiency?

Escalating symptoms - further tests?

Elevated b12 after stopping prenatal

PRO BIOTIC ADVICE

Numbing Sensation

Tests for PA

Nice to have others to talk to

first SI....

Cyanocobalamin and Cannabis

Three monthly injections of Vitamin B12 enough?

Iron Levels

B12 Advice - Test Results

Low stomach acid

Refused routine B12 injection because I was honest about SI.

Been advised to get tested for intrinsic factor antibodies

STRANGE RASH ALL OVER HANDS ANYONE?

Folate barely within range

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