I went back to my GP loaded with all the information from BNF and NiCE guidelines to see what she would say face to face.
This didn’t go so well...
She said that she knows there is a lot of conflicting information out there and that the NHS are looking to stop injections completely!!! She went on to tell me that patients will be given high dosage tablets instead. When questioned about how most people don’t absorb this through tablets she just shrugged her shoulders.
This completely baffles me! Surely they can’t do this?
Has anyone else heard anything as ridiculous as this?
Written by
Jessie8
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there are, I believe some large scale studies going on that are trying high dose oral because it has been shown to be effective for significant numbers of people, eg in Canada. However, I am not aware of any plans to change guidelines to using high dose oral, so they should really still be treating you with injections. If the surgery is partaking in one of the studies it should be following protocols on medical research which would mean inviting you to take part in the study and giving you information to make an informed decision on whether or not you wish to partake.
Perhaps you GP would be interested in this article if she thinks that everyone is able to use high dose
If they are planning to stop injections, which may be true, it will be to save money and nurse appointments, and because the people in charge of the money do not 'believe' in vitamins and know nothing about B12 deficiency/Pernicious Anaemia. I have heard one of those people describe all vitamins as 'expensive pee'. Once all treatment is oral it will not be available on prescription and you will have to buy it yourself otc I should think, like many other medicines now.
Hello, jessie8. I think this issue needs watching. Here in the U.S. the National Insitutes of Health now posts a long list of studies showing oral B12 is fine, even for pernicious anemia. That makes the U.S., British Columbia, and 1 other country the only ones making that claim in official documents. But if you check the studies, you find that they measure improvement only by blood levels of B12. PA patients need to be informed when their doctors are not!
This is extremely worrying, it seems totally mad, given how bad the symptoms of untreated PA are! I guess we will all be learning how to self inject if this happens?
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Self injecting B12 do we have to inject more if under stress!
B12 injection refused
B12 injections stopped by GP.
Doctor not reinstating b12 injections
B12 injections swapped for tablets!!
