Even gastrologist dont know

[Leigh6873]

I went today and explained my fear that my body not using b12 jabs meaning isnt being used and he said its high and the injection have cured the dificiancy if its high and thrown me as he looked at me like im mad when i told him about symtoms still . I asked about the surgery i dont remember and he said they wouldnt no why as notes will be at hospital even though its not ther no more but has agreed do a stool test to check if the surgery was for ibd as it will still show i feel so defeated as iv got a right to know wat part was removed on two occasions of the small bowel and how much remains as my depression and anxiety are no better but well see what shows up can he tell if im obsorbing nutriants fom stool test too thanks

[Nackapan]

I think you can from stool sample. So you need the hospital notes to find answers to your questions. Hope you get some answers soon so you can get on track

[Gambit62 Administrator]

Leigh,

think the stool sample is more likely to be about looking for an infection that would affect absorption.

if you have injections then B12 absorption in the gut is irrelevant. Are you having problems with other nutrients?

[Leigh6873 in reply to Gambit62]

Iv giv up try understand b12 i thought if i had ileum removed il need more but nobody knows why i had the ileocolic resection at 14 so he said sample will show if iv got ibd even if its in remission then theyl go from there as its dated ten years after the first one i know about .I just want the anxiety go and motivation back iv been like this two years made worse as family avoid me sinse having mental health and i know its a big part of it iv neen heartbroke over this but still say i mither and can go out if i want so they dont ring or come for weeks at a time or months sinse my sister rang and feel iv im to get better i need to walk away due to the anxiety i have around them im just so tired mentally and physically i cant think straight sorry for rant ijust feel like i got ill and lost everything i new since happy new year to everyone x

[Gambit62 Administrator in reply to Leigh6873]

Leigh, hope that you find the answers.

If you are on injections then absorption problems in the ileum are no longer the issue as B12 is going directly in to your blood. However, getting B12 i to your blood is only one bit of the B12 story. It needs to get from your blood into your cells and then be used by your cells. So, for you the next two steps are obviously going wrong. Most likely to be the second part of the story - the B12 going from your blood into your cells.

[Sita505USA in reply to Gambit62]

Gambit

What would cause that problem, the B12 not going from blood to cells?

Thanks, Sita

[Gambit62 Administrator in reply to Sita505USA]

nobody really knows - my personal theory is that its latent genew that get activated by high serum B12. Quite possible that there is more than one mechanism involved but exactly what that mechanisms might be involved just isn't clear.

[Sita505USA in reply to Gambit62]

Bummer! Thanks

[Leigh6873 in reply to Gambit62]

Thankyou for making it so clear why didnt he know thats wat i ment but with no definate reason noted hes guessing with to many reasons for surgery the 2nd time that it may or may not be relavent i hope the stool test can give sum clue as iv looked everywere for other reasons for it besides ibd but nothing else comes up to give a clue thanks alot

[Gambit62 Administrator in reply to Leigh6873]

to be fair B12 isn't that well understood by many and he's a gastro rather than a haematologist so he'll be more likely to understand the issues that affect the gut but not necessarily have gone to the next level of processes.

[Sita505USA in reply to Gambit62]

Unfortunately even hematologists sometimes don’t understand B12. I have an oncologist/hematologist who will not give me a PA diagnosis or a prescription for B12. When I was first tested my B12 was 472 (200-900), but I had been taking an oral multivitamin for years with B12....It is very hard to find doctors or even nutritionalists who understand the entire B12 diagnosis and treatment!

[Leigh6873 in reply to Sita505USA]

U rite i thought hed send me for a scan and know wats ther and wats not lol but i went with me questions all prepared but ur right he didnt lnow what i ment i think nurse in with us did so it threw me and forgot about my list through my memory luckily iv gained emough knowladge to show i understood my concern i bet my app with pharmasist with mental health will know more thanks to u both x

[Sita505USA in reply to Leigh6873]

Good luck, rest and keep trying, it is all we can do!

[Ryaan in reply to Leigh6873]

Does your doctor not give you any medication for Anxiety and depression or hasn’t he/she deferred you to a mental health professional who can help you a lot with the Anxiety and depression side so you can then sort out other problems

[Binky68]

Have you had your active b12 tested ? You can get this done at guys in London . My unsuppkemented b12 is over 3000!!!