So I'm having a major issue. I have PA and the MTHFR gene mutation so within the year I switched my cobalamin inj. to a metylcobalamin inj. I take it once, to save money, or twice monthly depending how I feel. I had PA for probably 8 years before being diagnose at age 24. Yeah, I seriously thought some nights I was not going to wake up in the morning. I felt horrible. Just recently I started having neurological problems; nerve pains, muscle spasms, forgetfulness, dizziness, inability to pee, etc. These problems I've had in some form, mostly nerve pain, but I'm seeing a sudden worsening of the issues. Is that normal when PA is supposedly being treated. I guess I just don't know who I'm supposed to see such as a Neurologist, a hematologist, or is this lung related and should I be seeing a lung doctor because maybe oxygen isn't getting where it should be. I also have asthma and a lot of allergies; seasonal and food. I can't seem to find a expert in PA and my doc just keeps sending me for labs and every other specialists under the sun. Has anyone else with PA dealt with this and what route worked best for you?
This Sherlock is at a cross roads on ... - Pernicious Anaemi...
Pernicious Anaemia Society
19,217 members • 13,306 posts