Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for November 2018

Getting dose right with self-injecting

Hi al, thanks to the amazing help from this website my sister has now purchased the B12 and started self-injecting after lack of support from GPs to take her...

Hi al, thanks to the amazing help from this website my sister has now purchased ...

Stumpyaura

•6 years ago

8 Replies

How do I open this?

Finally decided to use 3- monthly prescribed B12 vial I have (I also self inject weekly) but I don't know how to get into it! It's different from the kind...

Finally decided to use 3- monthly prescribed B12 vial I have (I also self inject...

Curlygal

•6 years ago

8 Replies

Why can't I exercise?

Hi everybody, I've been self injecting hydroxycobalamin daily and sometimes twice daily for more than 2 years. Recently I found my iron levels were very low so...

Hi everybody, I've been self injecting hydroxycobalamin daily and sometimes twic...

LadyNZ

•6 years ago

8 Replies

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Why can't I keep my hgb level wnl?

I am unable to keep my RBC and hgb count up wnl . my hematolo gist cannot figure out why. I am getting an egd and a Colo tomorrow to r/o loosing any blood...

I am unable to keep my RBC and hgb count up wnl . my hematolo gist cannot figure...

Remozeita

•6 years ago

7 Replies

So deflated and confused

Hi I’m just back from gp app and it didn’t go in my favour in that he wants to change b12 injections back to once a month . I’m ok with that as I was supposed...

Hi I’m just back from gp app and it didn’t go in my favour in that he wants to c...

Andypandy30

•6 years ago

20 Replies

B12 Injections

Anyone self administer?

Lilylondon

•6 years ago

7 Replies

Do these symptoms coincide with B12 deficiency?

I'll try to keep this as condensed as I can since it is a bit of a long story. About 2-3 months ago I started having really bad palpitations and shortness of...

I'll try to keep this as condensed as I can since it is a bit of a long story. ...

Cricketo99

•6 years ago

5 Replies

Severe Calf Pain after loading B12

Hi I'm new here (posting) reading for months. Back in June I was tested for B12 due to extreme fatigue and tiredness. Results were as follows. B12 :...

Hi I'm new here (posting) reading for months. Back in June I was tested for B12...

dda123

•6 years ago

8 Replies

I have a theory...

Does anyone on this forum who has Autoimmune Atrophic Gastritis and injects B12 more regularly than the standard 12wks seen an increase in their iron and...

Does anyone on this forum who has Autoimmune Atrophic Gastritis and injects B12 ...

Katyluisa

•6 years ago

8 Replies

Still investigating PAS, thyroid issues, deficiencies and coeliac

Hi all. My GP recently tested for coeliac. I've tried researching my blood result in order to understand it for myself but I have to admit defeat! I'm in the...

Hi all. My GP recently tested for coeliac. I've tried researching my blood resul...

pj16

•6 years ago

6 Replies

HCBC slightly over range

Just had my bloods checked and my HCBC is slightly over range. I have PA. I self inject weekly. Does this mean that the B12 is not getting into my cells and...

Just had my bloods checked and my HCBC is slightly over range. I have PA. I self...

Hidden

•6 years ago

4 Replies

Someone help

I too, have pins and needles on scalp and arms and legs.......sooo tired and no energy and declining......blood test showed antithyroid peroxidase antibody is...

I too, have pins and needles on scalp and arms and legs.......sooo tired and no ...

Norman18

•6 years ago

8 Replies

Have I got Pernicious Anaemia?

Hi, I am new to this group. I have struggled with Hashimotos Thyroiditis since 1994 and requested my B12 be tested last year. My results were at the bottom of...

Hi, I am new to this group. I have struggled with Hashimotos Thyroiditis since 1...

millefleur40

•6 years ago

4 Replies

Problem with B12 order

Mycare don't seem to be delivering to the UK. Anyone else having problems with other companies ?

Mycare don't seem to be delivering to the UK. Anyone else having problems with ...

Cherylclaire

Forum Support•6 years ago

8 Replies

Is slurred speech linked to lack of b12?

I noticed I have started to slightly slur speech. Is this b12related?

Numbsew

•6 years ago

2 Replies

Confused

Hi, hoping someone can advise. I am going to request a b12 test from my GP after suffering many years of unusual symptoms which include the long list...

Hi, hoping someone can advise. I am going to request a b12 test from my GP afte...

Tweddelly

•6 years ago

6 Replies

Does low b12 mean I have Pernicious Anemia ?

Hi everyone, I visited my GP after suffering for along time with symptoms of constant Nausea , fatigue , swollen fingers and weight loss (10lb in 6 weeks)...

Hi everyone, I visited my GP after suffering for along time with symptoms of c...

Angelic82

•6 years ago

6 Replies

Medical notes

If i had gangreous bowel op age 3 why would i have had a ileocolic resection age 14 and when b12 high wat other test can i ask for to check absorbtion or not...

If i had gangreous bowel op age 3 why would i have had a ileocolic resection age...

Leigh6873

•6 years ago

3 Replies

Mushrooms

Hi All Just reading an article in today’s Sunday Times that from this week Sainsbury’s will be selling mushrooms with b12 and vitamin D within claiming that it...

Hi All Just reading an article in today’s Sunday Times that from this week Sains...

Alfabeta

•6 years ago

7 Replies

What vit d dose to get my levels up

I feel so weak even tho I’m si I still don’t feel right . I am so weak and tired again . I got all bloods done last week thinking it was folate but when I rang...

I feel so weak even tho I’m si I still don’t feel right . I am so weak and tired...

Andypandy30

•6 years ago

11 Replies

UK companies offering b12 injections

Hi guys,I was wondering about the legality or grey area of the growing numbers of visiting b12 "technicians"offering to inject for between £40/50. I have been...

Hi guys,I was wondering about the legality or grey area of the growing numbers o...

dandino100

•6 years ago

7 Replies

B12 and weight

I have posted on here previously about having put on over a stone in weight since starting on B12 injections and after every injection I feel as if I retain...

I have posted on here previously about having put on over a stone in weight sinc...

Fiona1039

•6 years ago

3 Replies

Veganism

Hi All Yet again a newspaper (this Saturdays Times) is running a supplement promoting a vegan diet. There is a section on the dangers of a vegan diet and list...

Hi All Yet again a newspaper (this Saturdays Times) is running a supplement prom...

Alfabeta

•6 years ago

4 Replies

Make sense of my results

Hi My levels seem to be in range but I still having symptoms of tingling / pins and needles in my arms and legs, dry skin on my shins and face (only temples...

Hi My levels seem to be in range but I still having symptoms of tingling / pins ...

Lyndsay80

•6 years ago

15 Replies

I’m very new to all this.

Hello. I’m new to this group and would like to share my story. I had my annual exam in late March. I had labs drawn and B12 was checked as I had been low once...

Hello. I’m new to this group and would like to share my story. I had my annual e...

DiscoBunny

•6 years ago

2 Replies

mRI results when lost use of leg could this be caused by B12 deficiency

Last year I ended up going to hospital as lost use of leg, these were results of MRI, I since found out GP should of revered me to spinal clinic but sent me to...

Last year I ended up going to hospital as lost use of leg, these were results of...

Pascha1

•6 years ago

3 Replies

Low B12

Hi everyone, I have had my B12 retested and my level is 137 - (150 - 900 range) Tested negative for instrinsic factor. Doctor has suggested that I start...

Hi everyone, I have had my B12 retested and my level is 137 - (150 - 900 range)...

Purplestaffie

•6 years ago

2 Replies

Advice on active B12 levels and symptoms please

Hello I’ve been suffering with many of the symptoms associated with anaemia for at least a year now (extreme tiredness, aches and pains, dizziness, nausea,...

Hello I’ve been suffering with many of the symptoms associated with anaemia for ...

Piperh

•6 years ago

5 Replies

Itchy and pins and needles after loading jabs

Hi, I have just finished my 6 loading doses of b12 after a blood test showed low levels pf b12. I originally went to the doctor with pins and needs and...

Hi, I have just finished my 6 loading doses of b12 after a blood test showed lo...

Itchyislander

•6 years ago

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PC Antbodies

Although my b12 was 108 and I tested positive for parietal cell antibodies, my internist and my gastroenterologist both claim in my charts that I do not have...

Although my b12 was 108 and I tested positive for parietal cell antibodies, my i...

Hipgnosis

•6 years ago

4 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2018

Getting dose right with self-injecting

How do I open this?

Why can't I exercise?

Why can't I keep my hgb level wnl?

So deflated and confused

B12 Injections

Do these symptoms coincide with B12 deficiency?

Severe Calf Pain after loading B12

I have a theory...

Still investigating PAS, thyroid issues, deficiencies and coeliac

HCBC slightly over range

Someone help

Have I got Pernicious Anaemia?

Problem with B12 order

Is slurred speech linked to lack of b12?

Confused

Does low b12 mean I have Pernicious Anemia ?

Medical notes

Mushrooms

What vit d dose to get my levels up

UK companies offering b12 injections

B12 and weight

Veganism

Make sense of my results

I’m very new to all this.

mRI results when lost use of leg could this be caused by B12 deficiency

Low B12

Advice on active B12 levels and symptoms please

Itchy and pins and needles after loading jabs

PC Antbodies

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