Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for November 2018

Revive clinics

Hi Has anybody had an injection at one of the revive clinics? My level in June was 217 and doctor refused me injections and because I was separate I started...

Hi Has anybody had an injection at one of the revive clinics? My level in June...

mistygrey

•6 years ago

12 Replies

Dicount code need for Viapath Blood tests please

Hi I was given a link to get 10% discount but it appears to have run out, I am about to order my tests and it’s £105 so a discount would help me out quite a...

Hi I was given a link to get 10% discount but it appears to have run out, I am ...

Pascha1

•6 years ago

4 Replies

Confused after conflicting tests, diagnoses, etc.?

I've posted on here a few other times and have honestly felt like the advice I've received here has been more helpful than many of my doctors' appointments!...

I've posted on here a few other times and have honestly felt like the advice I'v...

hummingbird88

•6 years ago

1 Reply

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Refused jab because I told nurse I’d self injected

Went for my 3 monthly injection and told nurse I had fatigue, neuropathy in hands and feet, swollen sore tongue and disorientation when turning my head and...

Went for my 3 monthly injection and told nurse I had fatigue, neuropathy in hand...

Curlywoo

•6 years ago

4 Replies

Weight gain

Hi I was put on cyanocobalamin tablets back in may for vitamin b12 defect but I havnt got petitions anemia. I’ve gained 2 stone since may and still can’t shake...

Hi I was put on cyanocobalamin tablets back in may for vitamin b12 defect but I ...

Hildadog123

•6 years ago

5 Replies

Folate advice please

Hi, I am due to have my first VitB12 injection on Monday and wondered if I should talk to the nurse about taking folate? I notice from many posts on the sites...

Hi, I am due to have my first VitB12 injection on Monday and wondered if I shoul...

Hambledonia

•6 years ago

3 Replies

IF high values

Hi. I have been diagnosed with pernicious anaemia in February 2018. I receive injection every 3 months, although i feel i need them monthly. Just tested my...

Hi. I have been diagnosed with pernicious anaemia in February 2018. I receive in...

Gumball77

•6 years ago

6 Replies

GP recommendations?

Hello, Does anyone know a PA sympathetic G.P. in South East London? Or London who doesn’t have a tight catchment area? Mine thinks I am a total nutter despite...

Hello, Does anyone know a PA sympathetic G.P. in South East London? Or London wh...

Dottyspotspot

•6 years ago

15 Replies

Broccoli - the answer to B12 deficiency

In the light of the Health Minister's comments on B12 deficiency guess what I had for dinner tonight :) Just think after having had P.A for 46 years...

In the light of the Health Minister's comments on B12 deficiency guess what I ha...

clivealive

Forum Support•6 years ago

12 Replies

Need help with lab results. PCP didn't even mention results!

Good Morning everyone! I'm new here and need a little bit of help and advice. I just received my lab results and spent over 8 hours researching online what...

Good Morning everyone! I'm new here and need a little bit of help and advice. I ...

Cebner

•6 years ago

5 Replies

How reliable is the serum ferritin test?

Does anyone know if this is usually a reliable test (e.g. compared to the serum B12). I thought it was but in my latest blood test results the lab has queried...

Does anyone know if this is usually a reliable test (e.g. compared to the serum ...

natcap1

•6 years ago

10 Replies

Vaping B12

Hi all I saw this article today: https://www.sciencealert.com/vaping-vitamins-is-a-new-craze-but-experts-say-the-science-is-flimsy-and-outdated What does...

Hi all I saw this article today: https://www.sciencealert.com/vaping-vitamins-is...

fionasloane

•6 years ago

9 Replies

SI air bubble dread

Hurrah, finally finally found courage to self inject B12 after neuro symptoms. All encouragement, advice, support and about process from this forum gratefully...

Hurrah, finally finally found courage to self inject B12 after neuro symptoms. ...

JillMaryC

•6 years ago

17 Replies

B12 deficiency

Hi I am anewbie with B12 deficiency. Thanks for the add.

floweryfield

•6 years ago

3 Replies

So confused

Just a query is a volvulus ,intestinal malabsorption and ileocolic resection all seperate conditions or a complication of the same as this is why i have...

Just a query is a volvulus ,intestinal malabsorption and ileocolic resection all...

Leigh6873

•6 years ago

2 Replies

Where to buy methylcobalamin 5,000mcg/ml in the US ?

I have to go see a naturopath to get this treatment weekly which has been the only way for me to feel the best. I've been doing so for a few years. If I...

I have to go see a naturopath to get this treatment weekly which has been the on...

ravel44

•6 years ago

5 Replies

pain in pins and needles

Hi everyone, so i recently found out my b12, folate and ferritin are low so have been supplementing with slow iron, b vitamins, methafolate and iv just...

Hi everyone, so i recently found out my b12, folate and ferritin are low so hav...

sparklefairy

•6 years ago

3 Replies

Anyone with this problem

Hey guys been having the leg pains n also to my waist n thigh just my left leg been having this pains for a month now that at times it gets so hard to walk r...

Hey guys been having the leg pains n also to my waist n thigh just my left leg b...

Dandy92

•6 years ago

4 Replies

Spots after B12 injections

I have just finished B12 injections 3 times per week over 2 weeks. I finished on the Friday and on the Sunday I came out in white spots all over my head....

I have just finished B12 injections 3 times per week over 2 weeks. I finished o...

KaiserKasie001

•6 years ago

5 Replies

PA and treatment

Hi all. I have a question. I was diagnosed with PA a year and a half ago. My b12 had all but bottomed out and IF was positive and thru the roof. Because I had/...

Hi all. I have a question. I was diagnosed with PA a year and a half ago. My b12...

Wowo23

•6 years ago

4 Replies

Advise re my teen daughter

Hi I’m usually looking for advise for myself but it’s my 14 yr old . I posted previously about my concerns for her in June of this year as I had noticed a...

Hi I’m usually looking for advise for myself but it’s my 14 yr old . I posted pr...

Andypandy30

•6 years ago

6 Replies

B12 injections

I was just wondering if anybody could help me out a little bit , I’ve been feeling very tired and unwell for a few months now. I went to the doctors and then...

I was just wondering if anybody could help me out a little bit , I’ve been feeli...

Ells123

•6 years ago

9 Replies

Is PA heretedary ?

I have just seen my fathers death certificate and he had PA, I have suspected I have b12 deficiency for a while but b12 is in range, 1st one was 287 the next...

I have just seen my fathers death certificate and he had PA, I have suspected I ...

Pascha1

•6 years ago

36 Replies

Nerve damage

I’ve read somewhere that b12 deficiency can affect your nerves. If you damage a nerve will it take longer to heal and hurt more if your b12 deficient?

I’ve read somewhere that b12 deficiency can affect your nerves. If you damage a...

Hidden

•6 years ago

4 Replies

Serious hair loss.

Serious hair loss what could be the possible cause of my serious hair loss in the past one year.? It's a very worrisome issue for me now.Help me please

Serious hair loss what could be the possible cause of my serious hair loss in t...

Mamaapoo

•6 years ago

1 Reply

Flu

Hello, i have had flu for last 5 days and have been wiped off my feet, my last bloods were in sept and were 217 , still not injections from doctor, trouble is,...

Hello, i have had flu for last 5 days and have been wiped off my feet, my last b...

Padeficiant12

•6 years ago

1 Reply

B12 retested

Hi all I was diagnosed with b12 deficiency 3 months ago and had a b12 level of 104 (normal range over 130). I had 6 loading doses and after the 6th I found my...

Hi all I was diagnosed with b12 deficiency 3 months ago and had a b12 level of ...

Sbmaurice

•6 years ago

4 Replies

Diagnosing PA

Hi, All my bloods were normal (including negative anti bodies for intrinsic factor) other than my Vit B12 at 130. I then took 1000mg of Vit B12 sublingually...

Hi, All my bloods were normal (including negative anti bodies for intrinsic fact...

Hambledonia

•6 years ago

6 Replies

Advice please

I have recently had a private thyroid test which I posted on the thyroid forum, where I have been advised to be tested for PA, Coeliac, homocysteine and MMA....

I have recently had a private thyroid test which I posted on the thyroid forum,...

diamondgirl9022

•6 years ago

7 Replies

PLEASE HELP WITH SUSPECTED B12 FUNCTIONAL DEFICIENCY

I have been very ill with all the signs of B12 deficiency and not getting any help from doctors as my B12 level is 1,100mg although prior to testing i had...

I have been very ill with all the signs of B12 deficiency and not getting any he...

jarlethblue

•6 years ago

13 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2018

Revive clinics

Dicount code need for Viapath Blood tests please

Confused after conflicting tests, diagnoses, etc.?

Refused jab because I told nurse I’d self injected

Weight gain

Folate advice please

IF high values

GP recommendations?

Broccoli - the answer to B12 deficiency

Need help with lab results. PCP didn't even mention results!

How reliable is the serum ferritin test?

Vaping B12

SI air bubble dread

B12 deficiency

So confused

Where to buy methylcobalamin 5,000mcg/ml in the US ?

pain in pins and needles

Anyone with this problem

Spots after B12 injections

PA and treatment

Advise re my teen daughter

B12 injections

Is PA heretedary ?

Nerve damage

Serious hair loss.

Flu

B12 retested

Diagnosing PA

Advice please

PLEASE HELP WITH SUSPECTED B12 FUNCTIONAL DEFICIENCY

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