Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for October 2018

Need Help with Blood test results

Hi I have just joined this group on behalf of my 93 year old mother, she has several health issues and is therefore on different medications including steroids...

Hi I have just joined this group on behalf of my 93 year old mother, she has sev...

4sibbs

•6 years ago

2 Replies

Pernicious Anaemia Guidelines

I too am a new subscriber to this forum. I was diagnosed with Pernicious Anaemia about 10 weeks ago after going to my GP complaining of numbness in my fingers...

I too am a new subscriber to this forum. I was diagnosed with Pernicious Anaemi...

Swinging-Chandelier

•6 years ago

7 Replies

GPC Antibodies and Malabsorption

Hi, I was curious if there is any information on what nutrients are not easily absorb if GPC antibodies are present along with low B12. I had B12 of 88 and...

Hi, I was curious if there is any information on what nutrients are not easily a...

Lavender-Flowers

•6 years ago

3 Replies

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Question on sublinguals and injections.

I’ve been taking monthly injections since March ‘17 but still have symptoms before my next shot. Is it ok to take 3000mg sublingual daily to maintain? Or...

I’ve been taking monthly injections since March ‘17 but still have symptoms befo...

Betterdayz

•6 years ago

7 Replies

Given prescription for 1000mcg cyanocobalamin tablets

Hi. I read the forum here daily and when I read this info below wondered how my GP managed to provide me with 1000mcg cyanocobalamin tablets daily if they...

Hi. I read the forum here daily and when I read this info below wondered how my...

jib70

•6 years ago

13 Replies

Still cannot get injections reinstated

Hello, Me again, sorry for all posts, following a letter to my practice manager, i had a 1/2 hour appointment with a nurse practitioner this evening, she wont...

Hello, Me again, sorry for all posts, following a letter to my practice manager...

Padeficiant12

•6 years ago

20 Replies

Hearing loss

Hi, has anybody else suffered hearing loss due to low b12/PA. I had a late diagnosis, after years of low b12 over the years I have been told this has...

Hi, has anybody else suffered hearing loss due to low b12/PA. I had a late diagn...

Sandra_Holmes_R

•6 years ago

4 Replies

B-12 Deficiency

I have been treated for years for B-12 Deficiency, with both injections and supplements by mouth. Recently my MD checked my level and it was elevated to about...

I have been treated for years for B-12 Deficiency, with both injections and supp...

Shashapoo

•6 years ago

3 Replies

started cyancobalamin pills. how should i feel?

hi all id just like to add my story. iv had lots of the symptoms for a long time but mostly over the last 5months its got worse, 2months ago i went to drs with...

hi all id just like to add my story. iv had lots of the symptoms for a long time...

Awksguy

•6 years ago

6 Replies

Blood pressure

I have always struggled with low BP, often has been difficult to measure, even at doctors. My BP is often 90/60 which makes me feel awful. Since B12/B6/B1...

I have always struggled with low BP, often has been difficult to measure, even a...

Justiina

•6 years ago

14 Replies

GP stopping my B12 injections. Replacing with oral B12

Hi. At my last appointment for my B12 injection, the nurse explained that new research had revealed that oral B12 could now replace injections. I explained...

Hi. At my last appointment for my B12 injection, the nurse explained that new re...

Holly2201

•6 years ago

46 Replies

First b12 injection.

Just had my first b12 injection. Feel fine. He said it will sting, but after what I've been through this year, believe me it was nothing! Hoping for good...

Just had my first b12 injection. Feel fine. He said it will sting, but after wha...

Gardeningbuff

•6 years ago

7 Replies

B12 shots made my condition worst. Is that normal?

I am a 30 year male. I have been sufferings from dizziness, fatigue and blurred vision for 3 years. Recently my doctor tested me for b12. B12-LC...

I am a 30 year male. I have been sufferings from dizziness, fatigue and blurred ...

mk801

•6 years ago

3 Replies

Which tablets to use?

Hi everyone, I've just been diagnosed with a folate deficiency (2, range above 3). It could be diet related as I've recently been unwell and struggled to cook...

Hi everyone, I've just been diagnosed with a folate deficiency (2, range above 3...

AmieL

•6 years ago

1 Reply

Possible PA

Hello all. Around 3/4 years ago I visited my GP for fatigue. After a blood test the doctor brought me back in and explained that my b12 levels were low and...

Hello all. Around 3/4 years ago I visited my GP for fatigue. After a blood test ...

Sultanascone

•6 years ago

3 Replies

Non specific gastritis, I’m not really sure what that means! 😏

Hi everyone, I had a positive Intrinsic factor test 3 yrs ago along with a low b12 serum level, I was then diagnosed with PA (after many years of various...

Hi everyone, I had a positive Intrinsic factor test 3 yrs ago along with a low b...

Sleepyfromwales

•6 years ago

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Letter to doctors no hope :(

I wrote a letter and hand delivered on Tuesday, today i received a phone call, from the practice manager, i spoke with her and she basically said that because...

I wrote a letter and hand delivered on Tuesday, today i received a phone call, f...

Padeficiant12

•6 years ago

8 Replies

Vision problems

Hi guys, what like to know what vision problems yous suffered with low b12 levels? Also other symptoms. Hope yous are well x

Hi guys, what like to know what vision problems yous suffered with low b12 level...

Shannonf247

•6 years ago

2 Replies

VitaminQuick

Anyone bought Methyl-B12 from VitaminQuick

prubooth

•6 years ago

8 Replies

Worse after high dose methylcobalamin injections and supplementation?

Hi everyone! It’s so helpful to have a forum like this :) I wasn’t diagnosed with PA but as I was always exhausted my doctor recommended supplementing with...

Hi everyone! It’s so helpful to have a forum like this :) I wasn’t diagnosed w...

Happyinthesun

•6 years ago

1 Reply

Don't know what to do next!

I'm hesitant to post again because I don't want to be a nuisance. On the other hand I'm feeling low, confused and don't know what my next move should be. Being...

I'm hesitant to post again because I don't want to be a nuisance. On the other h...

pj16

•6 years ago

5 Replies

Worsening breathing problems due to B12 deficiency?

Hi guys, I've been having a number of symptoms for the past 4-6 months which have increasingly become worse. Most notably, I've had gastritis-like symptoms,...

Hi guys, I've been having a number of symptoms for the past 4-6 months which hav...

DaveT81

•6 years ago

6 Replies

Positive for parietal cell antibodies

Hi everyone, I'm 30 years old and have been seeking a reason for feeling incredibly ill with a whole range of symptoms for over a decade. After using Blue...

Hi everyone, I'm 30 years old and have been seeking a reason for feeling incredi...

Sick-and-Tired

•6 years ago

2 Replies

Appreciate some advice

Hi again I normally SI once a week and for 18months this has worked well Recently had to wait for B12 to arrive and struggled during the wait and found I...

Hi again I normally SI once a week and for 18months this has worked well Recen...

clairemallen123

•6 years ago

2 Replies

Is pernicious anaemia likely?

Hi everyone, I'm 20 and I've been experiencing intense B12 deficiency symptoms since December, and have been housebound or bedbound due to muscle weakness and...

Hi everyone, I'm 20 and I've been experiencing intense B12 deficiency symptoms s...

rebecca98

•6 years ago

4 Replies

Where to inject

Hi I wanted to ask ? Where on the thigh is the correct position for self injections. Iv watched a lot of videos on YouTube . Some are on the front but I have...

Hi I wanted to ask ? Where on the thigh is the correct position for self injecti...

Andypandy30

•6 years ago

8 Replies

B12 symptoms but not sure if it's b12 deficiency?

Hello, it's been months that I don't feel well and i'm really worried about my health. I'm gonna describe my story so you can maybe help me with this. First of...

Hello, it's been months that I don't feel well and i'm really worried about my h...

Hidden

•6 years ago

1 Reply

Medichecks blood results - still unsure what's causing symptoms.

Hi everyone. I received my Medichecks results yesterday and am none the wiser about what the root cause of my symptoms might be. I now understand how some...

Hi everyone. I received my Medichecks results yesterday and am none the wiser ab...

pj16

•6 years ago

10 Replies

Stomach issues

Hello, I haven't posted for a while. I do my own b12 injections once a week. For the past 6 months I've been having stomach problems- mostly pain. It's...

Hello, I haven't posted for a while. I do my own b12 injections once a week. For...

Curlygal

•6 years ago

6 Replies

What to expect... advice needed, thanks!

Hi guys, I start the first of my loading doses tomorrow. What can I expect in terms of recovery ? I’m constantly tired and drained, no energy, breathless and...

Hi guys, I start the first of my loading doses tomorrow. What can I expect in te...

Shannonf247

•6 years ago

20 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2018

Need Help with Blood test results

Pernicious Anaemia Guidelines

GPC Antibodies and Malabsorption

Question on sublinguals and injections.

Given prescription for 1000mcg cyanocobalamin tablets

Still cannot get injections reinstated

Hearing loss

B-12 Deficiency

started cyancobalamin pills. how should i feel?

Blood pressure

GP stopping my B12 injections. Replacing with oral B12

First b12 injection.

B12 shots made my condition worst. Is that normal?

Which tablets to use?

Possible PA

Non specific gastritis, I’m not really sure what that means! 😏

Letter to doctors no hope :(

Vision problems

VitaminQuick

Worse after high dose methylcobalamin injections and supplementation?

Don't know what to do next!

Worsening breathing problems due to B12 deficiency?

Positive for parietal cell antibodies

Appreciate some advice

Is pernicious anaemia likely?

Where to inject

B12 symptoms but not sure if it's b12 deficiency?

Medichecks blood results - still unsure what's causing symptoms.

Stomach issues

What to expect... advice needed, thanks!

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