Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for August 2018

10 months since first 3 shots of B12 and this has caused cystic acne on my face.

Hi all, its been 10 months since I started the B12 shots which were every week. Now I am on 3 monthly shots and since then I am getting really bad cystic acne...

Hi all, its been 10 months since I started the B12 shots which were every week. ...

KrishnaChawda

•6 years ago

9 Replies

Doc says no to more B12

Hello Everyone !!! I'm relatively new here but have posted before. In May I was diagnosed with PA with a b12 level of 153. I was given weekly injection of b12...

Hello Everyone !!! I'm relatively new here but have posted before. In May I was ...

maymay28

•6 years ago

13 Replies

B12 deficiency

Hi, I’m new on here and hoped for some advice. I’ve had low levels of vitamin B12 for years and I’m really struggling to get my GP to help. Each time my blood...

Hi, I’m new on here and hoped for some advice. I’ve had low levels of vitamin B1...

Ljscott

•6 years ago

18 Replies

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B12 or Iron? advice needed please

Hi please can anyone offer advice, i was sub lingually supplementing B12 and my levels were 407 on the serum test, then they did a blood test in April and said...

Hi please can anyone offer advice, i was sub lingually supplementing B12 and my ...

Mandamoo12

•6 years ago

11 Replies

self injecting

Was wondering if someone could help. Had enough of my doctor refusing to cut my B12 jabs from 12 weekly and have decided to self inject now. I Have found a...

Was wondering if someone could help. Had enough of my doctor refusing to cut my ...

KeithR

•6 years ago

7 Replies

What is a useful dosage for folate, ferritin, magnesium (and others?) to assist the B12 injections?

None of the health professionals I have seen have mentioned folate, ferritin, magnesium, or anything else in relation to B12 deficiency, but I've seen them...

None of the health professionals I have seen have mentioned folate, ferritin, ma...

Dopey-Grumpy-Sleepy

•6 years ago

14 Replies

B12 jab not due til 3rd Sept. Holiday next week

Hi. Any advice would be good. I have a 3 monthly B12 injection, and my goodness how I had to fight for that. With two weeks to go I am struggling. Pins and...

Hi. Any advice would be good. I have a 3 monthly B12 injection, and my goodness ...

Dee215

•6 years ago

6 Replies

Early satiety with PA?

Still sitting it out with my GP as to my actual diagnosis, but one thing I'm wondering about in part as far as the two types of gastric antibodies is, is...

Still sitting it out with my GP as to my actual diagnosis, but one thing I'm won...

nifuarain-63

•6 years ago

2 Replies

New as-yet-unnamed 'condition' and 'protocol' coming out for self-injectors...

For a year now I have been trying to get my MMA and Homocysteine tested by the NHS and they have ignored and refused. I asked my doctor to speak to the lab and...

For a year now I have been trying to get my MMA and Homocysteine tested by the N...

Hidden

•6 years ago

51 Replies

Ferritin low and supplements

Hi guys been a while since I posted. Have underactive thyroid , TSH is suppressed now ( feeling ok) b12 now sorted ( actually a bit high 1026) so slowing down...

Hi guys been a while since I posted. Have underactive thyroid , TSH is suppresse...

Ndobins

•6 years ago

11 Replies

Methylcobalamin vs hydroxocobalamin

Apparently methylcobalamin is better to take than hydroxocobalamin. Is this true.? I have been taking hydroxocobalamin 1mg per 1ml with a strong folate...

Apparently methylcobalamin is better to take than hydroxocobalamin. Is this true...

toph

•6 years ago

7 Replies

Ferrous Sulphate

I would just like to thank yous for the infomation about ferrous sulphate adding to your b12. As I explained I was still so so tired even after injection so I...

I would just like to thank yous for the infomation about ferrous sulphate adding...

Kittyjack

•6 years ago

2 Replies

BPPV/Vertigo & B12 or vit D deficiency/anaemia?

Hi guys, If anybody saw my pretty extensive first post, you'll know I'm fairly new to all of this. So.. my most recent question is: is vertigo an unfortunate...

Hi guys, If anybody saw my pretty extensive first post, you'll know I'm fairly ...

DaveT81

•6 years ago

2 Replies

Vitamin B12....do I have a say ??

Hello. I have having Vitamin B12 injections for a few years. I am a senior (& carer). I have an underactive thyroid & Sjorgren's syndrome (both which cause me...

Hello. I have having Vitamin B12 injections for a few years. I am a senior (& ca...

decoupagelady

•6 years ago

13 Replies

normal level

hi could any one advise me on what a normal level is i had bloods done 2 weeks before my injection was due and they came back at 200 and my new gp said they...

hi could any one advise me on what a normal level is i had bloods done 2 weeks b...

elainelxx1976xx

•6 years ago

9 Replies

Just a little moan

So since being diagnosed a couple of months ago I have had all my loading doses and do feel a little less tired. Apparently my B12 was 70 and told I shouldn't...

So since being diagnosed a couple of months ago I have had all my loading doses ...

RJGFiona

•6 years ago

34 Replies

Two different needle sizes for injections - why

Why do people use two different needles sizes for B12 injections. I can understand the use of a smaller needle 23g (blue) for the actual injection but why use...

Why do people use two different needles sizes for B12 injections. I can understa...

carer999

•6 years ago

4 Replies

Ordered the wrong amount of hydroxycobalamin

I ordered 10ml ampules in 2mg instead of 1 ml in 1 ml. I’ve bought enough to last me a year. The site was a chemist in Belgium so it was lost in translation!...

I ordered 10ml ampules in 2mg instead of 1 ml in 1 ml. I’ve bought enough to las...

Livemusicians

•6 years ago

8 Replies

Normal levels for intrinsic factor antibody?

Hi, I was told a couple of weeks ago that despite having a normal b12 ( approx300, I had been taking oral B12) I had pernicious anaemia. My intrinsic factor is...

Hi, I was told a couple of weeks ago that despite having a normal b12 ( approx30...

Jenkinsaj

•6 years ago

11 Replies

Muscle loss?

Does anybody experiences muscle loss due to B12 and Vit D deficiency? I can see muscle loss in my left thigh, and it looks thinner than my right thigh. Also...

Does anybody experiences muscle loss due to B12 and Vit D deficiency? I can see ...

VaishaliG

•6 years ago

6 Replies

Suffering from Tinnitus, Vertigo, Hearing Loss? Ototoxic Drugs might be the cause. Research Paper / Drugs List Here.

Hi All We often hear in the forum from those who are dogged by tinnitus and dizziness...and perhaps hearing loss, despite (apparently) having frequent enough...

Hi All We often hear in the forum from those who are dogged by tinnitus and dizz...

Foggyme

Administrator•6 years ago

6 Replies

Self injecting when unwell. Is it Ok

I haven't been feeling well all week and still getting worse. Very tired, hot and cold, nausea, bloated and windy, bad taste in my mouth, not feeling like...

I haven't been feeling well all week and still getting worse. Very tired, hot an...

carer999

•6 years ago

2 Replies

Self injectors, how do you keep the needle upright

I've done about 12 injections now, and just can't work out: 1. How you push the needle in, without it changing angle halfway through... which is very painful....

I've done about 12 injections now, and just can't work out: 1. How you push the ...

Yellowkangaroo

•6 years ago

13 Replies

Iron tablets

Is it safe to take low iron tablets with b12 injections for pernicious anemia

babs67

•6 years ago

10 Replies

Supplementing

Should I be taking a good b complex with injections also a multivitamin as well as the folic acid I take daily for my B12d injections to work properly

Should I be taking a good b complex with injections also a multivitamin as well...

Andypandy30

•6 years ago

8 Replies

Weird & unusual B12 symptoms? Or something else?

I have a couple of symptoms that I'm not sure are related to B12d so I thought I would ask all you lovely people if any of you have experienced them, it's so...

I have a couple of symptoms that I'm not sure are related to B12d so I thought I...

Alesia

•6 years ago

2 Replies

Nitrous Oxide Tragedy

Admins, is there some way of reaching out to this young lady do you think? Surely if ever there were a case for urgent b12 therapy....!!...

Admins, is there some way of reaching out to this young lady do you think? Surel...

Portia1974

•6 years ago

2 Replies

Cyanocobamalin B12 Injections

Joy O Joy my prescription request on 7th July for cyanocobamalin B12 (Cytamen) injections has at last been "filled" by the pharmacy. However when my wife Gill...

Joy O Joy my prescription request on 7th July for cyanocobamalin B12 (Cytamen) i...

clivealive

Forum Support•6 years ago

14 Replies

Does this sound familiar to anybody?

Hi guys, Obviously new here, my first post - I've recently been to a private GP here in the UK (primarily because I was getting nowhere fast with my own)....

Hi guys, Obviously new here, my first post - I've recently been to a private G...

DaveT81

•6 years ago

16 Replies

Thanks for advice, I now need some more!

Thanks for previous advice on treating B12 and atrophic gastritis. I have had two weeks of loading doses for B12. My GP was not sure whether to go down the 3...

Thanks for previous advice on treating B12 and atrophic gastritis. I have had tw...

natcap2

•6 years ago

9 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2018

10 months since first 3 shots of B12 and this has caused cystic acne on my face.

Doc says no to more B12

B12 deficiency

B12 or Iron? advice needed please

self injecting

What is a useful dosage for folate, ferritin, magnesium (and others?) to assist the B12 injections?

B12 jab not due til 3rd Sept. Holiday next week

Early satiety with PA?

New as-yet-unnamed 'condition' and 'protocol' coming out for self-injectors...

Ferritin low and supplements

Methylcobalamin vs hydroxocobalamin

Ferrous Sulphate

BPPV/Vertigo & B12 or vit D deficiency/anaemia?

Vitamin B12....do I have a say ??

normal level

Just a little moan

Two different needle sizes for injections - why

Ordered the wrong amount of hydroxycobalamin

Normal levels for intrinsic factor antibody?

Muscle loss?

Suffering from Tinnitus, Vertigo, Hearing Loss? Ototoxic Drugs might be the cause. Research Paper / Drugs List Here.

Self injecting when unwell. Is it Ok

Self injectors, how do you keep the needle upright

Iron tablets

Supplementing

Weird & unusual B12 symptoms? Or something else?

Nitrous Oxide Tragedy

Cyanocobamalin B12 Injections

Does this sound familiar to anybody?

Thanks for advice, I now need some more!

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