Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for August 2018

Am I on the right track? B12 deficiency

Hi, I am posting my blood reports here. These were done a month back. 1. B12 - 134 ( very very low ) 2. Vit D - 10.1 ( severe deficiency ) 3. Calcium - 8.4....

Hi, I am posting my blood reports here. These were done a month back. 1. B12 - 1...

VaishaliG

•6 years ago

8 Replies

Is there any relation to gout when you have PA? Anyone able to advise?

Hi I have PA and about 18 months ago I had terrible problem with gout in my feet- those of you who have had gout know that’s it’s terribly painful! So a year...

Hi I have PA and about 18 months ago I had terrible problem with gout in my feet...

AndrewWiseman

•6 years ago

9 Replies

Misdiagnosed Pernicious Anemia?? 2 Differnt Drs Opinions Im confused!

Four years ago Blood test B12 was 209. Dr started me on B12 sublingual. Then week later gave me injection Cynocolbium, thenShe sent me to lab for intrinsic...

Four years ago Blood test B12 was 209. Dr started me on B12 sublingual. Then wee...

Oberley

•6 years ago

7 Replies

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Feeling Worse After B12 Injection?

Hi, so I have received my 6 shots of B12. It’s the one that begins with an H (I can’t spell it). My B12 Levels were at 172, and the doctors kept insisting that...

Hi, so I have received my 6 shots of B12. It’s the one that begins with an H (I ...

Quinny99

•6 years ago

44 Replies

Have your doctor got a right to stop your B12 injection for 6 months with pernicious anaemia.

Hi everyone, I have had PA for the past 7 years and having my B12 injections every 10 weeks. Recently I had a blood test done from the doctors which included...

Hi everyone, I have had PA for the past 7 years and having my B12 injections eve...

salsadancer

•6 years ago

14 Replies

B12 Shot Reaction

I recently found out I have Pernicious Anemia and Sjogren's Syndrome. The doctor started me on B12 injections. They made my Sjogren's symptoms much worse....

I recently found out I have Pernicious Anemia and Sjogren's Syndrome. The docto...

kswils

•6 years ago

2 Replies

How often do you inject?

Hi folks, I’ve been SI since May last year and was trying to reduce the amount. Just to see if I could really. I’ve been on weekly injections of...

Hi folks, I’ve been SI since May last year and was trying to reduce the amount....

AmyG6500

•6 years ago

17 Replies

B12 could it be something else/France/injections

Just a follow up post and info for anyone This forum was so helpful for me when I was suffering and very lost so here goes I started experiencing pins and...

Just a follow up post and info for anyone This forum was so helpful for me when...

lunez22

•6 years ago

4 Replies

PA from Autoimmune

Just was diagnosed with PA but not PA from a Gastric bypass surgery. I went from a B12 of 86 to 280. I do feel better but my Endo dr said it wasn't increasing...

Just was diagnosed with PA but not PA from a Gastric bypass surgery. I went from...

runnergirl24

•6 years ago

8 Replies

Vitamin B12 test variation over time

Hi All I'd be interested to know if anyone else has had major variations in their B12 blood test results over time (I'm speaking years here). I'm obviously...

Hi All I'd be interested to know if anyone else has had major variations in thei...

somerandomperson

•6 years ago

2 Replies

GP knows the guidelines!

Bad news is that my sister in law has just been diagnosed with B12 deficiency. Good news is that she has been told that she needs to have injections every...

Bad news is that my sister in law has just been diagnosed with B12 deficiency. ...

spacey1

•6 years ago

3 Replies

New here. Best b12 supplements to alleviate macrocytosis ?

My first posting here and I'll try to be as brief as poss. Had a Medichecks thyroid + 11 test which showed low B12 and vitD. My GP did own test that says my...

My first posting here and I'll try to be as brief as poss. Had a Medichecks thy...

jib70

•6 years ago

12 Replies

Feet fall asleep easily

In the last few months, I've noticed that when I cross my legs, the foot of the upper leg will fall asleep within minutes. I also sometime wake up with my hand...

In the last few months, I've noticed that when I cross my legs, the foot of the ...

cdragin

•6 years ago

4 Replies

Has anyone tried a Methylcobalamin patch

Has anyone tried a Methylcobalamin patch? Wondering if it's any good. I am battling with my Doc to get my jab every 10 weeks instead of 12, I just can't cope...

Has anyone tried a Methylcobalamin patch? Wondering if it's any good. I am battl...

star-me-kitten

•6 years ago

9 Replies

Seeking advice on obtaining B12 and self-injection supplies

Hello. I am considering self-administering B12 via intramuscular injection, due to persistent deficiency symptoms and lack of progress with my Doctor. I have...

Hello. I am considering self-administering B12 via intramuscular injection, due ...

ARRozental

•6 years ago

4 Replies

PRIVATE b 12 injections manchester ?

Help ! Does anyone know where I can get my partner GP or safe private health care Vb12 dots in manchester ? My partner is really suffering diagnosed 2 years...

Help ! Does anyone know where I can get my partner GP or safe private health car...

1JENROBO

•6 years ago

9 Replies

Should I self inject?

I was diagnosed at the end of May as significantly deficient in B12. I had the typical loading doses which saw some of my symptoms subside. However, after a...

I was diagnosed at the end of May as significantly deficient in B12. I had the t...

amyjbx

•6 years ago

6 Replies

New post

Had blood tests back today seen doctor and having to beg to get some treatment.He agreed he told me the nurse does the injections.But we will do it between...

Had blood tests back today seen doctor and having to beg to get some treatment.H...

Chance15

•6 years ago

6 Replies

Muscle twitching?

Does anybody experience muscle twitching due to B12 deficiency? In the legs, or arms or eyes?

Does anybody experience muscle twitching due to B12 deficiency? In the legs, or ...

VaishaliG

•6 years ago

27 Replies

Pambow bloods

PamBow

•6 years ago

Be the first to reply

Blood results. Sorry I missed putting them on

PamBow

•6 years ago

Be the first to reply

Blood results..concerns over high B12

Hi everyone, just hoping if someone can take a look at my last blood results please. I had seen the Doctor previously about having B12 injection every 6 weeks...

Hi everyone, just hoping if someone can take a look at my last blood results ple...

PamBow

•6 years ago

6 Replies

Extreme paranoia

I'm looking for examples of manifestations of extreme paranoia in people with B12 deficiency. Specifically how serious can it get, and what sort of actions...

I'm looking for examples of manifestations of extreme paranoia in people with B1...

45hillbilly

•6 years ago

1 Reply

Discolouration of urine after B12 injection......

I would like to know if anyone has noticed a change in the colour of their urine following a B12 injection. If so, what colour? how long does it take after...

I would like to know if anyone has noticed a change in the colour of their urine...

45hillbilly

•6 years ago

2 Replies

10 year old daughter- referral to neurologist

My 10 yr old daughter displays signs of B12 deficiency- pins & needles up to 4 times a day, fatigue, unable to get to sleep, slight anxiety, loss of appetite,...

My 10 yr old daughter displays signs of B12 deficiency- pins & needles up to 4 t...

Kipsy

•6 years ago

5 Replies

irregular heartbeat..

good day all.took bp reading & my machine indicated my heart haa irregular beat but reading ok what can be wrong"

good day all.took bp reading & my machine indicated my heart haa irregular beat ...

ture

•6 years ago

2 Replies

B complex, folate, iron (getting cofactors in order)

Questions for the hive mind. Have been on 3 monthly b12 jabs for a few years now. (I was 109 pmol/L at diagnosis) And despite initial positive response to the...

Questions for the hive mind. Have been on 3 monthly b12 jabs for a few years now...

Portia1974

•6 years ago

4 Replies

Normal B12 test - could I have a deficiency?

Hi I'm a 48 year old male and until recently I was in excellent health, but I've been suffering from several neurological type symptoms since April 2017, which...

Hi I'm a 48 year old male and until recently I was in excellent health, but I've...

somerandomperson

•6 years ago

27 Replies

B12 loading dose side effects - how bad can they get?

Hi, I am having my third week of B12 loading doses (albeit with a weeks gap between them for various reasons). I had few side effects with the first two weeks...

Hi, I am having my third week of B12 loading doses (albeit with a weeks gap betw...

natcap2

•6 years ago

7 Replies

Folic question

Am I correct in assuming Taking 1 - 400ug folic acid tablet a day will not hinder my B12. I am soon going to self inject my B12 and have read some posts...

Am I correct in assuming Taking 1 - 400ug folic acid tablet a day will not hinde...

KeithR

•6 years ago

3 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2018

Am I on the right track? B12 deficiency

Is there any relation to gout when you have PA? Anyone able to advise?

Misdiagnosed Pernicious Anemia?? 2 Differnt Drs Opinions Im confused!

Feeling Worse After B12 Injection?

Have your doctor got a right to stop your B12 injection for 6 months with pernicious anaemia.

B12 Shot Reaction

How often do you inject?

B12 could it be something else/France/injections

PA from Autoimmune

Vitamin B12 test variation over time

GP knows the guidelines!

New here. Best b12 supplements to alleviate macrocytosis ?

Feet fall asleep easily

Has anyone tried a Methylcobalamin patch

Seeking advice on obtaining B12 and self-injection supplies

PRIVATE b 12 injections manchester ?

Should I self inject?

New post

Muscle twitching?

Pambow bloods

Blood results. Sorry I missed putting them on

Blood results..concerns over high B12

Extreme paranoia

Discolouration of urine after B12 injection......

10 year old daughter- referral to neurologist

irregular heartbeat..

B complex, folate, iron (getting cofactors in order)

Normal B12 test - could I have a deficiency?

B12 loading dose side effects - how bad can they get?

Folic question

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