Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for August 2018

Antibiotics and infection: how much do these deplete b12 levels?

I am currently finishing up 7 days of oral antibiotic along with 3 days of IV antibiotics for an infected hand. I started to “feel funny” on day 2 of the IV...

I am currently finishing up 7 days of oral antibiotic along with 3 days of IV an...

Plucky1976

•6 years ago

9 Replies

Trying to find treatment protocol file

Im so sorry for posting this silly question but with this brain fog I’ve spent days trying to locate the treatment info. I cannot remember where it was...

Im so sorry for posting this silly question but with this brain fog I’ve spent d...

Runnerlove

•6 years ago

8 Replies

Fed up of not being listened to by GP!

Hello all, So I was diagnosed with low b12 last October (reading of 170) and given 6 loading doses which knocked me for six. I then went back after 3 months...

Hello all, So I was diagnosed with low b12 last October (reading of 170) and gi...

VMITCHELL78

•6 years ago

22 Replies

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Still lost

Went to my Drs today and mentioned how tired I was after injection and asked about iron and folic acid, her reply was we only give iron to people that are...

Went to my Drs today and mentioned how tired I was after injection and asked abo...

Kittyjack

•6 years ago

11 Replies

Help - need help understanding blood test results

Nearly 2 years ago I had a blood test privately as a result of investigation into a lump in my neck (which is fine). The blood test indicated borderline B12...

Nearly 2 years ago I had a blood test privately as a result of investigation int...

isalou

•6 years ago

10 Replies

How long does liquid B12 last once opened?

How long can I use a bottle of liquid B12 (30 ml) for SI once it's opened? The pharmacy says it lasts for only 28 days once opened (I'm in the US) and then...

How long can I use a bottle of liquid B12 (30 ml) for SI once it's opened? The p...

Musicgirlie

•6 years ago

4 Replies

Oil Massage for weak muscles?

Does anybody use Oil massage to improve weakness of their muscles? Like legs, upper thighs? Eucalyptus oil, Rosemary etc? Kindly enlighten if anybody uses it...

Does anybody use Oil massage to improve weakness of their muscles? Like legs, up...

VaishaliG

•6 years ago

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B12 deficient? What next

For 3 years in gradual progression I started to feel tingling in left toes and then left small fingers and a tired feeling left arm. Neck ache. Had dull...

For 3 years in gradual progression I started to feel tingling in left toes and t...

dansakman

•6 years ago

3 Replies

PAS News item - Update on PA research

Hi All, Thought you might be interested. https://pernicious-anaemia-society.org/research/research-follow-up-last-samples-delivered/

Hi All, Thought you might be interested. https://pernicious-anaemia-society.org/...

Sleepybunny

•6 years ago

2 Replies

Weakness in legs due to B12 def?

Does anybody experience muscle weakness in the legs due to B12 deficiency? I feel lot of pressure on my thighs and shivering like symptoms from inside. Plz...

Does anybody experience muscle weakness in the legs due to B12 deficiency? I fee...

VaishaliG

•6 years ago

15 Replies

Still no injection

I'm not having much luck getting my injections because I'm in the "normal range" still having symptoms though and now all the locum doctor was on about...

I'm not having much luck getting my injections because I'm in the "normal range"...

alison687

•6 years ago

10 Replies

MORE SEVERE SYMPTOMS

Does anybody else have these symptoms? Now my symptoms have gotten worse, it's in my stomach and so painful, it feels like there is something in there. It...

Does anybody else have these symptoms? Now my symptoms have gotten worse, it's i...

jennyfromthabayfr

•6 years ago

12 Replies

Fatigue & b12

Diagnosed with B12 & D Deficiency over a year ago with levels below 140(US) . Initially was on 1shot/month for first four months and then weekly for two months...

Diagnosed with B12 & D Deficiency over a year ago with levels below 140(US) . In...

Dvpk24

•6 years ago

4 Replies

Am I going nutty?

For those who have not read my previous post's, Low B12/folate anaemia, B12 230ng/l folate 1.9ug/l. Haemoglobin est., 153g/l haematocrit 0.463, MCV 101.5fl MCH...

For those who have not read my previous post's, Low B12/folate anaemia, B12 230n...

Boudica1

•6 years ago

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Interesting info on B12 HCy & MMA testing

I'm sure those of you who have been here a long time have already seen this but I thought it may be useful to some people who are still trying to get their...

I'm sure those of you who have been here a long time have already seen this but ...

Alesia

•6 years ago

2 Replies

Hope you all doing ok... x

As my docs missed (yet again) important info from my last blood tests, I am going to request a full blood count.. Does anyone know if this will include the T3...

As my docs missed (yet again) important info from my last blood tests, I am goin...

Nikki_55

•6 years ago

1 Reply

Digestion issues with B12 deficiency?

Does anybody face issues with digestion such as Gas, Trouble passing motion with B12 deficiency? It could also be a side effect of the medications right? Plz...

Does anybody face issues with digestion such as Gas, Trouble passing motion with...

VaishaliG

•6 years ago

6 Replies

Update on doctors appointment

Hi all, as promised an update on my visit to my doctors surgery this morning. Very successful I am happy to report. My B12 injections have been reinstated with...

Hi all, as promised an update on my visit to my doctors surgery this morning. Ve...

Soulsister

•6 years ago

3 Replies

Struggling with iron infusion Referral

New to this Group for approx 16 years I have struggled with HB levels 18 months ago it was suggested by a Gp I may need infusion but referred me to Gastro...

New to this Group for approx 16 years I have struggled with HB levels 18 months ...

Hidden

•6 years ago

1 Reply

Parietal cell test negative so intrinsic factor not tested??

Hello lovely people, I think I buried this question in my last (apologies way too long!!) post (thanks for the helpful replies to the post though!!). Does...

Hello lovely people, I think I buried this question in my last (apologies way to...

Vickymoonpixie

•6 years ago

3 Replies

Hi,does anyone know of a PA specialist in Hampshire?

Saw a gastroenterologist but he wasn't interested in the PA, am assuming a haematologist is probably the way to go, any advice gratefully received, thank you.

Saw a gastroenterologist but he wasn't interested in the PA, am assuming a haema...

Jenkinsaj

•6 years ago

12 Replies

B12 Deficiency?

Does anyone experience symptoms such as weakness in lower legs, shortness of breath and tingling in hands and feet.? Due to b12 deficiency?

Does anyone experience symptoms such as weakness in lower legs, shortness of bre...

VaishaliG

•6 years ago

14 Replies

PA and Gluten intolerance

Hi can anyone give me any help or advice- i have had PA for 20 years - l am 50 years old - and for the last 8 months i have been struggling with bowel issues,...

Hi can anyone give me any help or advice- i have had PA for 20 years - l am 50 y...

suziesparkles

•6 years ago

8 Replies

B12 Deficiency?

Hi, I am 32 yrs old female. I was diagnosed with B12 deficiency 3 weeks back. I had fever, and post that had lot of weakness and fatigue. My body would shiver...

Hi, I am 32 yrs old female. I was diagnosed with B12 deficiency 3 weeks back. I ...

VaishaliG

•6 years ago

7 Replies

5mg folic acid not working?

Hi all, I wondered where I stand re my folate levels. So around 9 months ago I had blood tests as I felt so tired all the time, have pins and needles in my...

Hi all, I wondered where I stand re my folate levels. So around 9 months ago I ...

Gempep

•6 years ago

3 Replies

Skyrocketing B12 level

Hello, Regarding B12 Defiency. I wonder if anyone out there have any experience with getting "hyper" from taking cyacobalomin pills? Doctor told me to take 1...

Hello, Regarding B12 Defiency. I wonder if anyone out there have any experience ...

Hidden

•6 years ago

4 Replies

High active B12 but I have all the symptoms of B12 deficiency

Hi I have just got my results back from medichecks for active B12 which is 256 pmol/L which they say it's high. I'm not on any supplement and the reason I had...

Hi I have just got my results back from medichecks for active B12 which is 256 p...

Josie26

•6 years ago

16 Replies

Advice please

Hello I was diagnosed with PA and B12 deficiency (result - 119) in May - I’ve had my loading doses and one top up since but every so often I feel the symptoms,...

Hello I was diagnosed with PA and B12 deficiency (result - 119) in May - I’ve ha...

Mandymoos8

•6 years ago

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b12 result of 75pmol - requires treatment?

I've had a recent b12 test with a result of 75pmol. GP retested with full blood count and various other bits, and the results are back today - I was asked to...

I've had a recent b12 test with a result of 75pmol. GP retested with full blood ...

Hidden

•6 years ago

4 Replies

Latest results what to make of them?

So here are the latest results for me. Can anyone share insights. I believe these indicate no Hashimoto but possibly a connection between homocysteine and my...

So here are the latest results for me. Can anyone share insights. I believe thes...

Runnerlove

•6 years ago

6 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2018

Antibiotics and infection: how much do these deplete b12 levels?

Trying to find treatment protocol file

Fed up of not being listened to by GP!

Still lost

Help - need help understanding blood test results

How long does liquid B12 last once opened?

Oil Massage for weak muscles?

B12 deficient? What next

PAS News item - Update on PA research

Weakness in legs due to B12 def?

Still no injection

MORE SEVERE SYMPTOMS

Fatigue & b12

Am I going nutty?

Interesting info on B12 HCy & MMA testing

Hope you all doing ok... x

Digestion issues with B12 deficiency?

Update on doctors appointment

Struggling with iron infusion Referral

Parietal cell test negative so intrinsic factor not tested??

Hi,does anyone know of a PA specialist in Hampshire?

B12 Deficiency?

PA and Gluten intolerance

B12 Deficiency?

5mg folic acid not working?

Skyrocketing B12 level

High active B12 but I have all the symptoms of B12 deficiency

Advice please

b12 result of 75pmol - requires treatment?

Latest results what to make of them?

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