Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for July 2018

Sense of taste

Just wondered if reduced sense of taste is common with people living with PA. I was diagnosed nearly 2 years ago and my sense of taste varies throughout the...

Just wondered if reduced sense of taste is common with people living with PA. I...

RebeccaG33

•6 years ago

5 Replies

Private haematologist in London - any recommendations?

My GP wants me to see a haematologist to do the active B12 test and see if I should be having injections more often. Luckily my health insurance will cover the...

My GP wants me to see a haematologist to do the active B12 test and see if I sho...

ProfessorMcGonagall

•6 years ago

9 Replies

Do other medications interact with b12 injections

My mum's b12 level were at 274 last year, she went on to have a TIA. I think it ws caused by years of taking metformin. Her GP refused to give her trial of...

My mum's b12 level were at 274 last year, she went on to have a TIA. I think it ...

Lyndsay80

•6 years ago

16 Replies

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Help with B12 Deficiency

I took a private blood test, also a test with the NHS in order to get diagnosed with hypothyroidism. The result of the private blood tests indicate that I am...

I took a private blood test, also a test with the NHS in order to get diagnosed ...

Cherj

•6 years ago

11 Replies

sublingual b12 recommendation

hi there, I wonder if anyone an recommend a good sublingual b12 - there seem to be so many out there with a huge range in pricing, so no idea where I should...

hi there, I wonder if anyone an recommend a good sublingual b12 - there seem to ...

Hidden

•6 years ago

5 Replies

Folate, iron v B12D help with Blood test results

Hi! I am preparing for GP appt and need to understand my blood tests. Can anyone help read my results please? Also on my first results a small notepad icon...

Hi! I am preparing for GP appt and need to understand my blood tests. Can anyon...

JillMaryC

•6 years ago

2 Replies

Back Pain

Hi there - I jarred my back 4 weeks ago and was just getting twinges. 9 days ago I was diagnosed with PA and have had 3 loading doses of B12 - due for next on...

Hi there - I jarred my back 4 weeks ago and was just getting twinges. 9 days ago...

juanacalpe

•6 years ago

2 Replies

Help in Newcastle Australia.

Hello, My name is Sarah and I have joined this group to help my 17 month old daughter. Her B12 is 303pmol\\L and her most recent active B12 is 53pmol\\L both...

Hello, My name is Sarah and I have joined this group to help my 17 month old dau...

sarahpurcy

•6 years ago

39 Replies

Yet another mystery symptom b12???

Hi everyone, I live in Chicago area. I’ve had only 2 injections in two months since getting diagnosed with b12. My level was 112 at diagnosis. My symptoms...

Hi everyone, I live in Chicago area. I’ve had only 2 injections in two months ...

Jnelson123

•6 years ago

9 Replies

Best leg position to relax thigh muscle?

I inject twice a day in my thigh and would like to find a leg position which lets the thigh muscle involved relax. This is the "vastus lateralis" muscle. I...

I inject twice a day in my thigh and would like to find a leg position which let...

Cetus

•6 years ago

5 Replies

Iron

What can be done for high levels of iron in blood?

ttrish

•6 years ago

5 Replies

IF & Parietal Cell antibodies

I'm curious to know if anyone has first tested negative for IF antibodies....then at a later date been tested again and come back positive? Mine came back...

I'm curious to know if anyone has first tested negative for IF antibodies....the...

Portia1974

•6 years ago

18 Replies

Symptoms of low b12?

Just curious does anyone get paranoid or have paranoia like issues when their b12 is low?

Just curious does anyone get paranoid or have paranoia like issues when their b1...

JennaShi

•6 years ago

17 Replies

Blood work

Just told i have high levels of iron low levels of B-12 . Title. blood work?? What does Title mean??? Come on

Just told i have high levels of iron low levels of B-12 . Title. blood work?? Wh...

ttrish

•6 years ago

2 Replies

Here we go again....

I had a g.p. appt last Tuesday (17th July) to discuss the possibility of my having B12 Deficiency, or PA. I took along with me, some paperwork that listed...

I had a g.p. appt last Tuesday (17th July) to discuss the possibility of my havi...

Chelle1310

•6 years ago

8 Replies

Unsure...

Hi... This is my second post of questions! ... I have just finished my loading doses of B12. I am not feeling much better.... Doc said i can have more, but my...

Hi... This is my second post of questions! ... I have just finished my loading d...

Nikki_55

•6 years ago

10 Replies

Victory! It's NOT CFS for HEAVENS sake!

Victory! This may be pertinent to some in this group. Where your GP is quick to slap a label of CFS/ME/Fibro on you and call it job done. These are all...

Victory! This may be pertinent to some in this group. Where your GP is quick to ...

Portia1974

•6 years ago

10 Replies

Request for PA research participants

Hi, News item on PAS website asking for participants with PA for a study about PA symptoms....

Hi, News item on PAS website asking for participants with PA for a study about P...

Sleepybunny

•6 years ago

2 Replies

Self injecting

Please can someone tell me what i need to buy to do this myself. Been 10 weekly injections but drs I've put it back to 12 and I'm struggling. Have too much...

Please can someone tell me what i need to buy to do this myself. Been 10 weekly ...

miccy5

•6 years ago

2 Replies

I'm considering that I may have ME/CFS in addition to PA

Short question: Do you feel a distinct difference before and after your B12 injection? Long story: I may have hit the trifecta when it comes to...

Short question: Do you feel a distinct difference before and after your B12 inje...

cdragin

•6 years ago

19 Replies

Leicestershire PAS Support Group Meeting: Thursday 26 July,10am - 12md, Ulverscroft Manor, Priory Lane, Ulverscroft, Leices, LE67 9PH

Hi All The Pernicious Anaemia Society and our joint hosts, the Shuttlewood-Clark Foundation, are holding the next PAS support group meeting, as above. The...

Hi All The Pernicious Anaemia Society and our joint hosts, the Shuttlewood-Clark...

Foggyme

Administrator•6 years ago

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PAS Recruiting Volunteers: Members' Services Manager, Grant and Bid Writer, Social Media Manager. Can You Help?

Please see the following from PAS Cobalamin News (July 2018): We are a victim of own success! With an ever-increasing membership and lots of activity at...

Please see the following from PAS Cobalamin News (July 2018): We are a victim of...

Foggyme

Administrator•6 years ago

Be the first to reply

Why do some needles hurt more than others?

I am using the needles below. It might just be me but sometimes when I inject the needle going in hurts a lot more than other day. I also bleed more when it...

I am using the needles below. It might just be me but sometimes when I inject th...

Padders12

•6 years ago

4 Replies

Brain working overtime?

Right, here goes. All my life I have not been overweight, my siblings are overweight. I have a problem absorbing B12 which in turn has made absorbing other...

Right, here goes. All my life I have not been overweight, my siblings are overwe...

jointpain

•6 years ago

13 Replies

B12 Injections - side effects

Hi I have read that acne can be a side effect of B12 injections - has anyone had this experience - and is there any way that I can avoid it. I am 63 years...

Hi I have read that acne can be a side effect of B12 injections - has anyone had...

jacjc

•6 years ago

6 Replies

B12 - how often should I inject? Every 24 hours?

I have just started to self inject. I have injected twice now and wow - it was like liquid life - I could feel the effect straight away - within half an hour...

I have just started to self inject. I have injected twice now and wow - it was l...

jacjc

•6 years ago

2 Replies

Advice of lab results please

https://healthunlocked.com/thyroiduk/posts/138464203 Thanks for your time x

Lisa_middle_earth

•6 years ago

4 Replies

Does B12 interact with any other Medications?

Hi all just wondering if anyone knows of any medications that B12 Hydroxo injections would interact with? My Aunt has just been diagnosed with...

Hi all just wondering if anyone knows of any medications that B12 Hydroxo inject...

Alesia

•6 years ago

16 Replies

Why symptoms return when blood levels are still high?

Wondering if anyone can help... I went on a joint doctor visit with my husband, who has been a bit sceptical about b12 and it's 'symptoms'. The doctor told us...

Wondering if anyone can help... I went on a joint doctor visit with my husband, ...

Yellowkangaroo

•6 years ago

8 Replies

Weak stomach acid and osteoporosis

I seem to remember that those who have been diagnosed with PA have weak stomach acid? I don't know if it's to do with coming of the age or the combination of...

I seem to remember that those who have been diagnosed with PA have weak stomach ...

Erainy

•6 years ago

3 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2018

Sense of taste

Private haematologist in London - any recommendations?

Do other medications interact with b12 injections

Help with B12 Deficiency

sublingual b12 recommendation

Folate, iron v B12D help with Blood test results

Back Pain

Help in Newcastle Australia.

Yet another mystery symptom b12???

Best leg position to relax thigh muscle?

Iron

IF & Parietal Cell antibodies

Symptoms of low b12?

Blood work

Here we go again....

Unsure...

Victory! It's NOT CFS for HEAVENS sake!

Request for PA research participants

Self injecting

I'm considering that I may have ME/CFS in addition to PA

Leicestershire PAS Support Group Meeting: Thursday 26 July,10am - 12md, Ulverscroft Manor, Priory Lane, Ulverscroft, Leices, LE67 9PH

PAS Recruiting Volunteers: Members' Services Manager, Grant and Bid Writer, Social Media Manager. Can You Help?

Why do some needles hurt more than others?

Brain working overtime?

B12 Injections - side effects

B12 - how often should I inject? Every 24 hours?

Advice of lab results please

Does B12 interact with any other Medications?

Why symptoms return when blood levels are still high?

Weak stomach acid and osteoporosis

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