Hanna

[Muttilina]

Hi,new here, i have PA, and i get 2 times a week B12 injections, for over two years now, still i am not much better, numbness in feet, tingling in hands and feet, nerve pain up my legs, i am taking methyl. b 12 but it seems like that does not help. thank you

[Annnon58]

Hi Hanna , do you take folic acid every day , it is needed with frequent injections at high dose , also other co factors help . Also you need to have your ferritin level checked as level needs to be at least 60 when on injections . Hope someone more knowledgeable helps you soon , take care .

[Kazania in reply to Annnon58]

Hello Annnon, I am very interested in what you say about levels of Ferritin. When last measured mine was 12, I was prescribed iron. Have you got any source material for the level of 60 that you give? It would be good to have some ammunition if my levels haven’t increased at my next blood test. Many thanks.

[Annnon58 in reply to Kazania]

Hi Kazania , I got the info of ideal ferritin level from the home fasebook group pernicious anemea / b 12 deficiency support group , they are a closed group so if you join the info is in their files . They can also explain why you need to have the level of 60 + to help you with b12 getting to cell level much better than I can , also other co factors such as folic acid etc. . Best of luck and I wish you well .

[Kazania in reply to Annnon58]

😊 thank you so much Annnon. I’ll have a look. The more knowledge the better, as we get no help from the medics. Thanks for your good wishes too and the same to you. I am much better since I started additional self-injections. So your info was most interesting. Many thanks again and keep well.

[Muttilina in reply to Kazania]

you keep well too

[fbirder]

There are over 80 causes of peripheral neuropathy. Are you sure that yours is caused by B12?

With that sort of treatment I’d be surprised if it were.

Go see a neurologist and get everything checked.

[Muttilina in reply to fbirder]

Hi fbirder, no i dont know, i did see a neurologist,i have PA and was told not to worry about it,

[Annnon58]

Hi Muttilina , sorry you have pA . My husband does too . This forum is brilliant but I find Pernicious anemea / b12 deficiency support group ( fasebook homepage ) excellent also , you need to answer 2 simple questions to join . It’s a free , closed group with amazing advice .good luck

[Muttilina in reply to Annnon58]

Thank you

[Annnon58]

P.s . I’m no expert but wondering if Hydroxy is better than methyl ? Also IM injections sometimes work better than sub cut for some people .