I have a few questions about my daughter if any one can help. I’ll give a little background information first.
Over the last few years, my daughter has been complaining about concentration issues. Lately she has been having meltdowns and is sleeping excessively. She was also really successful in sport but lately her performances have been deteriorating. She also has started getting swelling of the lower limbs before bed most nights and during exercise.
We are concerned about her mental health and we agreed to get a cognitive test done as ADHD kept cropping up as a possibility. We are currently waiting results of that from a private professional hopefully next week. We did not want to use the NHS as she would be thrown into the mental health system and forgotten about.
In the meantime I organised a private blood test through spire last week and got results same week. There were a few tests which were out of range as follows:
Test. Result. Healthy range
Globulin 22 g/l. 24-37
Vit D. 28. Nmol/l. 34-250
Vit B12. 81 pg/ml. 197-771
Folate. 1.36 ng/ml. 2.89-26.8
All other tests for diabetes, liver, thyroid and standard bloods were within range.
We managed to get to see our GP on Friday and showed her the results. She was not happy I was doing my own blood tests ( I’ll leave that conversation for another day). she has booked in some more blood tests but due to backlog we cannot get the bloods taken for 4 weeks and she will not prescribe any b12 injections until they have confirmed the results.
My question is that if my daughter in very low on B12 and is showing neurological symptoms ( ie ADHD like symptoms) then should this be classed as an emergency to prevent further deterioration. Also if the results are from a certified testing laboratory, then should they need to confirm the results before prescribing injection and further testing for anti bodies.
Any help or advice would be much appreciated.
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Thanks for the reply and advice. I’ve read upas much as I can on low B12 but I’m confused as to what neurological symptom are. I would have put confusion and I attention in this category but most information talks of symptoms caused through spinal deterioration. Can anyone comment as I need as much information as I can for tomorrow, when I will be waiting for the surgery open to politely (or not) demand the blood test be carried out. Thanks
Can you go to a walk in centre? or most hospitals operate a system where you can just queue for blood tests-ask the surgery to print out the blood request form.
My daughter has also been going through this nightmare. She was performing her sport at a very high level until she became a shadow of herself with extreme fatigue and lots of neurological issues. GP sent her to a consultant who basically said she had anxiety and needed psychological help. I insisted on blood tests and she was found to have B12 of 120.
After 2 months of injections she is starting to recover. She is now under a different consultant who luckily is treating this seriously.
Unfortunately you will probably have to educate yourself and fight all the way for the correct treatment.
Thanks everyone for your advice. Surgery have agreed to squeeze her in this morning after a bit of a scene not by me but the practice manager. Once she realised I would hold her personally responsible for any damage caused to my daughter, she changed her tune and became very helpful.
After reading the experiences of people on here, I was expecting a fight, but not over simple bloods taken.
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