I’ve written about my problem on numerous occasions - I have b12 deficiency caused by being a vegetarian/vegan and having been put on omaprezole for years!
I went to the doctor about three years ago and was diagnosed with very low b12 (I don’t know the figure but the nurse was astonished at how low it was) and I have been having injections ever 12 weeks since.
Most of my symptoms ended pretty quickly but a recurring symptom has continued.
1. Without warning, I go into a semi conscious state.
2. I have tinnitus - a noise like radio interference.
3. The tinnitus fades and I have a feeling of euphoria and have auditory hallucinations- I hear voices which seem to make sense as they are occurring (like in a dream) but make no sense afterwards,
2 and 3 stopped after two years and only 1 occurred.
My last injection was on the 18 April and I had symptom 1 several times 2 day’s afterwards.
Then nothing until today (approximately 6 weeks after the injection). I had two events during sleep and, so far, three events this morning.
This time I am having 1 and 3 and no tinnitus.
I have read that b12 wipes out the iron and b9 - folic acid - but I take a multi vitamin every day as well as 1000 ml b12 tablet.
I feel totally well usually between the events but my body is sluggish and a fair amount of brain fog afterwards.
My go practice is useless - they diagnosed me as having PA and just give me the 12 week injection. I’ve told them of my recurring symptoms but they just say they are not symptoms of PA - although tinnitus is on the NHS list of symptoms of PA but auditory hallucinations is not.
I have been retested each time I see my doctor and I am told I have enough b12 in my blood.
I have read that b12 wipes out the iron and folic acid so should I supplement with these (although I take a multi vitamin every day with provides the recommended daily amount of iron And b9.
I did think that I was getting better but I am a bit depressed about this recurrence of symptom 3.