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Pernicious Anaemia Society

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All posts for March 2018

Heart problems

Hi everyone I have been self injecting for a year now, I can usually go about a week before I need to inject again and so far everything has been going......

Hi everyone I have been self injecting for a year now, I can usually go about ...

Coachlady11

•6 years ago

9 Replies

I’m new with b12 injections

Hello everyone I’m new to all this and on my first block of b12 injections and due to have my bloods retested beginning of April and been told folate was okay...

Hello everyone I’m new to all this and on my first block of b12 injections and ...

Sueirving

•6 years ago

4 Replies

Does anyone notice increase in symptoms during cold & flu viruses?

Hi all just wondering if anyone else has an increase in their symptoms during a period of illness? And do you find you get more cold/flu virus since being B12...

Hi all just wondering if anyone else has an increase in their symptoms during a ...

Alesia

•6 years ago

4 Replies

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Needing a hand hold

I know you people are the only ones who understand as I have tried to explain to relatives and they really don't get it . I am waiting on my delivery to self...

I know you people are the only ones who understand as I have tried to explain to...

Andypandy30

•6 years ago

33 Replies

Recommendations for B12 and Vitamin B complex

Hi Can anybody recommend me a good Vitamin b12 methyl and Vitamin B complex to take. Can you take the B complex together as it also contains B12? Thanks

Hi Can anybody recommend me a good Vitamin b12 methyl and Vitamin B complex to ...

mistygrey

•6 years ago

2 Replies

Ready made B12 injections

Hi, Where can I buy ready made injections? Ines I don't have to mix with saline. Thank you in advance Victoria

Hi, Where can I buy ready made injections? Ines I don't have to mix with saline...

Twilighthours72

•6 years ago

9 Replies

B12 increased still head pressure

i have diagonised with b12 deficiency 5 months back.everything is fine but feeling rare vertigo and always head pressure i stopped supplements 2 months back...

i have diagonised with b12 deficiency 5 months back.everything is fine but feeli...

RaJender9666

•6 years ago

1 Reply

Medichecks Results

Hi All, I an finally going tomorrow to see my GP - a new one as mine is booked up until 20th April. If she does agree to give me injections due to medic heck...

Hi All, I an finally going tomorrow to see my GP - a new one as mine is booked u...

Tanzanite55

•6 years ago

3 Replies

treated like a mental druggie when asking for my b12 injections

hi everyone. I'm so fed up and ill. I was diagnosed with PA back in 2012 then I had bowel cancer in 2013 so after a right hemicolontomy I've pretty much got a...

hi everyone. I'm so fed up and ill. I was diagnosed with PA back in 2012 then I ...

Jenispinks

•6 years ago

22 Replies

Jarrow B12 MethylCobalamin

As I am waiting to try and get the Intrinsic factor bloodtest which my GP is reluctant to do, I think injections will be an even bigger no no. Is the Jarrow...

As I am waiting to try and get the Intrinsic factor bloodtest which my GP is rel...

mistygrey

•6 years ago

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Gp and Intrinsic Factor testing..

So I have just been to my Gp due to still feeling extremely unwell and almost nearly passing out. She did bloods for me and said she would retest B12 and I...

So I have just been to my Gp due to still feeling extremely unwell and almost ne...

mistygrey

•6 years ago

9 Replies

Medichecks says the results are good.

Medichecks test says no deficiency of b12 Methylmalonic acid - Urine 0.63 mg/L Creatinine 0.44 g/l Methylmalonic acid/creatinine 1.4 mg/g crea < 3.7

Medichecks test says no deficiency of b12 Methylmalonic acid - Urine 0.63 mg/L ...

Jump1

•6 years ago

2 Replies

Intending to self-inject (Intra-Muscular)- looking for advice on equipment to purchase....

Hello. I have taken the decision to take matters into my own hands thanks to the intransigence of my doctor and 4.5 years of symptoms, and administer Vitamin...

Hello. I have taken the decision to take matters into my own hands thanks to the...

ARRozental

•6 years ago

21 Replies

I have changed doctors and he has changed my frequency of injections I have to be between 192-683 but get symptoms back in 383 help

does anyone else have this problem

Angie47

•6 years ago

10 Replies

Pounding head

Everyday at around 7-8 pm I start to feel extremely tired and notice my heartbeat is more pronounced, and I feel it in my neck, shoulders and head. Has anyone...

Everyday at around 7-8 pm I start to feel extremely tired and notice my heartbea...

Craigalaht

•6 years ago

16 Replies

B12 Patches?

Hi, I was diagnosed back in Dec 16, but I’ve noticed that the 3 months between injections just isn’t cutting it for me. My doctor doesn’t want to seem to...

Hi, I was diagnosed back in Dec 16, but I’ve noticed that the 3 months between ...

Ellakate

•6 years ago

4 Replies

Intrinsic Factor test result

Hello there. I have just had the result of my IFA test and was hoping someone could help with interpretation. It was 1.69 (>6). According to the text that came...

Hello there. I have just had the result of my IFA test and was hoping someone co...

Frank77

•6 years ago

20 Replies

PAS members and itchy skin

Hi All, PAS news item about journalist wanting to talk to PAS members who have itchy skin as a symptom....

Hi All, PAS news item about journalist wanting to talk to PAS members who have i...

Sleepybunny

•6 years ago

1 Reply

Morning Headaches

Hi I have for the past two months but more so in the last month been experiencing morning headaches, like a dull ache and feel really awful when I wake up....

Hi I have for the past two months but more so in the last month been experienci...

mistygrey

•6 years ago

1 Reply

Hydroxocalamine Schedule

I had asked my doctor before if my schedule could be moved up to 10 weeks from 12 as the last 3 weeks before an injection are dismal. Request denied as my iron...

I had asked my doctor before if my schedule could be moved up to 10 weeks from 1...

Aegir

•6 years ago

3 Replies

Metylacolbamin negative effects

Is anyone knowledgeable about some of the negative physical effects of taking sublingual metylacolbamin?

Is anyone knowledgeable about some of the negative physical effects of taking su...

Craigalaht

•6 years ago

3 Replies

Comprehensive blood tests now available in the uk via viapath at St Thomas Hospital including homocysteine all by post.

https://nutristest.viapath.co.uk/ Check this out. Via path are doing Active B12 Total B12 Methylmalonic Acid (MMA) Folate (B9) Homocysteine Ferritin Vitamin...

https://nutristest.viapath.co.uk/ Check this out. Via path are doing Active B1...

Steap

•6 years ago

3 Replies

B12 231. Injections the solution?My rough story so far.

So I had extreme fatigue. I was so ill that my gut stopped working and could not digest anything. I was dizzy ,depressed. My blood test showed low b12 and iron...

So I had extreme fatigue. I was so ill that my gut stopped working and could not...

eleos

•6 years ago

12 Replies

Blood results (4/4)

please reply on this post https://healthunlocked.com/pasoc/posts/137572913/help-with-blood-results-post-1-of-4

please reply on this post https://healthunlocked.com/pasoc/posts/137572913/help-...

Pittman

•6 years ago

Blood results (3/4)

please respond on this post https://healthunlocked.com/pasoc/posts/137572913/help-with-blood-results-post-1-of-4

please respond on this post https://healthunlocked.com/pasoc/posts/137572913/hel...

Pittman

•6 years ago

Blood results (2/4)

Please reply on this post https://healthunlocked.com/pasoc/posts/137572913/help-with-blood-results-post-1-of-4

Please reply on this post https://healthunlocked.com/pasoc/posts/137572913/help-...

Pittman

•6 years ago

Help with blood results (Post 1 of 4)

blood results - also on these posts https://healthunlocked.com/pasoc/posts/137572955/blood-results-4-4...

blood results - also on these posts https://healthunlocked.com/pasoc/posts/13757...

Pittman

•6 years ago

13 Replies

So sleepy...

B12 level 223. Doctor prescribed 2500 mcg sublingual once daily. Been taking for about a month and feel worse. Just want to sleep...is that normal?

B12 level 223. Doctor prescribed 2500 mcg sublingual once daily. Been taking f...

Dallas2005

•6 years ago

12 Replies

Vit B12 and folic acid

Hi everyone My names Amy, i wasnt sure what community to post this is as i havent been diagnosed with pernicious anemia but was today told i had lower than...

Hi everyone My names Amy, i wasnt sure what community to post this is as i have...

Louise9999

•6 years ago

9 Replies

Swollen arms and hands b12 deficiency?

I was doing some work (labour) today and my arms and hands fingwrs all swelled. They are back to normal now. Could that be b12 deficiency symptom or something...

I was doing some work (labour) today and my arms and hands fingwrs all swelled. ...

Jump1

•6 years ago

2 Replies

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2018

Heart problems

I’m new with b12 injections

Does anyone notice increase in symptoms during cold & flu viruses?

Needing a hand hold

Recommendations for B12 and Vitamin B complex

Ready made B12 injections

B12 increased still head pressure

Medichecks Results

treated like a mental druggie when asking for my b12 injections

Jarrow B12 MethylCobalamin

Gp and Intrinsic Factor testing..

Medichecks says the results are good.

Intending to self-inject (Intra-Muscular)- looking for advice on equipment to purchase....

I have changed doctors and he has changed my frequency of injections I have to be between 192-683 but get symptoms back in 383 help

Pounding head

B12 Patches?

Intrinsic Factor test result

PAS members and itchy skin

Morning Headaches

Hydroxocalamine Schedule

Metylacolbamin negative effects

Comprehensive blood tests now available in the uk via viapath at St Thomas Hospital including homocysteine all by post.

B12 231. Injections the solution?My rough story so far.

Blood results (4/4)

Blood results (3/4)

Blood results (2/4)

Help with blood results (Post 1 of 4)

So sleepy...

Vit B12 and folic acid

Swollen arms and hands b12 deficiency?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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