Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for March 2018

When can I stop the B12 and Vitamin D

I have had low vitamin B12 for a year once a week for the first month and now montlhy I've been on the injections for over a year and it has gone up from 163...

I have had low vitamin B12 for a year once a week for the first month and now mo...

tralyn

•6 years ago

7 Replies

Leicestershire PAS Support Group Meeting: Thursday 29 March, 10am - 12md, Ulverscroft Manor, Priory Lane, Ulverscroft, Leices, LE67 9PH

Hi All The Pernicious Anaemia Society and our joint hosts, the Shuttlewood-Clark Foundation, are holding the next PAS support group meeting, as above. The...

Hi All The Pernicious Anaemia Society and our joint hosts, the Shuttlewood-Clark...

Foggyme

Administrator•6 years ago

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Peripheral nerve issues plus heavy heartbeat

I have had peripheral nerve issues for months. I have been taking methyl for about3 weeks and iron folic supplements for a few days. Had tests today come back...

I have had peripheral nerve issues for months. I have been taking methyl for abo...

Craigalaht

•6 years ago

4 Replies

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"Deficient"

A photo of my latest painting - still got symptoms, but getting better !

Cherylclaire

Forum Support•6 years ago

9 Replies

B12 Injections via NHS

Hello, Can anybody tell me if the readings below would suggest I need B12 injections? My symptoms are getting worse: Headaches Feeling Faint and Dizzy Extreme...

Hello, Can anybody tell me if the readings below would suggest I need B12 inject...

mistygrey

•6 years ago

13 Replies

Help with blood results please

Hi I did ask doctor to do extra tests not sure if there are any that need doing that are not on the list, did ask for folate but not sure if that’s under a...

Hi I did ask doctor to do extra tests not sure if there are any that need doing ...

Pittman

•6 years ago

5 Replies

Am I doing any harm?

hi up until recently & and after a long battle with my doctors I had monthly injections (hydro) I’ve recently moved and now having the same battle (which I...

hi up until recently & and after a long battle with my doctors I had monthly inj...

Pittman

•6 years ago

5 Replies

Struggling with 3 monthly injections.

I was diagnosed with Pernicious Anaemia about 9 years ago after a massive struggle with my doctors and consultants in Northern Ireland and was put on 3 monthly...

I was diagnosed with Pernicious Anaemia about 9 years ago after a massive strugg...

Littlelawchick

•6 years ago

6 Replies

Feeling even worse!

Started loading injections last Wednesday had another on Friday and I swear I felt amazing on Saturday! Like really really amazing! No numbness no dizziness...

Started loading injections last Wednesday had another on Friday and I swear I fe...

Clarecccc

•6 years ago

4 Replies

How do I Self Inject B12

HI All i've given up with GP and would like to self inject - terrified but can't continue the way I am going. Can you advise where the best place to buy the...

HI All i've given up with GP and would like to self inject - terrified but can't...

lorrainesanders76

•6 years ago

9 Replies

GGT, ALT, ALP, BCAA and Glycine, coeliac disease and/or SIBO : anyone able to help with results ?

So far, in the past 3 years, I have had a diagnosis of firstly B12 deficiency then functional B12 deficiency because my MMA was raised. This...

So far, in the past 3 years, I have had a diagnosis of firstly B12 deficiency th...

Cherylclaire

Forum Support•6 years ago

15 Replies

Blood test result show my vitamin B12A level is more than 2000

I am a diabetic patient fir the last ten years but my HBA1c is note more than 7 at any point of time during ten years. Presently , it is.4.6. May kindly advise...

I am a diabetic patient fir the last ten years but my HBA1c is note more than 7 ...

satram

•6 years ago

1 Reply

Painful Symptoms

I was recently diagnosed with Pernicious Anemia (PA).. I'm having severe muscle spams in lower right back, and pounding heart with chest and back pains --...

I was recently diagnosed with Pernicious Anemia (PA).. I'm having severe muscle...

Glenda78

•6 years ago

4 Replies

Blood test results show high ferritin

Blood test results show high ferritin but low Hg. 57 year peri menapausal, cough for 20 weeks being treated for asthma. Sometimes so bad I gag and vomit....

Blood test results show high ferritin but low Hg. 57 year peri menapausal, cou...

Chezza1777

•6 years ago

8 Replies

BLOOD TESTSS

I had a blood test in A&E because I was told I was aneimic because my folate levels are really low so looking at my past results on 2016 the test shows as L...

I had a blood test in A&E because I was told I was aneimic because my folate lev...

Amzsmithy

•6 years ago

1 Reply

Low b12

Hi what should your b12 levels be after the loading injections ? My level was 170 before injections and went up to 550 after injections , I haven't had any...

Hi what should your b12 levels be after the loading injections ? My level was 17...

DutchessVS

•6 years ago

18 Replies

Mma Results. Creatine unsure?

My Results without ranges. They didn't have any. 24hr urine sample test. 1.6 g/l - methymalonic acid 0.93 g/l - creatine (low) 1.7 g/l - mma/creatine All it...

My Results without ranges. They didn't have any. 24hr urine sample test. 1.6 g/l...

SunnyK

•6 years ago

5 Replies

Experience after first B12 injection

Hi there, i am new to this forum. My name is Patrick and I was just diagnosed yesterday with B12 deficiency. (Level is 199) I also got my first B12 shot...

Hi there, i am new to this forum. My name is Patrick and I was just diagnosed ye...

Hidden

•6 years ago

7 Replies

Edema fingers hands would b12 deficiency cause this?

Edema fingers hands would b12 cause this?? Anyone experience this because of b12?

Edema fingers hands would b12 cause this?? Anyone experience this because of b12...

Jump1

•6 years ago

5 Replies

Auto injectors...... ☺

Could someone please advise me on the auto injectors... I want to buy one, but I need to get it right if I'm going to spend €93...I gather you can use your own...

Could someone please advise me on the auto injectors... I want to buy one, but I...

Frances55

•6 years ago

13 Replies

Healing symptoms

Hello! Can someone tell me How your healing symptoms felt? Especially in your Feet? Thank you very much!

Hello! Can someone tell me How your healing symptoms felt? Especially in your Fe...

Myemmy80

•6 years ago

2 Replies

Low iron

Evening everyone! I was just wondering if I can ask if anyone knows. I got told had folate deficiency anaemia and given 2 months folic acid. Then got told...

Evening everyone! I was just wondering if I can ask if anyone knows. I got told...

Prestart55

•6 years ago

3 Replies

Daughters bloodwork

Hello, My 10 year old daughter has had low grade fevers on and off for 5 weeks now and these tests came back abnormal. Do any of you have any insights about...

Hello, My 10 year old daughter has had low grade fevers on and off for 5 weeks n...

Mlkirk

•6 years ago

4 Replies

Assistance required with interpreting B12 and Pernicious Anaemia Blood Tests.....

Hello I was wondering if anyone here could help me in interpreting some Vitamin B12, Intrinsic Factor Antibody and Gastric Parietal Cell blood test results. I...

Hello I was wondering if anyone here could help me in interpreting some Vitamin ...

ARRozental

•6 years ago

12 Replies

Is this low?

I've been receiving injections 3x per week for three months now and my level 3 days after my last injection was 1300. Is that low?

I've been receiving injections 3x per week for three months now and my level 3 d...

Plucky1976

•6 years ago

9 Replies

Now Self Injecting!

I dropped a letter into the reception at my GP's surgery informing her that I was self injecting. I did this after calling QEUH to find out what was happening...

I dropped a letter into the reception at my GP's surgery informing her that I wa...

Panpal

•6 years ago

3 Replies

Self injector.......

Hi everyone ☺... I'm thinking of buying a self injector from Union Medico.. Which one do I buy?... Is it the 90%M...I use 2ml syringes and 23Gx1'' needles... I...

Hi everyone ☺... I'm thinking of buying a self injector from Union Medico.. Whic...

Frances55

•6 years ago

1 Reply

Scared and exhausted

Hi everyone. I have not an an official diagnosis of PA. My gynae ordered some tests as part of my annual check-up (I am 46 and live in Greece). My B12 is 147,...

Hi everyone. I have not an an official diagnosis of PA. My gynae ordered some te...

Thessgirl

•6 years ago

17 Replies

Just a question

Hi I have been on b12 injections for nearly 2 years now I also have a under active thyroid that I am on medication for I still feel tried a lot I would like to...

Hi I have been on b12 injections for nearly 2 years now I also have a under acti...

Sally39

•6 years ago

2 Replies

B12 TESTING VERY VERY IMPORTANT

It has come to my attention after years and years of inadequate testing by the NHS in Scotland where the B12 serum test is used which is inadequate to identify...

It has come to my attention after years and years of inadequate testing by the N...

toph

•6 years ago

1 Reply

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2018

When can I stop the B12 and Vitamin D

Leicestershire PAS Support Group Meeting: Thursday 29 March, 10am - 12md, Ulverscroft Manor, Priory Lane, Ulverscroft, Leices, LE67 9PH

Peripheral nerve issues plus heavy heartbeat

"Deficient"

B12 Injections via NHS

Help with blood results please

Am I doing any harm?

Struggling with 3 monthly injections.

Feeling even worse!

How do I Self Inject B12

GGT, ALT, ALP, BCAA and Glycine, coeliac disease and/or SIBO : anyone able to help with results ?

Blood test result show my vitamin B12A level is more than 2000

Painful Symptoms

Blood test results show high ferritin

BLOOD TESTSS

Low b12

Mma Results. Creatine unsure?

Experience after first B12 injection

Edema fingers hands would b12 deficiency cause this?

Auto injectors...... ☺

Healing symptoms

Low iron

Daughters bloodwork

Assistance required with interpreting B12 and Pernicious Anaemia Blood Tests.....

Is this low?

Now Self Injecting!

Self injector.......

Scared and exhausted

Just a question

B12 TESTING VERY VERY IMPORTANT

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