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Pernicious Anaemia Society
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MS misdiagnosis

Are there any people out there that have been diagnosed with multiple sclerosis and looked at literature that basically disproves the diagnosis. It is my belief and the belief of a few world-renowned doctors that Ms is not as prevalent as the NHS in Britain seem to believe. Following my literature research on the subject it is my belief and the belief of other eminent doctors that ms can be cured by the use of b12. As soon as b12 injections start to be taken the demyelination of the myelin sheath stops this is really good news but what you have to remember is that the nhs has been far too slow in getting the correct diagnosis. When they diagnose you they do and mri scan and they search for things that fit the description of multiple sclerosis they do not look at everything else like you might have had neurological symptoms for most of your life like myself i think this is disgraceful and needs to be sorted out. I know that i am on the road to recovery but i will never get back my full life back as i have disabilities that can never recover due to scarring on my brain and spinal cord. It is virgin on the ridiculous the way the nhs diagnose you with multiple sclerosis the way they do it is to give you an mri scan and test the babinski reflex in your feet are the doctor's stupid or told by the managers to get patients on toxic ms RR Beta interferon injections as quickly as possible without testing the methyl mALONIC acid and numerous other tests which would give an almost accurate RESULT it drive me nuts you try getting a doctor to admit that they have missed diagnosed you is almost impossible. There is lots of press about the miss diagnosis of multiple sclerosis has anybody got any stories to tell me because this is driving me crazy

4 Replies

Of some possible interest. I leave assessment of its value to others.

Serum Vitamin B12 and thyroid hormone levels in Saudi patients with multiple sclerosis.

Al-Khamis FA1.

Author information

1 Department of Neuroscience Research, Institute for Research and Medical Consultations, Kingdom of Saudi Arabia; Department of Neurology, King Fahd Hospital of the University, University of Dammam, Kingdom of Saudi Arabia.



To determine the relationship between Vitamin B12 levels and thyroid hormones in patients with multiple sclerosis (MS).


One hundred and ten patients with MS were recruited for this study after Institutional Review Board approval. All patients signed a written informed consent form and donated a single blood sample. Plasma Vitamin B12 levels, triiodothyronine (T3), and thyroxine (T4) hormone levels were measured. Data were analyzed using the Statistical Package for Social Sciences (SPSS) software.


Analysis of Vitamin B12 levels in 110 patients with MS revealed that 65% had normal levels of Vitamin B12 (200-900 pg/ml), 30% had low levels of Vitamin B12 (<200 pg/ml), and 5% high levels of Vitamin B12 (higher than 900 pg/ml). Further analysis of patients with low levels of Vitamin B12 revealed that this cohort exhibited a significantly high number of patients with low levels of the thyroid hormones triiodothyronine (T3) and thyroxine (T4) (P < 0.005).


This study suggests a relationship between Vitamin B12 levels and thyroid hormones. This opens the possibility that the use of therapies that increase triiodothyronine (T3) and thyroxine (T4) levels might be beneficial to patients with MS.


Multiple sclerosis; Vitamin B12; thyroxine; triiodothyronine



What would treatment with T3 and T4 involve?



There is a chapter in the book "Could it Be B12; An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart which mentions MS.

There may be case studies in Martyn Hooper's books that mention MS.

"What You Need to Know About Pernicious Anaemia and Vitamin B12 Deficiency" by Martyn Hooper

"Living with Pernicious Anaemia and Vitamin B12 Deficiency" by Martyn Hooper

Has several case studies.

PAS news item on Neuro Consequences of PA


Martyn Hooper blog post that mentions MS



Thanks. I have could it be b12. It pains me to read it.. How can the NHS keep people sick just through ignorance and poor understanding.



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