Electromyogram Test: I was diagnosed... - Pernicious Anaemi...

Pernicious Anaemia Society

31,929 members23,068 posts

Electromyogram Test

scadman profile image
1 Reply

I was diagnosed with a B12 deficiency approx. 18 months ago, at that time I also developed neuro symptoms in my feet, A simple test with an instrument similar to a tuning fork showed a degree of loss of nerve function in my lower leg. After some argument I got GP to agree to do a referral for Nerve Conduction Tests, and I received a letter from local hospital to say I was on their waiting list. 2 days ago I received an appointment from a different hospital in a different health Board area with an appointment for a ELECTROMYOGRAM, I have Googled this there is a lot of information about, but nothing to suggest this is usual procedure for B12 deficiency. Anyone else had this or know if it is usual practice.

Thanks

Written by
scadman profile image
scadman
To view profiles and participate in discussions please or .
1 Reply
gillianTS profile image
gillianTS

Hi scadman

I was interested in reading about your muscles and wondered how you got on with the nerve and muscle test you were going to have.

I have similar issues with muscles never wanting to relax and wake up feeling like I have done a marathon every day... I am waiting for my follow up appointment after having my nerve and muscle test a couple of weeks ago when the Neurologist carrying out the test told me I had some peculiar muscle inflammation in some of my muscles which was a bit of a shock because the referring Neurologist was absolutely confident that the test would find nothing but she wanted to completely rule this out, so I went in thinking the same thing.

I have also yet to be diagnosed with vitamin B12 deficiency because my results came back out of the normal range as being high and yet my previous 2 test 2015 and 2017 I was in the middle of normal range, so I have a 100% and 88% increase on those previous tests. Loads of symptoms but a rheumatologist who has no advice or recommendations on high B12, thankfully my GP has agreed to carry out a MMA urine test and I feel forced to pay for a MMA blood test as well as another B12 to recheck , NHS not prepared to retest B12 for 3 months... GP not satisfied with no answer on high B12 and been very helpful in listening to my research on high B12 could be a spurious reading and needs to be checked for deficiency...

Anyway I would love to hear how you got on, and if you were diagnosed B12 deficient before or after you wrote about your muscles.

Thanks, Gillian

You may also like...

getting tested for PA with NHS

A few years ago after a blood test I was told on the phone that I was B12 deficient and had PA but

tests

tspests for lack of b12 what do they involve how do I get them how often will I need tests what are...

Opinions on the Schilling Test

have b12 deficiency (b12 serum levels high due to injections). He suggested the Schillings test to...

False Positive PA Test

lab that did my test. I had been getting 3 b12 injections per week when I got the tests. I...

Blood test: PTFRNS, What is it testing?

requested a TIBC test (total iron binding capacity) from my GP along with other tests. On my return...