Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,214 members • 23,384 posts

All posts for November 2017

Help me Help me Thanks

I'm married 38 yrs. 3 kids 6 grandkids employed over 40 yrs. same company, I love the Lord cause He first loved me and gave everything for me! Amen! In the...

I'm married 38 yrs. 3 kids 6 grandkids employed over 40 yrs. same company, I lov...

paulleslie

•7 years ago

1 Reply

Stinging hydroxycobalamin, help with supplier or lidocaine advice?

This is my first few SIs of Hydroxycobalamin from Intravita. I'm sure my technique is fine but when the substance is being given its really excruciatingly...

This is my first few SIs of Hydroxycobalamin from Intravita. I'm sure my techni...

Thurgolady

•7 years ago

15 Replies

Pleasant experience at needle exchange

Hi all. I thought I'd share with you all my recent experience at needle exchange. I've been down about 4 times now to "pick and mix" what I need to self-inject...

Hi all. I thought I'd share with you all my recent experience at needle exchange...

Rheadster72

•7 years ago

6 Replies

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Underlying Autoimmune Condition? Immunosuppressed, on Immunosuppressants / Chemotherapy? Avoid Contact With Recipients of Nasal Flu Vaccine.

Hi All Not quite on topic but perhaps relevant to those who may have additional autoimmune conditions or other health issues, so here goes... The nasal flu...

Hi All Not quite on topic but perhaps relevant to those who may have additional ...

Foggyme

Administrator•7 years ago

10 Replies

Just wondering has anyone had a positive outcome from seeing a neurologist with pins and needles and numbness in hands and feet?

So my intrinsic factor antibodies test came back 'negative' and so GP said we therefore don't need to worry about PA, we can rule that out. Knowing what I know...

So my intrinsic factor antibodies test came back 'negative' and so GP said we th...

lc24

•7 years ago

17 Replies

Iron deficiency question

I'm satisfied with my MD but I have a question. I SI every other day; take folate and b6; magnesium and D3. Since May. New symptom - breathing difficulties...

I'm satisfied with my MD but I have a question. I SI every other day; take folat...

Blinkysmom

•7 years ago

4 Replies

Self Injecting and pregnancy

Hello everyone, it's been a week now and my GP hasn't heard back from the specialist that he has requested a second opinion from. In the mean time I still...

Hello everyone, it's been a week now and my GP hasn't heard back from the specia...

BluebellPettle

•7 years ago

1 Reply

B12 spray and amylase

Hello all, I heard the other day from a paediatric doctor in sick kids that b12 are no use for children due to the High concentration of amylase in their...

Hello all, I heard the other day from a paediatric doctor in sick kids that b12...

Hidden

•7 years ago

1 Reply

1st Ever Self Injection...phewwww! Feels Good to Take Control at Last

Hi all, I just thought I would write a quick post in case it may help anyone else who might be struggling with confidence re self injecting. I can't believe...

Hi all, I just thought I would write a quick post in case it may help anyone els...

Drumstix

•7 years ago

8 Replies

Please Help!!! First time post

Hi everyone, I would be very grateful for some advice. I am a vegetarian and have had on off issues with b12 deficiency all my life. I am 30 and last December...

Hi everyone, I would be very grateful for some advice. I am a vegetarian and hav...

Viv_Rose

•7 years ago

28 Replies

Please help

I have Hashimotos and a B12 of 26 (190 - 900) and folate 2.3 (2.5 - 19.5) advice please thanks

I have Hashimotos and a B12 of 26 (190 - 900) and folate 2.3 (2.5 - 19.5) advice...

Maddy112

•7 years ago

3 Replies

Just diagnosed and hoping for a better future.

Well this isn't a site i thought id be on a week ago! After years of chronic depression and 4 sessions of CBT I was advised to have a blood test.....turns out...

Well this isn't a site i thought id be on a week ago! After years of chronic dep...

pedro3335

•7 years ago

15 Replies

Advice much appreciated

Hello everyone, I have been told today that I have a vitamin B12 166 (197-771) and also that my ferritin levels are below par 9.6 (20-130). This is coexisting...

Hello everyone, I have been told today that I have a vitamin B12 166 (197-771) ...

SusieR68

•7 years ago

3 Replies

Low iron or not?

I went to see my doctor today because a recent blood test showed my iron levels to be low, or so I thought. Is it just me, or do the results in the picture say...

I went to see my doctor today because a recent blood test showed my iron levels ...

_Jen_

•7 years ago

3 Replies

Intrinsic factor test

Hi everyone, I've had my results back Serum b12 - 313 (190-900) Folate 2.1 (3-17) Doctors prescribed me 5mg folic acid for life. I asked for the intrinsic...

Hi everyone, I've had my results back Serum b12 - 313 (190-900) Folate 2.1 (3...

Gempep

•7 years ago

3 Replies

Self injecting

Hi. I am starting my self injecting B12.. is there any best time of day to do it. I thought probably first thing in the morning. Thanks in advance Note by...

Hi. I am starting my self injecting B12.. is there any best time of day to do it...

maypole66

•7 years ago

20 Replies

Thank you for help with appeal letter for B12

Hi Everyone, I hope you are all good this morning. I would like to thank Foggyme Sleepybunny Gambit62 and everyone else for helping me to write my letter to...

Hi Everyone, I hope you are all good this morning. I would like to thank Foggym...

Cn13

•7 years ago

16 Replies

Is it B12 deficiency?

I’m new to this site. Wondered if anyone was experiencing the same thing as me. I have been diagnosed with b12 deficiency my level was 185. My symptoms were...

I’m new to this site. Wondered if anyone was experiencing the same thing as me. ...

EJG79

•7 years ago

15 Replies

Stayfocussed

Hi everyone....I got my blood test results back and b12 has gone from 160 to 275....active b12 was 104 that's with taking a 1/4 of 1000mcg tablet...intrinsic...

Hi everyone....I got my blood test results back and b12 has gone from 160 to 275...

Stayfocussed

•7 years ago

2 Replies

Colds/flu

I've noticed for the first time I've had more than 1 bout of severe cold in the space of a year. Anyone else get this? The colds are also much worse than I...

I've noticed for the first time I've had more than 1 bout of severe cold in the ...

loomis

•7 years ago

1 Reply

Self injecting

Hello all you lovely lot. Just looking to see how often a newbie should be injecting? I’ve heard lots of different things ie: every day for 2 weeks or every...

Hello all you lovely lot. Just looking to see how often a newbie should be inje...

Hidden

•7 years ago

7 Replies

Advice/low iron/ferrous sulphate

Hi all, I went to discuss my latest blood results with my Doctor a few days ago. My latest ferritin was 28. This was taken about 6 weeks ago.However as it is...

Hi all, I went to discuss my latest blood results with my Doctor a few days ago....

Pemby1984

•7 years ago

3 Replies

Shingles shot and PA

I recently turned 60. I was diagnosed with B12 deficiency over a year ago. I am thinking of getting a shingles shot, is there any potential problems I need...

I recently turned 60. I was diagnosed with B12 deficiency over a year ago. I a...

xyz011

•7 years ago

2 Replies

End of a Jouney - Hopefully

I have been B12 deficient for at least 18 months and likely 5 years. After endless testing, I was negative for pretty much everything. Only a collapse in...

I have been B12 deficient for at least 18 months and likely 5 years. After endle...

GGourmet

•7 years ago

8 Replies

I'm so confused can someone explain???

Ok so Iv had endoscopy results, abdominal MRI and both have come back clear with just inflammation in stomach lining. So why do I have pa? I'm so confused.......

Ok so Iv had endoscopy results, abdominal MRI and both have come back clear with...

Dani82

•7 years ago

21 Replies

Is this normal?

So the doctors asked for a PA test done and the labs automatically redone my serum vitamin b12 but no PA result has been recieved. Has anyone else had this,...

So the doctors asked for a PA test done and the labs automatically redone my ser...

lc24

•7 years ago

7 Replies

PAS news item NICE Guidelines

HI, Link about PAS news item about NICE Guidelines on PA. https://pernicious-anaemia-society.org/pernicious-anaemia/nice-request/

HI, Link about PAS news item about NICE Guidelines on PA. https://pernicious-ana...

Sleepybunny

•7 years ago

1 Reply

Totally overwhelmed

I do have B 12 deficiency,or so I was told ,some 18 months ago, via a blood test, and that I also had inflammation of the blood. and whatever other was...

I do have B 12 deficiency,or so I was told ,some 18 months ago, via a blood tes...

squeeler

•7 years ago

7 Replies

Update: Any advice? Continued problems and Symptoms

Hey, Please read this bit i wrote recently: https://healthunlocked.com/pasoc/posts/136554385/new-to-this-b12-and-folic-acid-low-neuroligical-problems...

Hey, Please read this bit i wrote recently: https://healthunlocked.com/pasoc/po...

tattoogirl

•7 years ago

5 Replies

Puzzled over test results!!!

Hi I'm new to this forum and I have previously been diagnosed b12 deficiency and had loading doses. My body is screaming help but i cant find out why i feel...

Hi I'm new to this forum and I have previously been diagnosed b12 deficiency and...

Swainy

•7 years ago

9 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2017

Help me Help me Thanks

Stinging hydroxycobalamin, help with supplier or lidocaine advice?

Pleasant experience at needle exchange

Underlying Autoimmune Condition? Immunosuppressed, on Immunosuppressants / Chemotherapy? Avoid Contact With Recipients of Nasal Flu Vaccine.

Just wondering has anyone had a positive outcome from seeing a neurologist with pins and needles and numbness in hands and feet?

Iron deficiency question

Self Injecting and pregnancy

B12 spray and amylase

1st Ever Self Injection...phewwww! Feels Good to Take Control at Last

Please Help!!! First time post

Please help

Just diagnosed and hoping for a better future.

Advice much appreciated

Low iron or not?

Intrinsic factor test

Self injecting

Thank you for help with appeal letter for B12

Is it B12 deficiency?

Stayfocussed

Colds/flu

Self injecting

Advice/low iron/ferrous sulphate

Shingles shot and PA

End of a Jouney - Hopefully

I'm so confused can someone explain???

Is this normal?

PAS news item NICE Guidelines

Totally overwhelmed

Update: Any advice? Continued problems and Symptoms

Puzzled over test results!!!

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