Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,226 members • 23,393 posts

All posts for November 2017

Leicestershire PAS Support Group Meeting: Thursday 30 November, 10am - 12md, Ulverscroft Manor, Priory Lane, Ulverscroft, Leices, LE67 9PH

Hi All The Leicestershire PAS support group and our joint hosts, the Shuttlewood-Clark Foundation, are holding the next PAS support group meeting, as above....

Hi All The Leicestershire PAS support group and our joint hosts, the Shuttlewood...

Foggyme

Administrator•7 years ago

4 Replies

Dr ******?

I’ve just posted this on the thyroid forum that I’m usually resident on but I thought I’d also post on here. I hope that’s ok. So I’m desperation having tried...

I’ve just posted this on the thyroid forum that I’m usually resident on but I th...

Emyloulou

•7 years ago

14 Replies

Blog post about people helped by PAS

Hi, A more positive story from Martyn Hooper's blog about how PAS has helped people. https://www.martynhooper.com/2017/11/20/happy-emails/ The meeting with...

Hi, A more positive story from Martyn Hooper's blog about how PAS has helped pe...

Sleepybunny

•7 years ago

1 Reply

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b12 checked as I have a chronic non ealing leg ulcer and periphal neurothpy

after fighting to get my b12 checked I got the results today. I requested the test as I have a lot of symptoms, but some could also be my age and hormones,...

after fighting to get my b12 checked I got the results today. I requested the te...

rachie881

•7 years ago

28 Replies

Amino acid deficiencies

Hi Just wondering if like me any one has had a test for digestive health. My results shows deficiencies for 5 amino acids 2 fatty acids and the mineral...

Hi Just wondering if like me any one has had a test for digestive health. My res...

Kapat1

•7 years ago

5 Replies

PA with Stomach problems

Hi all. I've written before about PA and stomach problems. I've been having severe stomach pain( under left ribs) for a few weeks now and getting worse. I know...

Hi all. I've written before about PA and stomach problems. I've been having seve...

Wowo23

•7 years ago

1 Reply

Could it be B12 deficiency the cause?

Hi everyone! This is my fist post here (I am opening this as a new post as suggested) and I am compelled to do this because this year was the worst for me. I...

Hi everyone! This is my fist post here (I am opening this as a new post as sugge...

Hidden

•7 years ago

12 Replies

New test result this morning ASMA weak positive?

Hello again everyone, I’ve just picked up another blood test from my surgery, I have no idea what it means, and of course I turned to google. I abe a weak...

Hello again everyone, I’ve just picked up another blood test from my surgery, I ...

HappyKatieA

•7 years ago

4 Replies

B12 Deficiency- Cause Found! Please read, just in the hope it helps you crack your B12 problem.

Hello All, Finally, after years of pleading and fighting to be believed, I've found the cause of my B12 deficiency and felt it worth posting, just in the hope...

Hello All, Finally, after years of pleading and fighting to be believed, I've fo...

Ausuk

•7 years ago

10 Replies

Occasional sudden faintness

I wasn't really sure what to call it, but the closest thing I can describe it as is faintness. Also this is going to be a long post, with as much information...

I wasn't really sure what to call it, but the closest thing I can describe it as...

loomis

•7 years ago

3 Replies

Toes and feet cramping

My toes and feet cramp all the time, I can do this at will as a party trick (not painful they are numb) is this the result of being low B12 for many years, is...

My toes and feet cramp all the time, I can do this at will as a party trick (not...

Katherine1234

•7 years ago

12 Replies

Taking control...

Hi everyone, after 3 years of feeling terrible I decided to take control of my health rather than fight in vain with GPs! I've never really been ill in my...

Hi everyone, after 3 years of feeling terrible I decided to take control of my h...

Siobhan1965

•7 years ago

13 Replies

B12 deficiency, my story

Hi everyone!! :) So a couple of weeks ago I discovered my b12 was 131 ng/L and my doctor refused to inject me. Since beginning of May (6 and a half months...

Hi everyone!! :) So a couple of weeks ago I discovered my b12 was 131 ng/L and ...

xiarei

•7 years ago

12 Replies

charley horse/potassium?

Hello, I have been having terrible calf cramps at night on occasion. I heard there is a link between using b12 and depletion of potassium. Anyone have...

Hello, I have been having terrible calf cramps at night on occasion. I heard th...

pslmt

•7 years ago

8 Replies

B12 deficiency

Hi everyone!! :) So a couple of weeks ago I discovered my b12 was 131 ng/L and my doctor refused to inject me. Since beginning of May (6 and a half months ago)...

Hi everyone!! :) So a couple of weeks ago I discovered my b12 was 131 ng/L and m...

xiarei

•7 years ago

40 Replies

still confused.

I have had b12d for many years, posted on here some months ago, have had loading and now on 3-monthly injections at medical centre. I have had no improvement...

I have had b12d for many years, posted on here some months ago, have had loading...

stumpnme1

•7 years ago

3 Replies

Low b12, gallstones and bilirubin

Hi everyone, I’m just following up on my brother’s test results. He had a test done through medichecks in October which showed very low b12 levels and he also...

Hi everyone, I’m just following up on my brother’s test results. He had a test d...

foxrabbit

•7 years ago

14 Replies

I'm new here & looking for advice please

Hello, I found my way here from Thyroid UK as someone there said this group may be able to advise me. I’ve been feeling unwell for so long now, (ie years), and...

Hello, I found my way here from Thyroid UK as someone there said this group may ...

PebbleOnTheBeach

•7 years ago

4 Replies

Is it possible to have pernicious anaemia with a B12 of 550?

Hi, I’ve popped over from the thyroid forum for a bit of advice. I apologise for the novel I’m about to write! A bit of background first. I was diagnosed...

Hi, I’ve popped over from the thyroid forum for a bit of advice. I apologise fo...

Emyloulou

•7 years ago

32 Replies

Test results

Hi guys Do these shed any light on anything Serum testosterone 0.3nmol/L (.3-1.7) Serum vit b12 275ng/L (180-90) Serum folate 8.6 uh/L (>3.0) Serum ferritin...

Hi guys Do these shed any light on anything Serum testosterone 0.3nmol/L (.3-...

BluebellPettle

•7 years ago

1 Reply

Charge for copy of blood test results

2 weeks ago I had blood tests ready a private appt with gastroenterologist. Once results ready I phoned GP and told £5 for a copy. Yesterday I went to pick up...

2 weeks ago I had blood tests ready a private appt with gastroenterologist. Once...

Taff178

•7 years ago

10 Replies

Im new here...looking for advice on diagnosis and treatment

Im new here.....So I have for a long time being borderline on iron deficiency anaemia, but recently had a below range reading for serum Vitamin B12 of 156ng/l...

Im new here.....So I have for a long time being borderline on iron deficiency an...

lc24

•7 years ago

28 Replies

Is this the end of the road?

I am so grateful to have the loveliest GP. For the last year & more, she has provided me with Hydroxocobalamin ampules for self-injection (And had arranged to...

I am so grateful to have the loveliest GP. For the last year & more, she has pro...

Monimoni04

•7 years ago

27 Replies

Update of doctors

So after having my LFTs and U&Es done to no surprise of them being okay. I had a doctors appointment today ready for a fight for my endoscopy, i walked in he...

So after having my LFTs and U&Es done to no surprise of them being okay. I had ...

Cazzie91

•7 years ago

1 Reply

Can somebody help me understand my results please?

Hi all, I've had some recent blood tests to check my b12 and folate levels. I had this test last week and got a letter that I need another blood test to check...

Hi all, I've had some recent blood tests to check my b12 and folate levels. I h...

Gempep

•7 years ago

8 Replies

Exercise or not?!

Hi all, so I've not quite got a diagnosis, am not yet on any treatment but am hopefully on my way to both. I wanted to ask, I've noticed a few folk on here...

Hi all, so I've not quite got a diagnosis, am not yet on any treatment but am ho...

ktwing

•7 years ago

15 Replies

Is Active B12 rest a fasting test?

Hi all, I’m struggling to understand why my two active B12 tests only a week apart are so different. The only difference was a)the time of day b) I fasted for...

Hi all, I’m struggling to understand why my two active B12 tests only a week apa...

HappyKatieA

•7 years ago

6 Replies

Where do I purchased Hydroxycobalamin

Hi Friends, I would like to know if any of you know where to purchase Hydroxycobalamin. I live in Canada and I purchased some from a pharmacy close to where I...

Hi Friends, I would like to know if any of you know where to purchase Hydroxycob...

terrybraden

•7 years ago

1 Reply

Tingling/ numbness improved after SI but is now getting worse again!

Hi again x I was doing well SI every other day for 3 weeks and the tingling and numbness had completely gone. I then reduced SI down to twice a week and the...

Hi again x I was doing well SI every other day for 3 weeks and the tingling and ...

Padders12

•7 years ago

8 Replies

Fed Up

I am 60 years old and after having b12 injections for the last seven years every six weeks with no problems new doctor has decided he knows best and from now...

I am 60 years old and after having b12 injections for the last seven years every...

caldbeck

•7 years ago

8 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2017

Leicestershire PAS Support Group Meeting: Thursday 30 November, 10am - 12md, Ulverscroft Manor, Priory Lane, Ulverscroft, Leices, LE67 9PH

Dr ******?

Blog post about people helped by PAS

b12 checked as I have a chronic non ealing leg ulcer and periphal neurothpy

Amino acid deficiencies

PA with Stomach problems

Could it be B12 deficiency the cause?

New test result this morning ASMA weak positive?

B12 Deficiency- Cause Found! Please read, just in the hope it helps you crack your B12 problem.

Occasional sudden faintness

Toes and feet cramping

Taking control...

B12 deficiency, my story

charley horse/potassium?

B12 deficiency

still confused.

Low b12, gallstones and bilirubin

I'm new here & looking for advice please

Is it possible to have pernicious anaemia with a B12 of 550?

Test results

Charge for copy of blood test results

Im new here...looking for advice on diagnosis and treatment

Is this the end of the road?

Update of doctors

Can somebody help me understand my results please?

Exercise or not?!

Is Active B12 rest a fasting test?

Where do I purchased Hydroxycobalamin

Tingling/ numbness improved after SI but is now getting worse again!

Fed Up

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