Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,244 members • 23,423 posts

All posts for August 2017

What is needed to support B12 metabolism

How much folic acid or folate and iron should one take daily to support the metabolism of injected hydroxycobalmin? Is there anything else you need to take as...

How much folic acid or folate and iron should one take daily to support the meta...

Gillsie54

•7 years ago

2 Replies

PAS movie

Read a PAS facebook post a while back about a movie being made about PA. The post was asking for title ideas. Wondering the status if the film?

Read a PAS facebook post a while back about a movie being made about PA. The pos...

xyz011

•7 years ago

3 Replies

?Low b12 135

?Low b12. Blood test says b12 is 135 though gp says is within normal range. Constantly tired,neuropathic pain, numb tingling on the end of nose, muscle spasms...

?Low b12. Blood test says b12 is 135 though gp says is within normal range. Cons...

Bunnybin

•7 years ago

30 Replies

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Losing patience and unsure what to do....

Hi, feeling a bit muddled and stressed and need some guidance. Basically it's only 2 and a half weeks since I finished loading doses but I feel no improvement,...

Hi, feeling a bit muddled and stressed and need some guidance. Basically it's on...

Curlygal

•7 years ago

7 Replies

b12/folic acid deficiency treatment/getting better advice

Hi PA society, Thank you for existing, there seems to be people much more informed than the average doctor. I apologize if these questions are answered on the...

Hi PA society, Thank you for existing, there seems to be people much more infor...

lunez22

•7 years ago

3 Replies

Help!

Hi I am writing to see if someone can help me understand something? When I was about 29 years of age I had to have colon surgery for the removal of almost all...

Hi I am writing to see if someone can help me understand something? When I was a...

Sweetimer

•7 years ago

7 Replies

Varying NHS Trust guidelines

A general question for those who have got this far in their investigations. It is clear from my fairly short time reading the forum that the practises in...

A general question for those who have got this far in their investigations. It i...

GavinUK

•7 years ago

7 Replies

Assay, Assay, Assay

A man attends his doctor's surgery to find out the results of his recent serum B12 test which was 141ng/l (140-910ng/l) so the doctor said "That's...

A man attends his doctor's surgery to find out the results of his recent serum B...

clivealive

Forum Support•7 years ago

10 Replies

Question for the women

Hi, I received my loading doses at the beginning of July. I've just had a period and it has completely wiped me out, the fatigue, pins & needles and dizziness...

Hi, I received my loading doses at the beginning of July. I've just had a period...

KJP723

•7 years ago

4 Replies

Help

hi I was diagnosed earlier in the year, I had six loading doses and following dose 8 weeks later. I've had a blood test any my B12 level is nw 1200 and folate...

hi I was diagnosed earlier in the year, I had six loading doses and following do...

jomorgan1605

•7 years ago

5 Replies

Neurological involvement

Has anyone on the forum had a complete reversal from the neurological involvement or even part ????... And if so how long did it take??? And how did you...

Has anyone on the forum had a complete reversal from the neurological involvemen...

Frances55

•7 years ago

20 Replies

Active B12 - when to stop supplementing before test?

Hello all, I'm popping over from my more usual haunt, the thyroid forum. :) I'm thinking of doing an Active B12 test in around a month's time (currently...

Hello all, I'm popping over from my more usual haunt, the thyroid forum. :) I'm ...

Hidden

•7 years ago

3 Replies

Just need to vent!

Hello, Been to the doctors today after waiting 3 weeks for an appointment only for the doctor to barely look at me and pretty much refuse to listen. My b12...

Hello, Been to the doctors today after waiting 3 weeks for an appointment only f...

Cathyjw

•7 years ago

5 Replies

Blood results

After having symptoms of b12 deficiency and taking rantidine for 2 years. My blood results showed normal b12 level of 600. Is it possible that I'm not...

After having symptoms of b12 deficiency and taking rantidine for 2 years. My blo...

Lisha1642

•7 years ago

1 Reply

GP didn't order intrinsic factor test!

Hello, I went to my GP practice and got print-outs of all my blood test results, but discovered I never even had the IF test! Instead she did the gastric...

Hello, I went to my GP practice and got print-outs of all my blood test results,...

Curlygal

•7 years ago

11 Replies

In need for advice/help with blood tests for B12 please

Hi. I have just got a print out from my doctors with regards to the numerous blood test I have had due to symptoms for extreme tiredness, (keeping falling...

Hi. I have just got a print out from my doctors with regards to the numerous blo...

vicks05

•7 years ago

10 Replies

Proof of b12 healing lesions

I have had 2 MRI scans showing lesions on my myelin on brain and spinal cord. I have been diagnosed with MS ten yrs ago and started b12 injections 1 month ago....

I have had 2 MRI scans showing lesions on my myelin on brain and spinal cord. I ...

toph

•7 years ago

1 Reply

Hydroxocolabamin injection

Please I need some advise ...Has anybody ever had any side effects after a loading dose of Hydroxocolabamin injections??

Please I need some advise ...Has anybody ever had any side effects after a loadi...

Olly123

•7 years ago

22 Replies

New to forum

What do I need to do about results please. I feel like I am falling apart and I am a 29 year old female. Symptoms are tiredness, difficulty with sleep,...

What do I need to do about results please. I feel like I am falling apart and I...

808j

•7 years ago

9 Replies

Job

Have any of you that are of working age quite your job / changed jobs due to PA. I am 50 have a high stress finance job and have been considering quitting to...

Have any of you that are of working age quite your job / changed jobs due to PA....

Cwilli

•7 years ago

9 Replies

Is there any B12 research being conducted

Does anyone know if there are any B12 research studies currently being conducted? I've poked around on the internet but haven't found any recent scientific...

Does anyone know if there are any B12 research studies currently being conducted...

MoKayD

•7 years ago

2 Replies

Supplements and blood results.

Hi, I had blood tests back in 2015 that showed I had a very low B12 count. I injections every second day for 3 weeks then a blood test every 6 months to track...

Hi, I had blood tests back in 2015 that showed I had a very low B12 count. I inj...

rachelp

•7 years ago

2 Replies

Tinnitus!

I have a high whiny tinnitus which seems to come from my left ear (though sometimes it does feel like it's coming from the right too). I wondered if those...

I have a high whiny tinnitus which seems to come from my left ear (though someti...

ajw1205

•7 years ago

6 Replies

Headaches after B12 loading dose

Hi all, I have just finished a course of 10 B12 injections - the difference that I have felt has been amazing, however after stopping them I have woken up...

Hi all, I have just finished a course of 10 B12 injections - the difference tha...

jrb85

•7 years ago

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B12 levels with injections

Hi, I have been having b12 injections through my GP every 8 weeks for around 2yrs, after a diagnosis of low b12 levels (around 160). Luckily I am able to...

Hi, I have been having b12 injections through my GP every 8 weeks for around 2yr...

lizzie4687

•7 years ago

4 Replies

Why won't doctors listen

My doctor will not let me have my b12 anymore than every 3 months . I used to have it every 8 weeks and she decided it's licence for 3 months only . So thats...

My doctor will not let me have my b12 anymore than every 3 months . I used to ha...

lindar1710

•7 years ago

6 Replies

Frequency of B12 injections

Hi, I am new to this site and have found it very helpful. Three years ago after 3 weeks of blood tests I was diagnosed B12 deficiency and needed injections...

Hi, I am new to this site and have found it very helpful. Three years ago afte...

b-m-h

•7 years ago

1 Reply

Advice please

Hello all, I wonder if anyone can offer advice please. My partner was diagnosed with b12 deficiency 9 months ago following many years of numerous symptoms and...

Hello all, I wonder if anyone can offer advice please. My partner was diagnosed ...

Looley

•7 years ago

6 Replies

IF Antibody test back - so what next

Following up on my previous posts (low B12, started on B12 loading shots - had second today so too early to tell results on symptoms) Finally got my IF...

Following up on my previous posts (low B12, started on B12 loading shots - had s...

GavinUK

•7 years ago

6 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2017

What is needed to support B12 metabolism

PAS movie

?Low b12 135

Losing patience and unsure what to do....

b12/folic acid deficiency treatment/getting better advice

Help!

Varying NHS Trust guidelines

Assay, Assay, Assay

Question for the women

Help

Neurological involvement

Active B12 - when to stop supplementing before test?

Just need to vent!

Blood results

GP didn't order intrinsic factor test!

In need for advice/help with blood tests for B12 please

Proof of b12 healing lesions

Hydroxocolabamin injection

New to forum

Job

Is there any B12 research being conducted

Supplements and blood results.

Tinnitus!

Headaches after B12 loading dose

B12 levels with injections

More info on my previous post

Why won't doctors listen

Frequency of B12 injections

Advice please

IF Antibody test back - so what next

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