Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,245 members • 23,424 posts

All posts for August 2017

Thanks to all that gave me help , as I thought it was all in my head.

I have at last been given B12 injections, 6 loading dose to start with then 3 monthly . Dr at last listened to my symptoms rather than the...

I have at last been given B12 injections, 6 loading dose to start with ...

shal61

•7 years ago

7 Replies

Loading dose update and partial success

Following my previous posts about finally getting a low B12 test and starting on loading doses, I've had a partial success in continuing them past the standard...

Following my previous posts about finally getting a low B12 test and starting on...

GavinUK

•7 years ago

2 Replies

Bloods not so normal after all?

I posted 2 weeks ago about my serum B12 being 602 ng/L and the GP saying my CFS is therefore not due to a B12 deficiency, and that despite me having been on a...

I posted 2 weeks ago about my serum B12 being 602 ng/L and the GP saying my CFS ...

mouldy63

•7 years ago

5 Replies

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I walk like a drunk. But I wonder - I've been bed bound for 2 years ...

Daughter died - put me in a deep depression. Anyway, after being diagnosed with b12, folate and magnesium deficiency, I am SI hydroxocobalamin every other...

Daughter died - put me in a deep depression. Anyway, after being diagnosed with...

Blinkysmom

•7 years ago

7 Replies

Trunk Neuropathy Question from Newcomer

I was found to have parietal antibodies about two years ago, and therefore diagnosed with autoimmune pernicious anemia, even though my B12 was in the low...

I was found to have parietal antibodies about two years ago, and therefore diagn...

gnnmi

•7 years ago

3 Replies

I do SI every other day. I'd like to supplement with sublinguals. Any progress in relieving symptoms after doing this?

Thanks.

Blinkysmom

•7 years ago

2 Replies

Recent Bloodwork

Hi Could anyone make any sense of these blood tests, I'm waiting for GP to contact me but I'm unsure if everything is ok. Also had this result too Serum...

Hi Could anyone make any sense of these blood tests, I'm waiting for GP to con...

Sparkleshimmer

•7 years ago

1 Reply

B12 and High Hematocrit?

Hi. 6 months ago, after being diagnosed with B12 deficiency, and after SI loading doses, (followed by twice weekly SI), and feeling on top of the world then, I...

Hi. 6 months ago, after being diagnosed with B12 deficiency, and after SI loadin...

patez

•7 years ago

15 Replies

Advice needed (very frustrated)

Hi all I am hoping someone may be able to offer me some advice. I have suffered from low b12 since 16 (that's when it was first noticed anyway). Through my...

Hi all I am hoping someone may be able to offer me some advice. I have suffered...

venus92

•7 years ago

30 Replies

b12 test results

i am awaiting two b12 blood test results not the serum basic ones. i want to be able to interpret the result. what should i be looking for?

i am awaiting two b12 blood test results not the serum basic ones. i want to be ...

bluetit42

•7 years ago

3 Replies

Sensitive Skin

Does anyone else have extremely sensitive skin as a symptom. It starts in my hands. It gets so bad I can't touch anything. And then my skin hurts when I go to...

Does anyone else have extremely sensitive skin as a symptom. It starts in my han...

jlee0614

•7 years ago

3 Replies

High level vitamin b12

Hello. About 3 months ago I thought I should go and get an overall checkup. Had all my bloods tested. What came back was my vitamin b12 was sitting at 1100....

Hello. About 3 months ago I thought I should go and get an overall checkup. Had ...

B122017

•7 years ago

2 Replies

Feeling crushed

On Friday I had 2 letters, the first from my Psychology Practitioner that I've been seeing monthly for the last 3 years has now left my surgery and the second...

On Friday I had 2 letters, the first from my Psychology Practitioner that I've b...

Penni

•7 years ago

12 Replies

Just wondering

I'm doing a bit of research for my 42 year old daughter who has been tired, depressed and brain foggy, thought it might be a vitamin deficiency.

I'm doing a bit of research for my 42 year old daughter who has been tired, depr...

Lany

•7 years ago

2 Replies

Weak muscles

Have been takingB12 sublingual pills for about two months. I have been experiencing a lot of weak muscles in left arm , which went away after having therapy,...

Have been takingB12 sublingual pills for about two months. I have been experienc...

Shirley7144

•7 years ago

2 Replies

Can you stand on one leg and close your eyes without falling over

Hi and wonder if anyone can help, recently seen on this site reference to B12 deficiency which showed [ Trying to stand on one foot with the eyes closed] I...

Hi and wonder if anyone can help, recently seen on this site reference to B12 de...

rosebush1953

•7 years ago

23 Replies

New and Confused

Hello and please bare with me. About a month ago my new doctor ran my B12 levels 180 and negative on Intrinsic factor, so Pernicious Anemia. I just finished...

Hello and please bare with me. About a month ago my new doctor ran my B12 levels...

alice215

•7 years ago

33 Replies

B12 loading dose done, still feeling symptoms

I have recently been diagnosed with deficient b12 and ferritin following a blood test, and the GP has put me on oral iron and b12 injections. I have had six...

I have recently been diagnosed with deficient b12 and ferritin following a blood...

Dee215

•7 years ago

9 Replies

What to do next

Hi, I have been on b12 injections for about 5 years now after a good 10 years of previously feeling rubbish due to very low levels of b12. I had the loading...

Hi, I have been on b12 injections for about 5 years now after a good 10 years of...

B12fog

•7 years ago

4 Replies

B12D causes? Ideas?

Hi everybody, I just joined and this is my first post, ever in a health forum so sorry if my post isn't put together well haha. I was dx with a B12d may 2016...

Hi everybody, I just joined and this is my first post, ever in a health forum so...

MaggieMaeJohnsm

•7 years ago

24 Replies

The dreaded Acne

Is there anything I can do about this acne problem due to the injections 😔... I don't think my wee face can accommodate much more... It's ony scalp and all...

Is there anything I can do about this acne problem due to the injections 😔... I...

Frances55

•7 years ago

14 Replies

Feel worse rather than better!

I have had my sixth and final injection of my loading dose this morning and my next one is now not due until November. From what I have read on various posts...

I have had my sixth and final injection of my loading dose this morning and my n...

Nicoleflower81

•7 years ago

12 Replies

Help deciphering blood results please!

I finally decided to have a private MMA test at St. Thomas' in London because of my symptoms and was convinced that I had low B12. Anyway it took nearly two...

I finally decided to have a private MMA test at St. Thomas' in London because of...

flibertygibert

•7 years ago

15 Replies

About to order B12

This is my first post, though I've been a member for a while. For the last 5 years my GP has administered 12 weekly injections , however last year I was...

This is my first post, though I've been a member for a while. For the last 5 ye...

Spaghettihoop

•7 years ago

28 Replies

MMA test?!

Hi all, Wonder if you can help me out ... around 6 weeks ago I started having some not very nice symptoms incl tingles/pins and needles, brain fog, memory...

Hi all, Wonder if you can help me out ... around 6 weeks ago I started having so...

Tara-

•7 years ago

9 Replies

Problems with the Medical Profession

As the B12 provided by the UK NHS has proved to be totally inadequate for my wife's needs, we have been supplementing her with injections of 1mg...

As the B12 provided by the UK NHS has proved to be totally inadequate for my wif...

Johnathan

•7 years ago

11 Replies

A Confession And Apology to Foggyme Followers: 'Following' Has Been Accidentally Deleted

Hi All. It appears that I've been playing fast and loose when toggling my buttons in personal settings and have managed to accidentally delete all Foggyme...

Hi All. It appears that I've been playing fast and loose when toggling my button...

Foggyme

Administrator•7 years ago

5 Replies

Possible change of doctor attitudes to B12D sufferers?

I would imagine that this case will probably have a profound impact on all doctors responsible for patients with PA or B12D who ignore, either wilfully or...

I would imagine that this case will probably have a profound impact on all docto...

Hidden

•7 years ago

7 Replies

Very new to this

Hi, for some time now l have been coming down from breakfast about 8 am and about two hours later l have been so exhausted that l just have to go back to bed...

Hi, for some time now l have been coming down from breakfast about 8 am and abou...

Classicmichael

•7 years ago

4 Replies

Blood results after treatment

Hi All! This is my first time posting. I was dx with PA in 2014. We are having a hard time keeping my numbers up and have tried front loading regularly and I...

Hi All! This is my first time posting. I was dx with PA in 2014. We are having a...

Ganeshmouse

•7 years ago

7 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2017

Thanks to all that gave me help , as I thought it was all in my head.

Loading dose update and partial success

Bloods not so normal after all?

I walk like a drunk. But I wonder - I've been bed bound for 2 years ...

Trunk Neuropathy Question from Newcomer

I do SI every other day. I'd like to supplement with sublinguals. Any progress in relieving symptoms after doing this?

Recent Bloodwork

B12 and High Hematocrit?

Advice needed (very frustrated)

b12 test results

Sensitive Skin

High level vitamin b12

Feeling crushed

Just wondering

Weak muscles

Can you stand on one leg and close your eyes without falling over

New and Confused

B12 loading dose done, still feeling symptoms

What to do next

B12D causes? Ideas?

The dreaded Acne

Feel worse rather than better!

Help deciphering blood results please!

About to order B12

MMA test?!

Problems with the Medical Profession

A Confession And Apology to Foggyme Followers: 'Following' Has Been Accidentally Deleted

Possible change of doctor attitudes to B12D sufferers?

Very new to this

Blood results after treatment

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