Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,244 members • 23,423 posts

All posts for August 2017

Urgent help needed

Hi I am seeing my GP later on today, he started me on a trial of B12 injections to see if they would help with symptoms. I am taking 1 injection every 3 months...

Hi I am seeing my GP later on today, he started me on a trial of B12 injections ...

claudie2

•7 years ago

11 Replies

Will I ever be able to store B12 in my liver and muscle?

I have been getting B12 shots weekly (cyanocobalam) for over a year. I used to be exhausted before the week ended, now it is just sometimes. I am wondering...

I have been getting B12 shots weekly (cyanocobalam) for over a year. I used to ...

xyz011

•7 years ago

27 Replies

Do GP's have sufficiently diverse CPD?

I ask this question, because so many comments on here are based upon a GP not following guidelines and often demonstrating low or zero knowledge on this...

I ask this question, because so many comments on here are based upon a GP not fo...

GGourmet

•7 years ago

20 Replies

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Where to get private blood test for active B12?

Hello, Where would I go to privately get a blood test of active B12? many thanks -

Hello, Where would I go to privately get a blood test of active B12? many thank...

DepletedGirl

•7 years ago

4 Replies

No period since March

Hi there, I haven't had my period since March so I went to the doctor and I had my blood taken. He told me over the phone that I had folic acid deficiency...

Hi there, I haven't had my period since March so I went to the doctor and I had ...

Elliss

•7 years ago

2 Replies

Folic Acid Deficiency

Hi, just wandering if anyone has some knowledge on folate acid levels. After having a blood test I have been told I have a folic acid deficiency, and given 4...

Hi, just wandering if anyone has some knowledge on folate acid levels. After ha...

Hidden

•7 years ago

3 Replies

B12 Supplementing advice please

Hi, I'm hypothyroid and latest blood test show thyroid hormone levels as good so I'm working on getting my B12, Vit D and folate up to optimal levels. I have...

Hi, I'm hypothyroid and latest blood test show thyroid hormone levels as good so...

tzracer

•7 years ago

11 Replies

Iron results help please

I have been posting on the Thyroid forum for my wife (hypothyroid) as that is the main issue (I think). Also low Vit D, B12 and Ferretin. She is constantly...

I have been posting on the Thyroid forum for my wife (hypothyroid) as that is th...

tzracer

•7 years ago

3 Replies

Another illness has caught up with me.

Morning all,I was at the hospital yesterday, been diagnosed with Bell's Palsy,on high dosage steroid and Aciclovar medication. Paracetamol and Ibuprofen It's...

Morning all,I was at the hospital yesterday, been diagnosed with Bell's Palsy,on...

Nicky-Richards

•7 years ago

9 Replies

Blood loss

I have been a nymic for 7 years had camara top and bottom went to hospital to have polops removed 2 years ago now had results from the test kitt to say they...

I have been a nymic for 7 years had camara top and bottom went to hospital to ha...

guytane

•7 years ago

1 Reply

Want to self-inject but no GP referral

I want to try buying B12 and self injecting but believe you need the first injection done in a medical setting. How do you manage this if the gp will not agree...

I want to try buying B12 and self injecting but believe you need the first injec...

MaryFu

•7 years ago

10 Replies

Fissured Tongue treatment

Hello, I just recently discovered that I have a fissured tongue, although I can not remember if it suddenly developed or I was born like this. ( I tried...

Hello, I just recently discovered that I have a fissured tongue, although I can...

Jasmineran241

•7 years ago

1 Reply

B12 deficiency, Pernicious Anaemia and a Slipped Disc.

I was diagnosed with anaemia when I was 13, I had to take iron tablets and eventually stopped taking them because I was unreliable (and just to add, I had the...

I was diagnosed with anaemia when I was 13, I had to take iron tablets and event...

midnyteangelex

•7 years ago

5 Replies

Test results

I'm currently going round in circles trying to find out what's wrong. Symptoms include: Fatigue (sleep about 10hrs a day once I can get to sleep) Struggling...

I'm currently going round in circles trying to find out what's wrong. Symptoms i...

Ty-phoon

•7 years ago

4 Replies

Painful SI into thighs - Can anyone explain or give advice

My husband (bless him) injects me every other day now with 1ml hydroxocobalamin and it hurts like billyo. He has injected me with 2ml of cyan(1ml B12) while...

My husband (bless him) injects me every other day now with 1ml hydroxocobalamin ...

pramela

•7 years ago

13 Replies

Pernicious anemia stomach problems

I have an under active Thyroid and pernicious anemia. Over the past few months I have been having more stomach problems than usual I am also very tired and...

I have an under active Thyroid and pernicious anemia. Over the past few months I...

Victoria1990

•7 years ago

10 Replies

Anyone undergo steroid therapy to build up strength?

My muscles are slack and I can't walk without a walker. Would short term steroid therapy help?

My muscles are slack and I can't walk without a walker. Would short term steroi...

Blinkysmom

•7 years ago

2 Replies

Brain fog

Hi All I am having my injections 8 weekly from the doctors but I self inject once in between this period. However the brain fog has returned and other people...

Hi All I am having my injections 8 weekly from the doctors but I self inject onc...

MISSNEATS

•7 years ago

3 Replies

Vitamin B Injection

so i don't know if anyone in this group can answer my question. so i was on Birth control for 9 months it was giving me serious side effects although i think...

so i don't know if anyone in this group can answer my question. so i was on Birt...

Silvs17

•7 years ago

9 Replies

Digestive System

Hi I'm new here, I have been diagnosed with Pa for 6 yrs now and I would like to ask is anyone else having problems with their digestive system? Thanks

Hi I'm new here, I have been diagnosed with Pa for 6 yrs now and I would like to...

Valerie12

•7 years ago

3 Replies

hide and seek lupus

i was diagnosed with lupus 5 years ago. by my local rhenmy. asked for a second opinion at st thomas's said yes i have lupus. six moths ago rheumy told me to...

i was diagnosed with lupus 5 years ago. by my local rhenmy. asked for a second o...

bluetit42

•7 years ago

6 Replies

Pernicious anaemia symptoms fluctuating. Seeking support

Hello, I have pernicious anaemia and have injections from my surgery every 8 weeks. I get by fine with these most of the time - I can go to the gym and go to...

Hello, I have pernicious anaemia and have injections from my surgery every 8 w...

Chooper1l

•7 years ago

4 Replies

B12 Deficient

I am now getting B12 injections every 2 months,from the usual 3 monthly injections after my GP agreed due to Pins and needles and B12 being 145ng/L .I get...

I am now getting B12 injections every 2 months,from the usual 3 monthly injectio...

Advice1

•7 years ago

7 Replies

Specialists and MMA tests.

Hi all, Just wanted to post again because I'm not sure if my replies get lost and not replied to after a few days. I just need help with trying to sort out...

Hi all, Just wanted to post again because I'm not sure if my replies get lost an...

Cn13

•7 years ago

4 Replies

Help please

Hi I'm new to this site so apologise if this isn't the correct place to post. I've been suffering with fatigue , brittle nails, spontaneous bruising and...

Hi I'm new to this site so apologise if this isn't the correct place to post. I'...

Dani_79

•7 years ago

1 Reply

Advice please

Did put on thyroid uk. Serum folate2.2ug/L 3.9-26.8ug/L B12 247ng/L 197-771ng/L Ferritin 175ug/L 30-400ug/L Tsh 0.89miu/l 0.27-4.2miu/l...

Did put on thyroid uk. Serum folate2.2ug/L 3.9-26.8ug/L B12 247ng/L 197-771...

Chance15

•7 years ago

7 Replies

B12 and Vit D spray taken together?

Hi all, I receive my b12 injection every 3 months, but am feeling symptoms returning with a vengeance recently about a month before the next injection is due....

Hi all, I receive my b12 injection every 3 months, but am feeling symptoms retur...

Helena12

•7 years ago

7 Replies

Is my b12 low? I am new here & looking for answers! Please help if you can 😀

I am feeling very tired, pretty exhausted- & have 71/2 hours uninterrupted sleep every night, have brain fog & mood swings. My gp thinks I am depressed but I...

I am feeling very tired, pretty exhausted- & have 71/2 hours uninterrupted sleep...

Marathon69

•7 years ago

5 Replies

Where did that paper go?

Anyone remember a research paper about the three different types of B12 that pointed out that all of them had to go through the same process to reach the cells...

Anyone remember a research paper about the three different types of B12 that poi...

Galixie

•7 years ago

4 Replies

B12 advice please

Hi I am new to this site and after some information/advice. I have been extremely exhausted for over a year and my symptoms have got worse, to the point were I...

Hi I am new to this site and after some information/advice. I have been extremel...

vicks05

•7 years ago

2 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2017

Urgent help needed

Will I ever be able to store B12 in my liver and muscle?

Do GP's have sufficiently diverse CPD?

Where to get private blood test for active B12?

No period since March

Folic Acid Deficiency

B12 Supplementing advice please

Iron results help please

Another illness has caught up with me.

Blood loss

Want to self-inject but no GP referral

Fissured Tongue treatment

B12 deficiency, Pernicious Anaemia and a Slipped Disc.

Test results

Painful SI into thighs - Can anyone explain or give advice

Pernicious anemia stomach problems

Anyone undergo steroid therapy to build up strength?

Brain fog

Vitamin B Injection

Digestive System

hide and seek lupus

Pernicious anaemia symptoms fluctuating. Seeking support

B12 Deficient

Specialists and MMA tests.

Help please

Advice please

B12 and Vit D spray taken together?

Is my b12 low? I am new here & looking for answers! Please help if you can 😀

Where did that paper go?

B12 advice please

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